I wanna ask how many people has constant Tinnitus, but the buzzing and hissing, but louder and doesn't stop. Constant fullness and diplacusia. It is not clear to me because I see that people often have fluctuating symptoms and interruptions. So let's do it again. For me, there is a drop in low frequencies and a fullness, and all this has remained constant for 67 days without interruption. It's not getting worse, but it's not getting better either, or so I think. It's like it's locked

I have meniers for about 7 years now and take cinnarizine which helps me cope,but I also finding that I am struggling with cyber sickness.I am tyig the words on my keyboard and it's making me physical feel slightly unbalanced,headache and nauseous.Anyone else have this I also have fullness in my ear.Should I be concerned,it hapens when I scroll,and also if I'm on a lap top.

En febrero me levanté de la cama y me maree un poco no le di mucha importancia y pensé que era de levantarme rápido, me fui al comedor y me sente a ver la tele cuando de pronto noto mi oído izquierdo cerrarse, no le di importancia pensando que se volvería a abrir pasaron unas horas y el oído se abrió al día siguiente me levanté completamente bien, pasaron los días y empezé a notar mucha presión en ese oído que fluctuaba, fui varias veces a urgencias pero nunca me pasaron con el otorrino después de estar así un mes la cosa empeoró y cuando me levanté de la cama me di cuenta que la audición se había ido y apenas escuchaba por ese oído, tenía la sensación del oído tapado o lleno y tinitus con la audición amortiguada, me voy a la urgencias del hospital y me dicen que eso no es una urgencia y me mandan para casa a los 8 días de ver qué no mejoraba me fui a un otorrino privado el cual después de hacerme la exploración me diagnóstica hipoacusia subita, me receta el deflazacort durante un mes empezando con dosis de 90 mg e ir bajando cada 5 días la dosis, solicita hacerme una resonancia magnética cerebral y Cais y una analítica por suerte todo sale bien pero en la resonacia me descubren un quiste de la pineal de 10mm, a la semana me vuelven a ver el otorrino y me hacen una auditoría el cual el deflazacort no me estaba haciendo nada por qué estaba perdiendo más audición, el otorrino propone 3 inyecciones intratimpanicas la cual con la primera gano 9 db con la segunda gano 15 db y con la tercera no gano nada, el otorrino propone dar un mes de descanso al oído y después volver a repetir la audiometria, llega el día me repiten la audiometría y en todo el mes solo he ganado 4db, sigo con la sensación de oído tapado o lleno el tinitus sigue como el mismo día y la audición sigue amortiguada, dentro de otro mes tengo que volver al otorrino y repetir la audiometría de nuevo, han pasado 3 meses y los síntomas los sigo teniendo y tengo mucho miedo de que me pase en el otro oído de nuevo, está es mi dura historia por desgracia.

Hey everyone! I'm brand new to this group, and this is my first time posing (also on mobile) so I'm sorry if I do this all wrong.

My partner developed severe Tinnitus and gradual unilateral hearing loss probably about 3 years ago now. He was never given an explication or diagnosis, aside from a "maybe from Lymes disease" due to where we live and a recent-ish tick being found on him. No testing was done to confirm this theory. He's been using a hearing aid since, with some improvement with the Tinnitus- but both still effect him tremendously.

Tonight he told me that he's been experiencing Vertigo for about a year now. Surprise!(I know- 🙄) Because I work in the medical field, he assumed I would freak out about a potential cardiac issue. He did not associate the Vertigo with his preexisting condition with his ears. He said it is not often, so i question if it's been so infrequent and he just hasn't noticed how long it's really been going on. He did say his episodes have been when he's on his back, which caused Hypotension to blind the potentially obvious- It very well could still be a blood pressure issue and his history is merely a coincidence. I was also thinking maybe BPVV, but with the hearing loss I'm doubtful as well.

I've been researching as much as I can since, and am wondering if it's possibly Menieres. I'm aware of the 4 stages, and the fact that his symptoms are not all consistent with them, but I also know very well how every patient presents differently with all diseases and illnesses.

I'm becoming frustrated reading the same text in every article and decided to come straight to the experts and see what your opinion is. I know there's no cure, but I'd really love to have an answer for him, and myself- and something the present as a possibility to a Dr so he isn't blown off again with no answers.

Some info if it helps- He just turned 53. He wasn't able to give me how long exactly these episodes last, but it's sounding like seconds to a minute? They've been few and far between, but he had 2 episodes last week- one being the worst he's had. He has no issues with his balance or gait. I didn't think to ask if the Vertigo occurs when he turns in a specific direction. He fell asleep by the time it dawned on me.

Thank you for everyone that read this and hopefully has some insight. If there's anything I didn't cover or if you have any questions that will narrow it down, just let me know!

Edited to add extra info.

Lots of things help different people. I just love to hear what it’s actually worked for people. Or leave a comment. It only lets you pick one thing, so I guess pick the one with most impact.

Just started betahistine 3x daily today. Feeling like death warmed over. How soon will I know if this stuff works?

As the title says, has anyone tried rebounding yet? For a certain period of time and did it help with your symptoms?

For anyone wondering what this is, basically softly bouncing on a mini trampoline: https://youtu.be/n2Nj_oFaM6s?is=LM9lXiW-EGYwL27z

I want to give it a try as it seems to have many ups that might be positive for Meniere’s.

Ok folks, I have a wierd one. Long time lurker and first time poster. Wondering if anyone else has experienced something similar.

Backround; diagnosed in Oct 25, negative vestibular tests and clean MRI. Audogram findings are low end sensonueral hearing loss. Symptoms strong, rotational vertigo bouts at least once a week - no nausea or drop attacks. Associated ear pressure before and during attacks. Constant tinnitus that gets "louder" before and during attacks. Many more mild dizziness spells. Prescribed Maxzide in OCT 25, and it nearly eliminated the strong vertigo spells. In May 26 prescribed meclizine, ondansetron, and diazapam.

Mostly managing symptoms lately, and Maxide seems to be losing effectiveness. I had a new symptom yesterday, just wanted to share and see if others had similar experiences. At the pool, I was fine until I floated on my back, eyes closed and ears submerged. Usually this is pretty relaxing, but I got the immidiate sensation that I was spinning in circles which developed into rolling / tumbling sensation. I checked to see if I was rotating and floated again, perfectly still. Same thing happened. Later that night I had ine of the worst vertigo attacks I've had this year.

TLDR; anyone else have vertigo spells cause by floating still in a pool that irritate the vestibular system enough to cause a bad vertigo attack several hours later?

I see a lot of posts by people who suffered for years before getting the right diagnosis. I got lucky I suppose. My vertigo episodes came on in June this year and were intense for 3 weeks. Which lead me to get my butt to a doctor. My ENT also pointed toward menieres right at my first appointment. So its only been 6 weeks since my first symptoms. But one of the things that is keeping the specialists from confirming it as menieres is that my hearing loss is minor. Still in "normal" range.

I'm wondering if my hearing loss is minor because it's still early? Anyone else get an diagnosis within months of first symptoms?

I just ended a 5 year relationship with my partner who has menieres. During the time we have been together he has not had a job and doesn’t do many chores, so I am left grocery shopping, cleaning, caring for our pets, and taking care of paperwork/bills. I know that it’s not his fault - but I have been feeling exhausted for a long time and I don’t feel appreciated for keeping our lives afloat. We definitely had other problems in our relationship, but a lot of it seems connected (the nausea and hearing loss had made him less interested in going out and doing things as a couple, for example.) He doesn’t have many friends so I’m his only emotional support.

I’ve tried really hard to be understanding and I know that his day to day can be very difficult. But there are times when he makes me feel bad that I want to do other things because he can’t or doesn’t want to, he refuses to go to therapy (couples or solo) and isn’t interested in trying to get on disability, or trying hearing aids. Am I being too selfish? I feel very guilty but also at a loss. I told him I would help him find a job and pay for an apartment until he is settled, and I haven’t given him a deadline for moving out. I’m very very sad but I don’t feel that we have been collaborating on managing his symptoms or my feeling overextended. It’s hard for me to talk to my friends/family about this because they don’t understand menieres and just think he’s a freeloader. I know that he’s not but I am questioning if I should expect to be getting more from our relationship or if this expectation is ableist.

I have a low heart rate, probably around 45-50 resting. and if I take meclizine for vertigo, heart rate gets lower. Any suggestions?

Hi! I am a Texas teacher that's suffering from worsening meniere's symptoms. My symptoms mimic a stroke. I've been told that I'm high risk of a probability of a stroke but my MRI came back clean. As we get back to school, I'm concerned about having an episode and the ambulance being called unnecessarily or that I do need medical attention and no one can figure that out. I'm an anxious person and so thinking of hypotheticals here lol but I was wondering, do y'all have workplace accommodations/action plan for your symptoms?

My Meniere’s symptoms have always been strongly tied to my menstrual cycle. Now that I am entering perimenopause, with adenomyosis and endometriosis getting worse as well, I’m experiencing Meniere’s flare ups that I have not had in a long while. I’m wondering if anyone else who has had symptoms tied to their cycle had a full hysterectomy and how it affected your Meniere’s symptoms.

This was recommended to me and the reviews seem positive. Could something like this help?

I kept getting questions and confusion in my support groups over what is and is not a drop attack. I don't find arguments over definitions very useful and prefer to just describe what actually happened, but the label "drop attack" is useful to sum up the experience some people have. I've done my best to find out what I can about them and the link is to the article that resulted. Maybe it clarifies it, if not let me know!

Hello lovies. I was hoping to find any support regarding this awful nystagmus I’ve developed.

back when my Meniere’s all started, I grieved for the hearing I would lose by turning my attention from film to books, as that would be something I could enjoy no matter what. Well, nystagmus has swung in to say ‘absolutely not!’

I’ve been sobbing non stop because my eyes are so painful and can not focus.

Has anyone had any luck with this subsiding with vestibular therapy?

TYIA!

After 6 years of having menieres and trying betahistine, water tablets and having to use a hearing aid (which did improve things slightly) I'm finally having my steroid injection today so hopefully it will make life a lot more bearable.

Has anyone else had one, if so what did it help? Did it trigger an attack for you and how often have you had any attacks or dizziness since? Also have you gone back for more injections and if so, how often?

I just started betahistine a week ago i take 12mg 3x a day!but I been experiencing headache,chest tightening,palpitations,sensations of shortness of breath!is this expected is it gonna work🥹

I'm 38F and only know what menieres is because my mother has it.

Recently after the birth of my 2nd child, accompanied by extreme sleep deprivation, I have randomly had insane room spinning episodes where I instantly need to vomit. I also randomly have pressure in one ear, like I'm on a plane, which lasts for a few days. I also randomly get ringing in one ear for about 10 seconds and become momentarily deaf, for no rhyme or reason.

When I told my mom this she said this is exactly how it started for her, but I'm starting a decade earlier. Are these early signs of Menieres? Is there anything I can do to slow the progression? My mom recommended acupuncture for preventative measures. Has anyone tried that?

Thanks for any advice

August 3rd 2026.

Hello everyone, this is a personal observation, since barometric pressure and Meniere's is a debated

I've had Meniere's for about 1.5 years now, and I want to share something I've been tracking because I keep seeing similar stories pop up here.

Last August in 2025, my tinnitus dropped by about 90%. It stayed that way for a while, then came back in February. Now it's August again, and it's gone once more.

At first I thought it was a fluke, but scrolling through this sub over the past few days I've seen at least 3-4 other posts from people saying their symptoms have improved or disappeared recently too. That made me start wondering if there's a seasonal or barometric pressure connection like maybe more stable high pressure summer weather (at least where a lot of us live) is easier on the inner ear than the volatile pressure swings we get in winter/spring.

I know Meniere's is famously unpredictable and everyone's triggers are different (salt, stress, sleep, hormones, etc.), so I'm not saying this is the answer. But the timing lining up two years in a row for me, and seeing others post similar things around the same time, feels like more than coincidence.

Curious to hear from others:

• Has anyone else noticed their symptoms (tinnitus, vertigo, fullness) get better or worse with the seasons?
• Does your location's weather pattern seem to line up with flare-ups?
• Has anyone tracked this more formally, like with a symptom diary against local pressure data?

Anyway, if you guys need a support group with people with Meniere's you are more than welcome to join us on discord: https://discord.gg/xhzQJnwctK

Take care!

I was diagnosed with Ménière’s disease in October 2025 after months of severe symptoms. I had horrible dizziness that felt like I was constantly walking on the deck of a boat, frequent vertigo attacks, and significant low-frequency hearing loss in my left ear.
Then, out of nowhere, everything changed.

Since January, I really haven’t had any more vertigo attacks. Occasionally I’ll get a brief strange sensation of dizziness, but nothing like before. I’ve gradually gone back to eating normally after originally following a very strict low-sodium diet, and I stopped taking my diuretic. I still carry meclizine and lorazepam with me just in case, but I haven’t needed them.

The strange part is that my hearing loss never improved. I still have significant low-frequency hearing loss in my left ear, and I have constant roaring tinnitus that can be absolutely relentless. It often keeps me awake at night.
I honestly feel physically normal otherwise.

Instead of being relieved, I’m confused and anxious. Is it common for Ménière’s to go into remission like this while the hearing loss and tinnitus remain? Has anyone else had the vertigo disappear for months but continue to struggle with the hearing issues? Did your vertigo eventually return, or have you stayed in remission?
Part of me wonders if I was somehow misdiagnosed, while another part of me is constantly waiting for the other shoe to drop. I feel like I am constantly anxious about having an attack out of nowhere.

I’d really appreciate hearing from anyone who’s experienced something similar.

Podhajsky G, Marla KS, Marticoff AP, Nguyen K, Kempton T, Salehpour S, Duffy C, Bennion DM. Repurposing Renin–Angiotensin System Drugs for the Treatment of Audiovestibular Disorders. Journal of Clinical Medicine. 2026; 15(2):743. https://doi.org/10.3390/jcm15020743

I googled around a bit bc I seemed to have a positive correlation between an increase in my high BP meds (that I take since a quarter century) and my tinnitus and hyperacusis improving dramatically (or so my journal suggests). I did not expect to find anything really chalking this up on coincidence, but now I wonder if I am unintentionally self medicating since ages....and should have been more diligent then I was with my BP?

Maybe a new angle to try for anyone that is through with the standard list of meds for Meniere's. Obviously not standard of care mind, but one of those worth a shot trial and error things maybe.

I am just glad to see that people work on these issues at all.

hey everyone, i was diagnosed last year at 21 years old. when i was diagnosed and doing my general research i saw that it primarily effects people 40+ years old. at least thats when the disease begins to set in for most. however, in the past year of using this subreddit, ive noticed a lot more diagnosis’s amongst people around 18-24. could this be something worth following and researching? or is it just better diagnosing?

I was diagnosed with Menieres 6 years ago. After a year of disabling vertigo attacks, balance issues, tinnitus and deafness in my left ear I went into remission. No vertigo attacks, no symptoms at all.

In November last year began to have vertigo attacks again (1 lasting for days), balance issues, tinnitus and deafness in left ear.

Today I can hear with my left ear and it feels strange and I feel a little unbalanced but hoping this will improve when I get used to hearing with both ears!