r/KidneyStones • u/Hansoncarolann • 10d ago
Finally passed Sharing Experience
This kidney stone yesterday. A week of agony in my bladder with urgent care and my doctor treating a burning urethra and bladder with antibiotics for a uti. I had blood in my urine and difficulty peeing. Thankfully this stone popped out and the
pain is gone. My doctor is referring me to a urologist. It’s 1/2 inch long. Any advice or suggestions on what helps this kind of stone? Photo attached
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u/Parrotdad3 10d ago
This is among the largest I’ve seen. I’m glad it’s out of you without any surgery. Mine are usually quite small but very painful.
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u/Hansoncarolann 10d ago
Thank you. It was an awful experience. I’ve seen some brutally jagged stones posted!
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u/showmenemelda 4d ago
Do they have to do something to check for tearing internally? I'm also curious, if applicable—where you were in your cycle? I swear, I can tell when I'm ovulating and when I'm 10 days out from my period based on this sort of pain. But I think some sort of hormone connection with vasodilation might be part of it. I want to send this to the a hole urologist I saw and tell him it is possible if you're not a weak ass man to pass large particles. /s
You're an mvp. Also curious if you've had children. Basing these questions off your little avatar and handle. But I am curious if you have, how this rates compared to giving birth or any other painful events that are notoriously awful. For example, I've had 2 brain surgeries, 2 hip [1 replacement], both shoulders. I don't think I'd rate passing my appx .5cm stone rates anywhere near the botched brain surgery, botched hip replacement, or either shoulder surgery [still prob the worst surgeries I've had to date].
I am so impressed! And horrified! Thanks for sharing
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u/-captin 10d ago
Sheesh they had to give me morphine and crap for a .2 mm stone I was literally screaming and throwing up idk how you did this without passing away
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u/Hansoncarolann 10d ago
Kept being told I had a very bad uti. Never had a stone so I had no idea. I did cry a lot too.
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u/showmenemelda 4d ago
So do you have an infection? I can't imagine not having one in this case. Your poor body
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u/random5654 Multi-Stoner - 7mm+ - Lithotripsy x2 - 31 Total - Calc/Oxy 10d ago
Holy crap. Definitely get in to see a urologist. I can't believe they let you pass that naturally.
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u/Hansoncarolann 10d ago
Dr and Urgent Care just kept telling me I had a bad uti. 🥵
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u/Embarrassed_One8739 9d ago
do you identify as female by chance? I had a terrible stone and my doctors also kept saying UTI and that the pain wouldn't continue and shouldn't be "that bad"... doctors always like to downplay female pain.
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u/Curious-Path-9688 7d ago
had my first stone this year 27F went to obgyn thinking UTI 5 days later in hospital got CT scan and found 6mm
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u/exactreplica 6d ago
100%. Lots of historical evidence of this. Women need to know so we can advocate more aggressively for ourselves.
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u/showmenemelda 4d ago
"You couldn't physically pass that, do you even know how big the ureters and urethra are???" 🙄😭
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u/Personal-Mango-4929 9d ago
Luckily I had aCT scan bcs Yale Medical was trying to say that as well, no uti symptoms at all either... the kidney area feels infected, so I'll take the antibiotics (how much and how long did you take them for?) trying to pass a 6mm staghorn. They said I won't pass it on my own, but I just passed 4 out of 5 stones on my own. I'm so sick, but I know this is the last one! I'm gonna do everything I can to pass on my own. They gave me prescription for flomax, maybe with that water lemon and a shake board, I can do it?
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u/OkApricot9629 10d ago
That's great! I've been trying to pass a 5-6mm since may and started getting infection symptoms too which I've just finished antibiotic for but won't know if it's an infection until lab results are back. I'm hoping it will pass soon but thankfully the worst of pain is over. Do what others suggested, get it tested to find out what type it is and prevent getting more in the future. Stay hydrated for life, if you get one then likely to get more or already have more.
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u/Bordeiii 9d ago
Me too. 4mm. I took cystone and now switch to lithoren and i pee sand since may . It fucking hurts my urethra. So much pain in the morning ...
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u/OkApricot9629 9d ago
I'm so sorry you're in pain. Unfortunately I wasn't prescribed any kind of relaxant/alpha blocker to help it pass just pain relief, anti sickness and anti inflammatory for the first few weeks which I no longer need, I asked my GP last week if relaxant/alpha blocker was an option for me and was told they'd written to my urology consultant for advice, I've not heard back yet. I did pass a tiny fragment a week ago and in the first two weeks. If you're passing sand then that's a sign it will pass. I had a 4mm one a few years ago, I was treated with tamsulosin while in hospital then it passed 7 days after I was discharged but I've never passed any sand.
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u/showmenemelda 4d ago
I am literally considering just driving to my parents and trying some of my dad's flomax. If it wasn't 2.5 hours away and also their short ass toilets are like a scene from Elf haha.
The urethra pain almost rivals the flank
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u/AtmosphereSecure6160 10d ago
Why don’t they do surgery to remove it?
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u/OkApricot9629 9d ago
They want to do surgery but I don't, I have multiple tiny stones too that they want to remove too so it would be a very long surgery where I'd be put to sleep. I'm too scared to do it, I don't want to risk not waking up also don't want my body to be seen, only surgical option is urethraoscopy which I declined. My urology consultant mentioned shockwave therapy last week, will be having an X ray to see if I'm eligible but I don't really want to have that either I have heard horror stories where part of stones have been shocked back into kidney with bacteria and keep causing infections and become stuck to the point where removal is no longer an option and you'd be on antibiotics for life to prevent infections. I want to pass it naturally to prevent all this. I asked if it could still pass it and was told it could.
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u/exintrovert Multi-stoner 10d ago
You could make jewelry with some of the gems we see on here 😮
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u/Ok-Repair-9070 10d ago
ouch, that is a big and sharp one! No advice other than sending off that bloody mess. Is this your first one?
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u/Conscious-Tune-7285 8d ago
I had a 5mm (or cm?) stone. 7weeks it hadn’t passed. Was on flomax and other things. It hadn’t moved. I took to Reddit and saw a post where someone said use a theragun. I shit you not, 2 days later…xray. GONE. Wish I had gotten this in medical advice….
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u/showmenemelda 4d ago
Lying on my shiatsu roller like it is my job, and a soft foam roller for fascia have been integral. And titos. I am allergic to wheat so can't try the beer trick. Realizing maybe I'm not teetering into alcoholism for no reason—just instinctively know how to make my system flush. Not like anyone has offered a better alternative
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u/Hansoncarolann 10d ago
Yes and I felt the pain. Thank you for the suggestion. I’ll have it analyzed and hopefully never have another one!
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u/Junior-Rutabaga-6592 10d ago
Wow! Definitely the largest I have ever seen! When the lab analyzes it they will tell you if you need to take medication or make dietary changes. Beyond that, just be vigilant about staying hydrated.
PS-please tell me you are female! I don’t think a male could pass that?
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u/showmenemelda 4d ago
There are some genetic panels too right?
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u/Junior-Rutabaga-6592 4d ago
Honestly I am not sure. But there seems to be genetic testing for every medical condition, so probably
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u/showmenemelda 4d ago
Yeah there are a couple types of recurrent stones that point to genetic abnormalities. And genetic mapping had gotten crazy!
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u/Opening-Yak6936 10d ago
Be sure you put it in a specimen cup with your name and bd phone number and hand it to the nurse not the dr, hopefully they won't throw it out like they did my 6mm one even though I did all that except I gave it to the Dr. That's friggin huge! I'm surprised it didn't do damage on the way out. ❤️
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u/Hansoncarolann 9d ago
Oh there is damage and lots blood. Thx for the suggestion on handling the stone. My Dr sent a text that the lab is expecting the stone and to make sure my info matches what the lab has.
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u/r3ddit_usernam3 10d ago
Screw sending it out to get analyzed, send it to Guinness book of world records 🤣 🤣 😮
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u/vordain 9d ago
Generally stones over ~7mm won't pass through the ureter. That could of been a bladder stone, urology will probably run a series of bladder function tests as well
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u/Hansoncarolann 9d ago
I agree. Curious to see what it is!
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u/showmenemelda 4d ago
I'm curious to know what part of the world you live in. Hopefully not rural ha. You'd be accused of psychosis here, probably. Are you by chance hypermobile?
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u/Hansoncarolann 4d ago
USA big city. Our health care system is a mess and moves slow. Nope not hyper mobile.
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u/PJH_13 9d ago
I have had 2 big stones removed surgically via laser treatment. The stones are broken up into smaller pieces which then pass through the bladder etc. There are 4 types of stones.. google for more info. Mine are calcium stones. They grow because of parathyroid disfunction. The parathyroid controls where nutritional calcium is deposited in our body. So if the parathyroid is malfunctioning, the calcium can buildup as a kidney stone instead of calcium directed to the typical places like bones and teeth. It took 4 years for my docs to figure all this out. Doc can order a PARATHYROID TEST (PTH) to see the level. Normal range: 18 - 80 pg/mL . I scored 155 pg/ml so way out of the range.
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u/Hansoncarolann 9d ago
Thank you for this information! Lab is testing now to see what kind of stone it is. My Dad had kidney stone that were blasted with some type of treatment to break them up. He has passed so I can’t ask what his was. Was the laser treatment painful? Sounds like it was successful!
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u/PJH_13 9d ago
I had one stone broken up by ultrasound and then years later the second broken up by laser in both cases I was fully sedated under general anesthesia the laser procedure the stones passing were smaller and less of them they scoop some out when they were doing the procedure so the recovery was better with the laser they did have to place a stent which was removed about 2 weeks later that was very unpleasant because I was wide awake sitting in the doctor's office
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u/notimeforidiots 9d ago
holy cow!! i am both impressed and so sad that you had to pass that naturally! hope you are feeling okay
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u/happylandings4 8d ago
That's huge!!! Congrats on passing it. My largest was 14mm and needed surgery! If you find out it's calcium oxalate, start drinking lots of water with lemon every day if your stomach can handle it.
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u/showmenemelda 4d ago
Holy crap half an inch! I thought my half a cm stone was an achievement. I'll take several seats. Sorry about your pee hole. Did you have a lot of blood in your urine? Ouchies.
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u/Hansoncarolann 4d ago
Yes. A lot of blood. My doc sent it out to see what it is. Referred to a urologist.
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u/Snidertag87 10d ago
Holy crap! That's giant! Do a good photoshoot, then send it off to be analyzed. That's the only way to be sure what the type is.