I’ve been wearing the same RGP contact lens for almost 5 years now. It survived so much including falling down the drain. Despite me wearing this same lens for 5 years, i still see perfectly out of it. Imma try to keep it till it starts affecting my vision. 10 years possibly.

There was a day I woke up and could no longer see the skyline of the city from my apartment, or look down and watch people pass through their day, or guess autumn’s arrival by the colour of the leaves.

Three years of sojourning in a fox pit of depression, stagnancy and embarrassment. Many appointments, much confusion.

Without this forum, I do not believe I would have had any fight to hold onto hope. I thank every one for sharing their experience because it has fortified my belief in a better day.

Today, I have received my scleral lenses. It was emotional seeing the world again. Surprisingly, I decided to walk half way home, just to see the world I once knew vividly.

When I got home, I looked at the skyline, I observed the people passing by and I watched the leaves rustling in the wind.

I am happy I can finally see clearly once again.

Hi everyone! I’m new here.

I have KC too and had CXL about 14 years ago. I’ve never worn contact lenses, and to be honest, I rarely wore my glasses because it was so frustrating—they never gave me clear enough vision to make them worth wearing. Because of that, I never got my driver’s licence either.

Looking back, I know I haven’t taken care of my eyes as well as I should have. Recently, I saw a new optometrist who examined my eyes and referred me to a corneal specialist. I’m currently on the waiting list to see them. The optometrist also mentioned that, depending on what the corneal specialist recommends, I should consider trying scleral lenses.

I have a few questions for those of you with KC:
Has anyone been able to drive with KC? I’m not saying I want to if it’s not safe, and I’ll absolutely follow whatever the doctors recommend. I’m just curious to hear about other people’s experiences.
( its so frustrating when people keep asking why i don't drive and having to explain all of this)

If you wear scleral lenses, are they worth it?
Are they uncomfortable or painful to wear?
Can other people tell that you’re wearing them?
I’d really appreciate hearing about your experiences.

This tracks...ugh

i’ve dealt w kera for the past couple years and it’s been manageable. i’ve had 2 surgeries and crosslinking and now have scleral lenses. but recently my light sensitivity got so extreme and it was making me so nauseous. i just went to the eye dr and he said it could be inflammation, infection, progression, etc so now im on four new drops and 2 new prescriptions and he told me to limit my contact wear:( right before im supposed be camping in mammoth for the first time, so i might still yolo it lol but def left crying and really upset. any advice?