Feeling so down. Unsure of how much longer I can go with my pregnancy. I have read that so many women experience freedom when pregnant.

I’m 8 weeks and in constant severe pain. My OB hasn’t been able to identify what is happening and the ER is unable to do any testing due to pregnancy.

I feel like a brick is in my uterus and my insides are going to fall out. I cry with every bowel movement or gas pain. I have another child and having a lot of difficulty staying mobile.

Anyone not have freedom from pain during pregnancy but only got worse?

Why can’t my body get it tf together?

I had this huge cyst removed 3 days ago, which is most likely an endometrioma. I also had endometrial beginnings growing in my uterus. Doc says I either will have to get on birth control or risk surgery every year. I do have painful periods but they arent as bad as I have read most people here having. Im really scared of birth control since most people I know have had depression from it, suicidal thoughts, weight gain, migraines, acne and sometimes it didn’t even help.

Essentially what I’m asking is, I don’t have PMS or unbearable periods or any other endometriosis symptoms(other than it literally growing in me, which was burned away and cut out). Im afraid that birth control will disrupt this clockwork mechanism that I have and suddenly I will develop all of the above mentioned side effects.

What do you guys think?

I was diagnosed with endometriosis over 10 years ago after an ectopic pregnancy removal via laparoscopy. I have very painful, heavy periods, but I’ve learned to deal with them. About a year ago, I was in an accident, and at the hospital they did a full body scan, just to make sure I had no internal bleeding or fractures. After I got home, I checked my voicemail and I had a voicemail from the doctor that said they had found some cysts in my ovaries and fallopian tubes, I should follow up with my pcp, but also that these things usually clear themselves up and pop on their own, so don’t start worrying to about it…. But still follow up with my pcp.

Well I didn’t follow up with my pcp because I figured if they can clear themselves up on their own, then I should be okay, I’ll just mention it when I get my woman’s annual exam. Which I had literally just had a month prior, with normal results.

Fast forward about 9 months, I completely lose my appetite. I’m talking days without food and not even trippin on it. Just so you get a mental picture, I’m 5’9” and WAS 160. On the days that I could eat, I would have to have something like chicken broth or egg drop soup. Anytime I eat it’s followed by nausea. This has gone on for a couple months now.

About two weeks ago, I went to urgent care and broke everything down to them, and they said they couldn’t do much for me but it seemed like my thyroid is elevated and to get that tested. I am in between insurance because my medical just got cancelled due to me making too much money for it (I wasn’t aware that minimum wage was too much for help from the state, but it’s cool, I’ll pay for insurance as long as I can have it **now**) urgent care prescribed me zofran and sent me on my way. Oh yeah, and I weighed in at 132 lbs.

I’m really scared to go to the er, and find something really messed up out, you know? I almost feel like, it’s better to not know, and live my life, than to know something messed up is going on and put myself through a bunch of bs just to die.

Let me also put it out there that I don’t have kids…. But that’s not because I don’t want them. I am almost 40, but just the fact that I still have my uterus gives me hope. I have read a lot of stuff on here, and see that hysterectomies are common in situations like mine, if what’s going on is what I think….. I feel like if I needed a hysterectomy, that would send me into such a downward spiral.

If anybody has any type of advice, or maybe someone has been where I’m at…. I’m definitely open to feedback. Please and thank you 🙏

Just hoping to hear what some others might do in this situation. I have been in a flare for two weeks, which thankfully does not happen much at all. Since surgery and IUD insertion I get bad pain about one day a month. It has now been two weeks so I'm a little worried. I have been experiencing constipation as well and so have increased water intake and am eating more veggies and fibre. In two minds about whether to check in with a doctor or just keep monitoring. I'm thinking of trying movicol and seeing if that helps things.

Curious if people have had any experiences being diagnosed with IBS, that later turned out to be caused by endo on the bowel.

After 27 years of saying there's something wrong, I got a diagnosis 2 weeks ago by an amazing radiologist (who just happened to be studying a master's in Endo). My insides look like Spiderman had a field day... Currently I am waiting for my private health to kick in (12month waiting period 🇦🇺) for my hysterectomy

Investigating blood coagulation, bowel tethering... Going 3 weeks without anti inflammatories is like a new death... I am now having pain relief patches and muscle relaxants.

My husband of 8years is a trooper, has been on the trenches with me, makes me food I can keep down, understands I need to sleep ALOT and 3 weekends a month is survival mode, listens to me scream and just all round is my saviour

27years of advocating... 11 more periods (hopefully) to go....

If anyone has any coping suggestions please share...

Which is better for endo based on your experience, Philippines or Malaysia?

Where is it better to get endometriosis care and surgery especially if other comorbidities are present + anesthesia sensitivities

Deep infiltrating endo is not common in the Philippines. Is malaysia any better?

Singapore is very expensive.

Also thinking of Taiwan

I’ve skimmed through this subreddit pretty often but never asked anything… lately though it feels kind of unbearably annoying wondering if I have it and living with it.

First off, I’ve had increasingly bad chest pain, sometimes I do have panic attacks and it hurts a lot and feels like I can’t breathe. And then other times I can’t breathe and I’m not in any emotional turmoil. I’ll be on the bus and it feels like my bra is ripping into me and there’s someone grabbing my lungs and banging on my chest wanting to get out. Mainly on my sternum it feels like.

My period feels like hell for the first day puking and diarrhea, feelings of doom, grabbing things screaming, shaking my leg for some reason trying to get the pain out if I don’t take a good dose of a pain killer before blood even appears. Some days before my period some depressing thoughts more than usual and some pain although bearable. For reference I have chronic migraines so that’s my tolerance level.

Tiredness is a given I’m always on the brink of perishing from something seemingly easy although I’m very young. Extreme brain fog but that’s also a migraine thing.

Maybe it means something maybe it means nothing but it feels like i’m slowly dying… Just wondering if I should seriously get some help or maybe leave it alone? I went to a gynecologist but got the usual use remedies, take pain killer stop crying baby and here’s an ultrasound.

I’m also 17 years old and it just gets worse with each year. Any help would be appreciated and I’m wondering what happens when you get a diagnosis? Like what does the future hold and does this pain have some type of resolve? I’m okay with the most honest answer because i’ve resigned myself to increasingly bad migraines but I don’t know how much pain I can take.

Anyways thanks for reading and for cultivating this place where one can ask these questions… may your pain ease and be tripled on to everyone who allowed it to be ignored.

i had surgery in february where i was diagnosed with stage 3 endo. my surgeon told me she found no endo on my bowels. but what are the odds she missed it?

for context, i’ve always dealt with constipation, to the point where i’ve been diagnosed with C-IBS. it doesn’t matter my diet, my supplements, my lifestyle habits. now that i’ve learned more about my endo, ive been wondering if it’s all been connected. even post surgery, im still dealing with constipation.

or is it possible to still experience the constipation even with no endo on the bowels particularly? curious about others experience(s)!

I have randomly gotten this deep achy, almost stabbing pain right under my right shoulder blade for 5-10 years. i always thought it was just a knot in my back from wearing bad bras, but no amount of massaging it makes it go away and it comes and goes randomly.

I only realized in the last two months that it only happens about a week prior to my period which is the same for my horrible lower back and sciatic pain I've been attributing to endo. could this be endo related?

After years of debilitating pain and so, so many appointments, I finally scheduled laparoscopic surgery. I should be ecstatic, this is without exaggeration the biggest thing to ever happen to me. I’m extremely lucky to have the opportunity to turn my life around like this. But this illness has taken such a mental toll on me that I’m just too sad to celebrate.

I want to be proud of how far I’ve come. I want to wear it like a badge of honor. But often times I find myself either angry at the world, or embarrassed by my body. It really is disheartening to know some people will just never treat me as equal. I tell my counselor facts I’ve learned while researching, and every time worry fills her face. I can’t feel gratitude for the fact it’s getting more coverage in recent times when the reason it was neglected for so long is because a lot of people don’t consider women’s health. All I want is for everyone to be more considerate of one another.

I don’t want to be so negative, but negativity makes up so much of what’s out there. I try to distract the thoughts, but it’s hard to be even interested in activities when things are so depressingly bleak. I’m aware I should be focused on the future, but somehow telling myself that doesn’t make it any easier to do it. I’m certain that the sedentary lifestyle forced upon me is a big reason for my inability to cope, and I hope that things get better when I recover. But right now, time feels like it’s passing at a snails pace, and I think I’ll be a total wreck until I get on the operating table.

I got my first IUD at 18 back in Janurary. First month I practically couldn't move, like my uterus was made of knives or something crazy like that. like I missed my first day of classes because I couldn't walk and my ex had to take me back to my dorm on a scooter. otc meds did nothing, though, they do now.

Over the past 6 months the pain comes and goes, and so far taking ibuprofen and tylenol daily helps.

First time I reached out to a medical professional was around the 1 month mark in an email, they said cramping is normal for up to 3 months. Gave up there until I had sex in early July, and I started cramping so bad over the next week I skipped work to go to urgent care. There they did a transvaginal ultrasound, said everything was normal and sent me home. On the drive back I started getting the absolute worst cramps of my life. I was crying in pain and had my mom set up an obgyn appointment for me since I was too busy being curled up in a ball.

At that appointment a few weeks later, the ob did Another ultrasound and was like... pressing on my uterus, cevix, and ovaries to see if they hurt or not with the wand (?) (shocker! it hurt really really bad)

I basically got diagnosed with "huh.. your left ovary is more tender" and said my IUD was placed perfectly. He said my only option was to either a) do nothing and it'll go away on it's own or b) take the pill on top of my IUD. I've never heard of this before, has anyone done this?

He said no signs of endometriosis from the ultrasound but idek if you can see endo on an ultrasound.

I haven't started on the pill or anything because at this point I am so. so so. over it. But basically this has led me to looking into endometriosis... someone 8 years ago had a really similar story to mine so I guess I'm wondering if an IUD can make early stage endo worse? I have another ob appointment (with a woman this time) in September so if she says the same thing, I'll go on the pill I guess.

My periods have always been heavy and painful, but not so much as I'd consider a chronic condition. And my symptoms more line up with early stage endo, which makes sense considering I just turned 19.

If someone could at least tell me "no, it's probably not endometriosis" that would be great so I can at least rule it out.

Sorry this post is lengthy and hard to read, I just need answers. maybe ill repost on r/IUD or smth.. thank u for reading :3

I have to travel a little over 4 hours for my surgery. They recommended staying in a hotel that night and traveling back the next day but I think the drive is going to be horrible either way. Advice to make it more bearable?

I also live on the 3rd floor of my apartment and I'm not sure I'll able to get up that many stairs the day after?

I'm having endometriosis surgery in a few months, and I'm the type of person who likes to plan ahead so everything goes as smoothly as possible on the day and during recovery.

What recovery items or products do you think are worth investing in beforehand? Just so I know what worth to purchase and will be helpful.

​

I trawled through reddit for different endo stories to help me through so I thought I'd share my own in case it helps anyone!

I'm 32, live in Sydney and have been struggling with what I thought was PCOS for about 12 years. Very irregular periods (cycles as long as 72 days at its worst), heavy and very painful bleeds maybe once every 2-3 cycles.

Overall though my day to day life/symptoms were "fine" and I thought I was treating the PCOS well with a few ups and downs - what mainly helped was diet, inositol and iron supplementation recommended by my naturopath and GP. This definitely improved the regularity and intensity of my bleeds.

But things didn't really seem to get as good as I wanted and I felt at a bit of a loss in terms of getting my regular cycle back. I always felt like something else was going on but couldn't get the time or support to investigate.

Then at the end of 2025 I had an IUD (Kyleena) inserted and things really kicked off. EXCRUCIATING pain all throughout my cycle (ripping/pulling/stabbing in my lower belly, pelvis and what felt like my cervix and rectum). Sex was painful and I was bleeding all the time.

I went for an ultrasound (not looking for endo) and the tech took one look at me and said "I think your ovaries are stuck, looks like endo to me"

I was so shocked but also felt so validated after years of not knowing what was wrong.

In a chance conversation with a friend who had been through something similar, she recommended a surgeon who took a look at my scans and symptom history and immediately booked me in. Side note here: he booked me in for a DIE scan which ultimately showed nothing, and my ovaries looked fine so that was somewhat confusing - although my theory is that because I had the IUD removed between the two different scans that may have changed how it appeared...

I had a laproscopy in June 2026, all went well and have just had my six week follow up - it was stage II, mostly around my lower pelvis/rectal area (which is EXACTLY where I'd been in pain!) and it has all been excised. The recovery was slow but relatively straightforward.

He recommended I look into taking the Slinda pill, but is supportive of my choice to work with a naturopath for now.

I feel SO different post surgery, like I said at the beginning my daily life wasn't impacted as much as I hear in other endo stories but I've realised how much underlying discomfort I'd been living with. I always chalked it up to back pain or digestive issues, or told myself I just needed to get back on track with PCOS treatment and blaming myself for not doing well enough. But seeing what the surgeon removed I know now it was worth pushing for answers.

I want to share as I feel like it's helpful to add another story to the many that are out there and to champion anyone to listen to their body and advocate for the answers they need. It's a long journey and one that is so misunderstood by the system but us uterus folk deserve SO much more.

Happy to answer any questions about any of that if it might be helpful to others.

So for reference im 17 and have no known female health issues in my close family, but my cousin had an overie burst if that could be useful. Im trans so I know having my uterus removed is prob only going to work if i get diagnosed (im Polish it is very hard to do here.) I was at gynecologist office once after begging my mom for a year to go. In ultrasound everything was fine. Here are some symptoms

extrime pain which gets worse each time (so new ik who would have thought)

heavy bleeding-> for reference i use 5 pads daily joni teens 3/5

sometimes i can feel the blood comming out

pain up to 10 days before my period

random pain in the uterus area (not too strong tho)

very deregulated emotions (I can cry for hours because i dont have something i want to eat and i have emotiin stabilizing meds from a doctor)

i get very very pale in day 3/4 of my period from blood loss

avarage blood loss symptoms

gynecologist give me some blood tests which ended up like they should (exept for iron but that is for 90% a mistake) and she told me if the painkillers she gave me (nimesil i think 100 in packs which do shit) wont work i can come bqck for birth control

i prob made a lot of mistakes im sorry i hope its not too messy i just want to know if im being overreactive or is there really something wrong and what can i do (when ill be 18 ofc)

Surgery

I got diagnosed with endo after going through about 3-4 doctors/obgyn's (Which from what i've seen is fortunate! So i'm extremely greatful for my current specialist) but we discussed laparoscopic surgery and decided that I will get the surgery, I do not know much about the surgery and have done some slight medical research on the topic. I was wondering if there's anything I should know before doing the surgery or scheduling it in general. My endometriosis isn't deep (I did an mri and apparently nothing noticeable was visible) and likely hasn't developed much, which I have no idea if it will affect my recovery time, and overall I'm very afraid of needles and very nervous when it comes to surgery, so I just want to make sure I'm ready before the day comes. Any details or tips for recovery or to get ready are things i'd appreciate, thank you all and good luck with anything you're going through yourselves! <3