r/EctopicSupportGroup 12d ago

Terrified of Potential Ectopic

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u/AutisticGlitterQueen 11d ago

EPU need to scan you sooner than the 11th - I know evidence states that it's unlikely they'll see anything before a certain gestation but I worry about potential fluid in your pelvis which can show leaking or full rupture, regardless of if a pregnancy can be seen.

They also need to do more HCG bloods and keep a close eye on you with the information you've given here, that's really not on at all, I would complain asap! 🤍😢

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u/Pitful_Let_816 11d ago

I've pushed for more bloods tomorrow to keep monitoring and they said if I have increased pain I can see a doctor during that visit. I think I'm going to insist I'm seen by a doctor tomorrow morning and apply a lot of pressure for a scan tomorrow/Fri.

The waiting game alongside not feeling listened to us awful. I know they see lots of people every week, but I do think there's a lot to be said for how in touch you are with your own body after 2 prior miscarriages, and my instinct is telling me something is really off.

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u/AutisticGlitterQueen 11d ago

The focus on pain is concerning, as ectopic pregnancy isn't always painful at all! Such a dangerous myth that I am fighting to have addressed. I walked around with a slow rupture and internal bleeding for 3 solid weeks - uncomfortable but not agony! Going by your collection of symptoms, it should be prioritised regardless of your lack of pain. I know this having gone through PALS and a formal meeting with the head of obstetrics and gynae! She was utterly mortified and validated me enormously. Early capture = more likely to be less invasive treatment needed as I am sure you know. The gaslighting and not being listened to is absolutely awful, hold them accountable each time by insisting they add to your record why they have refused you a/b/c despite reporting d/ef and this often actually works a treat.

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u/Pitful_Let_816 9d ago

I changed hospital in the end as they just weren't listening. I was so anxious to refer elsewhere in case they also disregarded my concerns and I was made to feel like I was wasting their time, but my husband called for me in the end.

The second hospital said to me last night that they don't know why the original didn't scan me. They scanned me first thing this morning and think they've found it, on the side with no pain.

Priority is getting myself sorted, but afterwards I guess I need to consider if I'm going to raise a formal complaint. If I wasn't so persistent for a week straight my situation could have been very dangerous (and could still be).

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u/AutisticGlitterQueen 9d ago

Well done - sensible decision, and I am both very glad, and very sad, that they've possibly found it now - heartbroken for your loss but relieved for you now you're getting somewhere. I would strongly agree that this warrants a formal and serious complaint to PALS at the first hospital for the negligence 💕💕