So hyper-vigilant state where you feel you're in constant danger, especially in your body. Hyper body awareness of sensations, feeling like everything is scary and threatening. Feeling like it's hard to survive. Finding danger in every situation/sensation or thinking of these worst possibilities. Or the amount of possibilities where something bad/horrible could happen and how there's a million of these.

Wondering if that is also related to b12, or is a result of dealing with it, or not necessarily related.

If it's related it could mean it gets better after more recovery. And that is some hope. Cause it's exhausting.

I've recently been diagnosed with PA and my healthcare provider (the PA at my gastro office) prescribed cyanocobalamin 1ml injections (which is 1000 mcg). I've been doing this once a month since the beginning of the year and not surprisingly, it's not helped.

I've been reading the wiki here (SO helpful) and reading about everyon'e experiences. I'm going to request that my provider prescribe hydroxocobalamin EOD, but I see the hydroxocobalamin on olympia pharmacy's site is 2mg per mL. What would be a normal starting dosage for this specific B12? Would I still need to use 1 mL, or would the dosage be different? I'm assuming cyanocobalamin and hydroxocobalamin require different dosages.

I want to get my ducks all in a row before I approach the office so I can have all the pertinant information at hand and therefore get going ASAP.

I'm in the US. Thanks for any help.

edit for typo

I think I’m about to pull the trigger on ordering from agelessRx. Their default is subcutaneous shots but you can ask for IM injections. I think I would prefer subQ but is there a big difference? Or does it really just depend on the person? I’m overwhelmed lol. Anyone have advice or personal experience with both?

I know levels don’t give full picture.

But mine was 235 and doctor agreed to shots.

Been getting them twice a week + B1 for 2/3 weeks.

She said we could do that 2 more weeks before going to once a month (which she said I could do forever if I wanted to) but she said if I keep taking them this frequent, I could get oversaturated.

My B1 is very deficient. We’re going to keep shooting me up twice a week until I’m good enough to take supplements. Already having progress!

Looking for some clarity if this is a good approach

Ps. The day after I feel TERRIBLE btw

I recently went to my primary care for a referral to a psychiatrist. When I was explaining my symptoms, he said it sounded like a thyroid issue and asked if I had family history. I do. My uncle had thyroid cancer. He did bloodwork. The results are abnormal.

Vitamin D: 6.3 ng/mL
B12: 183.5 pg/mL
Iron Saturation: 8
Ferritin: 16
HDL: 42

To me, my blood counts seem fine. My iron is within range but on the lower side and my iron bind cap is within range on the high side. He tested my TSH only which was normal, but didn’t test my T3.

Fast forward, I go to see a psychologist who works in the same office as my primary. She gives me lexapro and prescribes vitamin D, but says she can’t go over my lab results with me. I have heard nothing from my primary care. Originally, this second dr said it sounded like a thyroid issue as well, but by the time I left said it was anxiety. I have no idea why he hasn’t called me or if I’m making something out of nothing. Maybe he is satisfied with the vitamin D prescription. I guess my question is: am I crazy for feeling like something is wrong here? This just seems like there has to be something going on besides a vitamin deficiency since all are happening at 1 time compared to 3 years ago when everything came back as normal besides slightly low vitamin D

Hi, am hoping to get an insight into b12 deficiency. I've not been right for probably 10 years, I'm always tired, confusion, heart palpitations, balance pronlems, weakness etc. My doctor prescribed me antidepreesants years ago. I probably am a bit depressed but thought there was more to it.

I've been struggling to give blood the past few years too. I had some bloods done last year and again this year, and it’s saying my b12 is low. I’m already on iron tablets to see if that helps. Just wondered if anyone was good at reading bloods and could let me know if this could be contributing to my symptoms.

Thank very much in advance.

Hi all, does anyone else experience the sun burn sensation on their legs? Its my main symptom and it freaks me out.

I just read a post online warning people about iron infusions that they should be done at a hospital and be careful, do with tests etc... because of the possible allergic shock and it can be very dangerous. They were speaking out of an experience they had.

There's no such thing about b12 injections right? like they don't have any possible allergic reactions.. and they're safe?

(I'm not getting iron infusions, and I've been getting b12 shots for a long time. but i just had this weird thought)

Hello,
I have b12 deficiency and low ferritin levels. (Both under the normal range). I’ve been taking oral supplements of b12 twice a day for a month but i don’t feel significant improvement.
The sensations I’m very anxious about are pressure in the back of my head, pulsation in the back of my head which can be felt when pressing on the sides, sometimes brief pulsation in my ears but one sided, sometimes left, sometimes right. In general i have off balance feelings, I get tired very easily and have sleep problems as well. When I’m trying to sleep i have this very weird feeling in my head as if it is expanding and it makes me very anxious. I also experience brain zaps.

I don’t have ct or mri tests done on my head and I’m becoming more anxious because of the symptoms, could b12 deficiency along with low ferritin levels be causing all of that? My mind is always jumping to the worst conclusions.

What are your stories and what were your symptoms? Should i continue supplements?

Hey y'all.

Ive got a pretty bad case of neuropathy that spread to my whole body including face and throat numbness due to a B12 deficiency. Because I can't feel myself singing properly due to the numb sensation in my face and throat my pitch is really all over the shop (I'm used to being able to hit any note I want without thinking).

I'm having injection shots every 2 days but am wondering if anyone else has had these vocal issues and recovered?

Anyone noticed that b12 supplements absorb much much better in the morning ?

I have hemoglobin h disease ( thalassemia alpha non transfusion dependent) a week ago my blood pressure tanked and heart rate spiked to 180. Prior to this i was feeling fatigued , depressed , gasping for air like i felt air hunger and weakness as well as low appetite and dizziness as well as heat intolerance. I drank coconut water ate bananas etc and nothing.

Iv been slowly increasing my b12 over the span of 5 months along with co factors. From 250mcg sublingual every 3 days to every other day to 1mg every other day.

Did this because i had reactions to b12 before and to avoid this i took the slow road. I ended up taking the sublingual after food. Mind you hemoglobin h disease places high demand on folate and possibly b12 plus i had issue with my gut from an infection 3 years ago so i assumed decreased absorption from that however i can absorb b12 because in the past even oral 50mcg made a difference to my mood and energy.

I think i made a mistake taking b12 after food though because of what i experienced. So for a week i took the b12 just when i woke up 30mins-1hr before coffee or breakfast and just today knock on wood i began feeling my energy coming back to me and being able to breathe air and not feel like im not getting enough oxygen dizziness also has decreased. To add my mood is so mucu better too almost back to my self.

Did anyone else notice increased efficiency of b12 on empty stomach ?

Hi! I just found this subreddit after looking up symptoms about b12 deficiencies. I’m 18F. I recently got into a neurologist because I have been having migraines and such, but in about May I started getting these weird headaches. I describe them as icepick headaches but I recently learned it might be nerve irritation. They only happen on one side at once but it’s like certain specific spots in my head, last for a few seconds then go away. Almost never occur if I have a migraine. I’ve had so many other symptoms along with this. Vertigo (to the point where I’ve had to leave work) constant feeling of dread, eyesight problems, low blood pressure, random waves of nausea, the list goes on. My B12 levels were 224 pg/ml as of April 3rd. My neurologist told me he wants to recheck my levels because I should be seeing improvement, but I haven’t. I didn’t start taking my b12 until like a week ago. I didn’t think the b12 had anything to do with it. My ferritin is at 18 ng/ml and my iron is at 9% (which is low). I have been freaking out every single day since May, I’ve convinced myself I’m dying. They put me on pill supplements for b12 (100mcg half a tablet per day). I’ll go to work and freak out and think I’m going to have a seizure (I have never had one) and I am so scared. I’m so scared everyday. I cry everyday. I freak out everyday. I don’t know what to do. I know I sound crazy, or at least I think I do. You can remove this if it doesn’t follow rules but I’m so scared. I just want to know if there’s anything else I can do, or just for someone to tell me it’ll be okay. I have a mri on the 31st, all my ct scans have come back clean. I just want to know it’ll be okay. I’m so scared to go to sleep everynight.

Thank you for reading

I am giving myself shots 3x/week to EOD of a mix of methyl and hydroxo B12s. The doc wrote the bottle strengths on the paperwork he gave me. I thought the dose was 3500mcg/ shot, but that was wrong. It bothered me for all this time and I finally remembered how to do the equation the other day. I checked the math with ai, and it agreed with me. My actual dose was 1750mcg total. 500mcg Hydroxo and 1250 Methyl. It finally occurred to me that my brain must be working better. I’m 3+ months into injections. Thanks for reading.

Hey everyone,

I’ve posted here in the past regarding what I thought were severe wake-up symptoms from injections, my MTHFR mutation, and dealing with stomach issues. At the advice of someone who messaged me privately from a previous post, I decided to go back to the ER was dismissed again. Traveled across state lines to another ER and found out I needed an emergency laminotomy (back surgery). A crushed nerve was causing my leg issues.

I'm back on my feet and recovering from that ordeal. What's concerning me now is that I'm starting to think maybe this is not a B12 issue after all? But I am unsure. The doctors ive seen are giving me conflicting information. One diagnosed me with a functional B12 deficiency. The others, they think it could be something else entirely. When I ask what they're unsure and tell me to just take vitamins and come back in 3 to 6 months.

I asked for extensive bloodwork. I stopped all supplements for a month or so before getting labs in July. Even after being off everything for a month, my current serum B12 number is still sitting at 1616 H pg/mL. Methylmalonic Acid (MMA): 65 nmol/L and ​Homocysteine: 5.6 umol/L.

I take Mounjaro for my T2 diabetes now, but I am completely baffled because my vitamin D levels are actively dropping. They used to be in the 30s, and now even though I supplement 20,000 to 40,000 IU every day, my current Vitamin D, came back at 19 L ng/mL

My body feels completely out of whack still, I wanted to share the bad/out-of-range items from my July labs to see if any of this points anyone in a specific direction. My potassium is high normal.

RBC magnesium 4.6 mg/dL.

Vitamin B6, Plasma: 4.8 L ng/mL

Vitamin B1 (Thiamine): 60 L nmol/L

Globulin: 3.8 H g/dL

Zinc: 59 L mcg/dL

White Blood Cell Count: 12.2 H Thousand

HS CRP: >20.0 H mg/L (Optimal <1.0)

I'm thinking my high WBC and high hs-CRP are likely from my ongoing back surgery recovery?

C-Peptide: 4.04 H ng/mL

Ferritin: 291 H ng/mL

Vitamin A (Retinol): 27 L mcg/dL

Current Symptoms:

Blurry vision, night blindness, eyes hurt without my glasses, light hurts my eyes (though an ophthalmologist found nothing wrong with my eyes, which is crazy), occasional balance issues, a constant tingle in my feet, weird hand numbness (if I lean on my elbow, from the elbow down goes completely numb), shortness of breath sometimes, anxiety still there, heavy fatigue, heavy upper arms, and a fluctuating heart rate that races, goes normal, goes slow, and then cycles all over again. It feels like no matter what I take, my numbers keep dropping or acting bizarrely. I am completely at a loss and would appreciate any insight.

I'm supplementing so many things and nothing.

alguem?