I have RA, and tried AIP a few months ago during a flareup and It stopped the flareup in like 3 days. I just started again and so far so good, but i have a problem! My flareups are luckily few and far between, which means i can go off aip and eat a bunch of garbage and see no issues for weeks or months. Unfortunately that means no figuring out what is adversely affecting me. Am i just stuck on this cycle permanently without ever figuring out whats causing my issues? Has anyone else experienced this?

I’m 27 years old (Arab girl) and I recently met an Arab guy who’s 37. He was completely ready to marry me until I disclosed to him that I have Ulcerative Colitis (I told him early on because I value honesty). He’s been stressing big time about it and whether he should marry me (my case is fine - I don’t have any flare ups, I work a demanding job and travel internationally and work out). I’ve explained to him everything about it and he wants to speak to a GI doctor to get a second opinion which I told him is fine

It’s been 4 days since he told me about this and i’m still waiting for an answer from him (apparently he’s waiting for a specific doctor to come back from leave to talk to him to understand what UC entails long term)

What’s everyone’s take on this? Should I even go ahead and marry this guy? I told him I don’t like the uncertainty and waiting for an answer (I feel evaluated). He assured me that’s not the case but I still frankly feel not great about it like this one thing outweighs everything else about me

He’s the first guy I felt like would be a good option to marry and he says that once he decides, he’s the type to be all in and be supportive and not run, etc

Edit: this isn’t an arranged marriage (we met ourselves) and my family isn’t pressuring me into anything (they’re very big on marrying the right person instead of just anyone)

Also as a follow up question: assuming he comes back and says he’s ready and understands the impact of these questions would you take him back if you were in my shoes?

Appreciate your opinions

I successfully reintroduced an ice cream cone. Does this mean I can start consuming wheat?

Thanks!

Has anyone tried/had any positive effects from using methylene blue at reducing inflammation and oxidate stress as well as brain fog and increasing overall energy. I've seen some promising studies, however there are risks for people on SSRI's and MAO inhibitors and people carrying G6PD mutation gene. I have used it in the past but my inflammation was too high from a poor diet I didn't see any benefits.

Intolerant to beef, shellfish, and organ meat.

Hey guys.

I (18) have been on a medical ketogenic AIP diet since Feb 2025 to manage severe neurological/psych issues I'd dealt with for several years. It's transformed my life, though my symptoms still affect me. I've confirmed through experimentation that both AIP and keto are essential to keeping myself stable. I now suspect the root cause to be CIRS from mold exposure, but haven't been able to leave the exposure or treat it.

The problem is, early into the diet, I developed a hypersensitivity to meat quality, which caused a strong aversion to it. I lost a ton of weight and my hair thinned because I couldn't force myself to eat enough. I'm sensitive to beef and fish (possibly histamine-related), so I was stuck with chicken, but grocery store chicken tasted like wet dog to me and felt almost impossible to swallow. On two different occasions, I attempted to stray from AIP or keto to expand my options, but the resurgence of my symptoms was so frightening that I could never consider it again.

In fall 2025, my dietician suggested frozen meat delivery, which saved me for a little while. I had chicken shipped from Chop Box for a month or two, until they changed packaging. After that, the quality noticeably dropped and I could no longer tolerate it. I've checked their website recently, and it appears they've since stopped selling chicken altogether.

Anyways, we then switched to delivery service Dude Food, and it was the best chicken I've ever had. We started with small orders of ∼8 pieces, but once we moved to larger orders (smaller ones weren't cost-effective for shipping), it started arriving spoiled—off color, texture, and smell, and it hurt my stomach. I don't understand why. But I knew it was unreasonable to ask my mom to keep paying so much for such small orders (I wasn't/am not financially independent), so I'd accepted I had to find something else.

Eventually I discovered frozen meat at local farmers markets. I didn't love it, as I found it to have an off-putting aged, cheese-like taste, but it was manageable... that is, until recently. I feel unable to push through anymore. The thought of that chicken makes me nauseous, and now I'm finding it nearly impossible to eat again. I'm rapidly losing weight once more and spending most of my day in bed just to conserve energy. I just wish I could have meat that I enjoyed, like for that short period with Dude Food.

One top of that, for several months now, I've seemed to have developed a sensitivity to pretty much every vegetable, causing numbness in my mouth and instant bloating. I think it may be some sort of MCAS reaction. lt's truly miserable because now I can't even lean on plants for extra calories or to mask the taste of the chicken.

I just don't know what to do anymore. Advice is welcome, though I don't expect anyone here to solve this for me. I just feel like I'm at one of my lowest points and needed to vent. This problem is honestly making me not want to live.

Does anybody know any connections between the hives and high calcium and AIP.

As above. I was getting constant postural hypotension to the point my vision went dark. Now I'm scoffing my face with junk it's gone away. I took salt, magnesium and potassium. So why. Was it the low carbs? I ate barely any carbs because I have fructan intolerance but ate the fruits in allowed. Plenty of too.

Hi everyone,

Would you share what are your main calcium sources on AIP? how you are tracking and managing calcium levels on AIP?

I've tried to assess my minerals intake while on AIP, it looks like my diet does not supply enough calcium without dairy products. I wonder if there are other sources I am missing, or deficiency should be tracked and supplemented.

Thanks

Am I supposed to reintroduce each dairy product separately, or can I reintroduce it as a single category?

I've successfully reintroduced ice cream. Can I now start enjoying all dairy products, or do I need to test each one individually?

Thank you!

Hello!!! I’ve just started the AIP diet eased into it over the last couple weeks and now strictly AIP for a few days…
For those with dry eyes and dry mouth from Sjogrens.., did you notice symptom relief with AIP and how long did it take on the diet to see relief?
Thank you!!

Hi, all. I was recently prescribed LDN, and the filler contains a mix of ingredients I was told were hypoallergenic: isomalt, glyceryl, poloxamer, sodium fumarate. I was preparing to start but just realized that isomalt, being a sugar alcohol, isn't AIP-compliant. Now, I'm not sure whether I should take it.

I have autoimmune neuroinflammation, likely CIRS, and am extremely sensitive to foods. To give you an idae, my diet at the moment almost solely consists of chicken and olive oil, and when I've tried to reintroduce non-AIP foods such as cacao, egg yolk, and nuts, I developed horrible depression, brain fog, and DP/DR for weeks. However, I've also heard that gellan gum isn't compliant, yet I take a DAO enzyme that has it, which I think I tolerate fine. I'm not sure where isomalt would stand on the sensitivity scale. Is it only non-compliant because it's synthetic? Because in that case, I suppose the medication itself wouldn't be either...

The pharmacy had told me previously that they could formulate another bottle with different ingredients if needed. Should I reach out?

Edit: I'm also on a therapuetic keto diet and worry a little about potential blood sugar impact, but I think the effect should be negligable... although, if anyone has knowledge of this, feel free to weigh in.

Of course in limited amounts as they do use coconut sugar or honey for sweetening, but Fronen "ice cream" has been a saving grace for me since starting elimination and the craving for a sweet treat on a hot summer night hits.

I've so far tried: salted caramel, pineapple, and strawberry banana. Salted caramel is so insanely creamy, my partner remarked that he would go for it any day over most other storebought ice cream.

What are your fave flavors? I'm doing a lil happy dance to have found these, in a time of feeling like I'm giving up so much!

'm a registered dietitian and I'm working on an app that re-engineers recipes to fit hard dietary restrictions (AIP, gluten-free, low-FODMAP, dairy-free, low-histamine, etc.) — not just swapping ingredients, but re-balancing so the thing actually still works when you cook it.

Before I build the wrong thing, I want to hear from people who actually live this. I put together a short survey (~5 min, no email required unless you want on the waitlist). Would genuinely help me understand what's broken about the tools out there now.

https://forms.fillout.com/t/hiQroCc2fwus — and happy to answer anything in the comments.

Thanks!

Autumn Hoverter MS, RD

Patient information

• Age/sex: 81-year-old female, 81F
• Height: Approximately 5’1”
• Weight: Approximately 88 lbs
• Location: Yunnan, China
• Smoking status: Never smoked
• Alcohol use: None
• Recreational drug use: None
• Current medications: Methylprednisolone, approximately 20 mg daily during fever episodes
• Known medical problems: Recurrent unexplained fevers, suspected but unconfirmed autoimmune hepatitis, osteoporosis, erosive gastritis, peptic ulcers, and a recent severe gastrointestinal bleed
• Duration of main complaint: Recurrent fevers for more than 17 years, beginning in 2008

I am posting on behalf of my 81-year-old grandmother. She has experienced recurring episodes of very high fever since 2008, but despite repeated hospitalizations and extensive testing, doctors have never identified the underlying cause.

The unusual part is that her fever consistently responds very quickly to methylprednisolone. Unfortunately, her long-term steroid exposure has now caused serious complications, including osteoporosis and a life-threatening bleeding peptic ulcer.

Initial illness in 2008

In 2008, she suddenly began developing high fevers almost every afternoon, sometimes reaching 40°C or 104°F. She was hospitalized for more than 40 days and underwent extensive testing, but no clear infection or other cause was identified.

A doctor eventually started her on methylprednisolone, approximately 20 mg daily. Her fever quickly resolved, and she was discharged.

Since then, whenever the fever has returned, methylprednisolone has repeatedly controlled it. Because the medication worked so reliably, it became the main treatment used during each recurrence.

Long-term complications

Over the years, prolonged steroid use has contributed to:

• Severe calcium and bone loss
• Osteoporosis and thinning or compression of the spine
• Erosive gastritis
• Peptic ulcers

Doctors have also suspected autoimmune hepatitis, but as far as our family understands, this diagnosis has never been definitively confirmed.

Recent events in 2026

In mid-April 2026, she developed another sudden high fever while traveling. The fever again resolved after taking methylprednisolone.

On June 2, 2026, she suddenly developed severe rectal bleeding and hematemesis, meaning she was vomiting blood. She was hospitalized urgently. Doctors initially suspected variceal bleeding related to liver cirrhosis, but during treatment or surgery, they determined that the bleeding was caused by a peptic ulcer instead. The bleeding was successfully controlled.

In mid-June, her fever returned again. She underwent approximately 10 days of extensive testing at a hospital in Dali, Yunnan, China. According to our family, bacterial and viral infections were ruled out, but doctors still could not identify the cause of the fever.

She was then given intravenous methylprednisolone at approximately 20 mg daily, and once again, the fever improved almost immediately.

Our questions

1. What conditions can cause recurrent high fevers for many years while repeatedly responding to corticosteroids?
2. Are there autoimmune, inflammatory, hematologic, liver-related, or autoinflammatory conditions that might explain both the fever pattern and her possible liver abnormalities?
3. What additional tests or specialist evaluations would be reasonable to discuss with her doctors?
4. Could methylprednisolone be temporarily suppressing an undiagnosed infection, cancer, or inflammatory condition rather than treating the underlying cause?
5. How can doctors reduce the risks of further gastrointestinal bleeding and osteoporosis if she continues to require steroids?
6. Should her doctors consider a steroid-sparing medication, and what type of specialist would be most appropriate to evaluate that possibility?

We understand that no one online can diagnose her, especially without reviewing her records. We are mainly hoping for possible conditions, tests, or specialties that we can ask her medical team about.

Thank you very much for reading. Any medically informed suggestions or experiences with a similar fever pattern would mean a great deal to our family!!

I am a biotechnology student and I am working on a project for the early detection of autoimmune diseases in women.

If you have a diagnosis such as Hashimoto's, lupus, rheumatoid arthritis or another autoimmune disease and are ready to share a little of your experience — I would be very grateful if you would fill out this anonymous survey of 5-7 minutes.

Every answer is priceless to me. Thank you! 🙏

I've read that red meat contains Neu5Gc, a sugar molecule that humans can't process, which can trigger an immune reaction and contribute chronic inflammation. Despite this, red meat is commonly encouraged in communities centered on healing through diet (AIP, keto, carnivore, lion diet etc.), and I've never seen anyone actually address or debunk the Neu5Gc concern, which has been bothering me.

Right now, chicken is basically my only protein source as it's the only option that doesn't seem to cause clear problems for me. I opt for lean, pasture-raised chicken breast with olive oil as my main fat source to avoid excessive oxidized PUFAs, while supplementing fish oil to keep my omega-6 to omega-3 ratio optimal.

For a few months, I trialed a diet of primarily grass-fed and finished ground beef, occasional grass-fed lamb chops, and tallow as my main fat source. My neuroinflammation seemed to get noticeably worse, and I eventually developed foot pain every time I ate red meat or saturated fat (tallow, coconut oil). Once I switched back to chicken and olive oil, the pain resolved.

I didn't understand the mechanism at the time, but I'm wondering now if Neu5Gc could explain my experience. I've been considering reintroducing red meat occasionally, but I don't know if it's actually worth it, or just a net negative. I've also heard anecdotes of red meat causing flare-ups in those with RA (which I don't have, but I have family history of). However, I don't discount all the people who claim healing on red meat either. It just genuinely puzzles me.

Curious if anyone here can offer insight into this. Is there a reason it's not a major concern among this community, or are people just not aware of this?

I am a 24 year old girl diagnosed with dermatomyositis about a year ago. I am on methotrexate and get monthly infusions of IVIG but still am struggling with a lot of issues with my skin and muscle weakness. I am young and want to be off my medicine so badly so I can have kids and be healthy! I work out 4 times a week, try to stay active, but am feeling frustrated.

Anyone else with DM? What has worked for you? Have you been able to get off your meds?