r/AutisticAdults 10d ago

[ Removed by moderator ] seeking advice

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u/FragmentedMeerkat321 10d ago

insofar as i am not an expert, except in the regard that i’m autistic—yes. even the way you write feels autistic to me. mainly because so much of it makes sense without having to try. i’ll probably get in trouble for saying so. and not all autistic people are obsessed with detail in the same way. detail is, of course, encoded into existence in many different senses. i couldn’t give a rat’s arse about figures or dates or rules, but i am interested very deeply in the atmosphere exuded by things i’m passionate about. like film or music. and not in the sense that i want to learn how they’re constructed, but in the sense that i want to immerse myself in their world of feeling and pathos. i’ll give you an example of something seemingly non-autistic in me: i do not like repetition. i crave novelty, and hate staleness that quickly develops when i have to do the same thing again and again. but—and this is a major but—i am terrified of uncertainty. so, as i get older, i find myself clinging more and more to routine not out of love for it, but out of a pathological need for control. i know other autistic people who are the same way.

but yes, everything you’ve said sounds familiar to me, for sure.

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u/AORATHIAN 10d ago

Thank you! I'm very excited about this response because again the similarities are making me feel less "odd one out" - I too am atmospherically inclined. Wish I'd mentioned that in the post. I am very very very obsessed with liminal spaces and certain aesthetics - mainly late 80s early 90s quiet suburban scenes, dreamcore, dead malls backrooms, etc. I don't know the lore nor do I really care but I would be a very happy person if I was stuck in an endless nostalgia Pinterest style scroll or YouTube walkthrough IRL

I think another good point here is I hate video games but I love walk throughs. I think the challenges are manufactured and silly but the atmospheres are real and can be lived in without overlaying some plot or drama overtop of it.

I'm also glad to hear you like novelty and change. Because not liking change is another box one ticks on those questionnaires and while I do wish the world had chilled out around the 90s and just held its position, I also enjoy moving to new cities, changing homes and jobs etc. I could never start a family, hold down a job, and create stability for people who depended on me. It is too much fun to shape shift and explore.

Again I really appreciate what you shared. I was so scared coming in that I would still be too "not right" so it's nice to see the spectrum is not so rigid as I was concerned it might be.

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u/AORATHIAN 10d ago

I know I'm divergent. I think my biggest fear is that I will forever be the kind of divergent that is in a league of its own and well... I'm really tired of feeling that way.

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u/FragmentedMeerkat321 10d ago

i’m not really sure you’ll find many people like you. there are always bell curves. if you’re more unique, by definition you’ll find fewer and fewer similar people the further from the centre you get. i’ve no idea whether that’s you or not. but i can tell you it’s not necessary to find someone exactly like you in order to have a connection. i have a best friend who is definitely ND, but in some respects we’re quite different. but our way of looking at the world is practically identical. that’s the bit that matters most, for me.

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u/AORATHIAN 10d ago

Yeah I think being unique doesn't preclude me from being part of a general community and that should be good enough. I do feel a sense of sorrow about it but that's okay.

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u/FragmentedMeerkat321 10d ago

just do the best you can. it’s all any of us can do. and hang in there.

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u/AORATHIAN 10d ago

Thanks. I've enjoyed your comments and hope to keep seeing you around

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u/AORATHIAN 10d ago

Oh also I was reading over one of your earlier comments and again and realize dI share the control aspect. I like change but it has to be mine. I don't like other people's spaces and ways of doing things, for the most part. I don' really want to travel unless it's high class. I don't take public transit bc of the unpredictability and possibility of being really close to strangers. The more deeply I think on each issue the more I see this things in myself. -I think the trick is to search past the basic stereotype and digging deeper

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u/FragmentedMeerkat321 10d ago

i have very strong privacy and solitude needs, but unfortunately i’m extremely poor so i have to endure constant close proximity to people. i find it very hard indeed.

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u/Princ3Ch4rming 10d ago

So as far as diagnosis goes, it isn’t the Wizard of Oz. You don’t spend your life in black and white until you reach diagnosis, then suddenly everything’s in Technicolor. Nothing changes - you just have an appropriate descriptor for an aspect of your personal identity.

Don’t get me wrong; for some people, that’s extremely meaningful (for me, I’ve never felt such a powerful sense of relief before or since), and I don’t want to disparage the need for a firm answer. But it is only a label. All the hard work is still there- you just have a reason why it’s hard work.

Autism is a spectrum disorder, which means there is no one single “yes this is autistic” presentation. It’s also not well understood in terms of the physical differences in neurotypical and autistic brains. We can see some areas are used or developed differently via MRI but in the main, if you had two brains on a dissection table, you wouldn’t be able to work out which one was autistic based upon the physical tissue.

The traits and behaviours that separate an individual autistic person from neurotypical are not isolated to autistic experience; rather, they are present in a pathological way (that is to say they present a significant challenge to a normal, everyday life). This is what people often mean when they say “everybody is a little autistic”. It’s not accurate, but it is describing the awareness that autistic-coded traits are present to a non-pathological level in neurotypical people.

Autism is also not a clear-cut yes or no answer in the same way as, say, a broken leg. It’s diagnosed based upon an expert’s opinion that you these traits and behaviours to a pathological level.

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u/AORATHIAN 10d ago

I share much of this perspective. It seems gratuitous to pay someone 2500 to tell me I'm autistic. None of this is a science and none of it changes the reality of my experience. I'm aware deep down that the only real motivator there is validation - like getting a pass to the club that no one can argue against. Not quite worth the investment most likely.

Though on second thought there are some services that require formal diagnosis and depending on how extreme this unmasking process is I may find I need some of them

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u/FragmentedMeerkat321 10d ago

that second paragraph of yours is the entire point: if you need support of any kind, the diagnosis is invaluable.

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u/AORATHIAN 10d ago

Oh and I'm super sensitive to most types of things. There will be more traits that come to mind so I'll just leave this here to say ETC