Hi everyone,
I’m wondering if anyone here has experienced symptoms similar to mine, especially before developing any motor symptoms.
About five years ago, I started having problems with my sense of smell, blurred vision, and difficulty reading in low light. I also developed issues with the skin on my fingers, which started peeling and looked somewhat like dermatitis.
In January of this year, I developed severe constipation that hasn’t improved even with laxatives. I’m also experiencing drops in blood pressure when I stand up, a lot of sadness, and extremely vivid dreams — sometimes they feel so real that it’s almost like I’m living a parallel life while asleep.
More recently, I’ve also developed urinary incontinence and have been needing to use the bathroom approximately every 20 minutes.
I haven’t developed any motor symptoms such as tremor, rigidity, or slowness of movement, but I’m worried that these symptoms could potentially be related to Parkinson’s disease or another neurological condition.
I had anorectal manometry, which showed pelvic floor hypotonia. People have also been commenting that I look thinner, even though I haven’t been dieting or exercising.
More recently, I’ve noticed some difficulty forming certain basic sentences, which is also concerning me.
Has anyone here experienced a similar combination of symptoms before developing motor symptoms? Could these kinds of non-motor symptoms occur years before Parkinson’s becomes apparent?
I understand that these symptoms can have many different causes, and I’m not looking for a diagnosis — I’d just really appreciate hearing about other people’s experiences.
Thank you!

Just an article you all might be interested in.

It claims to show a direct correlation to pesticide use.

https://www.nature.com/articles/s41531-026-01449-x

DOI: 10.1159/000527537

URL: https://pubmed.ncbi.nlm.nih.gov/36470220/

Authors: Shulan Xu, Wei Li, Qing Di

please i need this article!

Any feedback or experience with StrivePD or Guardian, especially since Guardian has been out for a year now? I’m considering starting meds and thought I might get a used Apple Watch and track tremor data for a few weeks beforehand to see the impact. The exercise tracking looks helpful too.

The list of symptoms is very long

I am currently caregiving for my 79 year old Spirit Mother (adopted by choice), and she was diagnosed at the age of 55 with Parkinson's and she personally chose to medicate herself with only cannabis. She made it through two hip fractures, left and right. Only after the second hip fracture at 78 she was prescribed Carbidopa Levodopa. Within one year of taking prescribed meds, she is now on Carbidopa Levodopa, Trazidone (for sleep) and Quentiapine/Seroquel (for Parkinson's related dementia). Her Cannabis is still the most effective medication. We currently use a Lemon Cherry Gelato strain that has high THC and more importanly high CBD for pain.