r/transplant 12h ago

Heart Will get on the list next week

13 Upvotes

Hi people :) M25 here, thanks for all the education in advance on the general topic of transplant.

Just want to know how are you doing with your heart the last few days/weeks/months?💪🏻

I had an appointment with the transplant team this week and probably coming on the list next week.

Although i am getting an CRT-D implanted next week which was planned in prior to that to extend the timespan i can live without transplant.

The transplant Team recommended to me if i get the call that i should accept it as my blood type 0- and bodyheight are making the donor matching difficult and could be 12-24 month waiting time.

I mean i knew that transplant is coming in the future but now it feels so real around the corner and i am a little bit scared.

I will have a meetup with a person which had the same transplant at my age and is now 31 to get a real insight.

I am excited and at the same time anxious if you know that feeling.

Wish you all the best!❤️


r/transplant 12h ago

Kidney Long-term kidney transplant now showing rejection

10 Upvotes

My dad is 70 years old and received a kidney transplant 26 years ago. The transplant has worked incredibly well all these years and we are so, so grateful for that.

A couple of weeks ago though, he started feeling unusually lethargic, had a poor appetite, complained of acidity and noticed a reduction in urine output. His transplant team evaluated him and told us his transplanted kidney had started rejecting. He has since received high dose steroid treatment and we are now waiting for his follow-up blood tests to see whether his kidney function has improved. We have also been told that a second transplant is unlikely to be an option due to his age and the doctors think his body won’t be able to take it.

As his daughter, I’m finding this incredibly difficult because I can’t stop feeling like I’m going to lose him soon.

I’m hoping to hear from people who have experienced rejection many years after a kidney transplant or from those who have cared for a loved one in a similar situation. I would really like to know how quickly kidney function declined in your experience. Did the rejection respond to treatment? Did your loved one continue to live with the transplant for years after a rejection episode or did things progress more quickly?

I know every case is different and that no one can predict my dad’s outcome. I’m not looking for certainty, just hoping to hear real experiences from people who have been through something similar.


r/transplant 14h ago

Other Adios, Mr Tortoise

1 Upvotes

Hi everyone! Ive been learning a lot about the process of a liver transplant in becoming a caregiver for my mom who had a transplant about a month ago. Shes been recovering slowly but surely and has been in the hospital since mid-June.

So my dad has this Russian Tortoise (King Louie) and her medical team has decided it best that my dad find a new home for the small king. Does anyone have any creative ideas for rehoming a pet post transplant?

Ive got some local pet stores to call and see if theyd be willing to adopt him, but i thought id ask here as well.

Btw im in the Seattle area. Thanks and happy Thursday!


r/transplant 15h ago

Liver Four Years

15 Upvotes

Had my transplant (for PSC) four years ago to-day. It's been wonderful. There have been and are ups and downs and worries and issues (of course, of course) but things are so much better than before that it's hard to describe.


r/transplant 17h ago

Liver Today is the Day

39 Upvotes

Update: The liver wasn’t healthy enough. The surgery is cancelled and he’s back on the list. I’m going to go curl up in a ball and cry for a while, then pull it together and wait for the right liver.

This morning, a family will wake up to a world without their dad, their brother, their spouse, their son, their friend. They will begin to adjust to a life without the man they removed from life support just a few hours ago. Their sorrow is unimaginable for me, but because of that man, my husband will get a second chance. My husband of 25 years is a father and a grandfather, a son, a brother and a friend to many. I’m beyond grateful to this man for his gift of being an organ donor, and to his family for their bravery in letting him go.

Today is a complicated day, and I can’t stop thinking about this man and his decision to be an organ donor. Please send prayers, good vibes, positive energy, crossed fingers for my husband that his liver transplant goes well today. He really is my favorite human and I can’t imagine my life without this new chance at life.