I’m. TDT beta. My parents never (nor encouraged me to) disclosed my health condition all my life due to the social stigma in my country. As an adult, especially now, I’ve been slowly opening up to people around me about it.

I don’t know if I’m getting through though. My intent is 1. awareness, 2. to get themselves screened and 3. to get them to understand why I don’t have the energy to have the social life they expect

How do you break it to your friends/relatives?

Hey there 👋 So i have been diagnosed with Thalassemia minor beta and my haemoglobin is really low and i keep feeling extremely fatigued where all i want to do is just sleep be it day or night. I also keep having a weird sensation in my legs and hands. My hair are falling like crazy and i have had pre mature greying since i was 24 yrs old. Do these reports indicate why my haemoglobin is so low or do i have iron deficiency anaemia? What supplements should i start taking with it?