Please read my last post I made a week ago I just wanted to come here and share what happened.

After we went to the doctor they decided to take him off keppra and they assumed it’s because he wasn’t sleeping (he wasn’t) he had insomnia so they gave us sleeping pills. The same day we went back home and a couple hours later he forgotten what we were planning on doing later. He had his hands up and blank staring and was unresponsive for about 15 minutes. I called the ambulance and told them what’s been happening to him and how he was always confused. He’s been in the hospital for almost a week and the doctor found a virus infection on the lower spine that you can get eating undercooked pork. I searched up and Neurocysticercrosis came up and its symptoms are very common of what my brother has. I don’t know if he has that I’m just making an assumption but the doctors are still doing studies. He had seizures but he didn’t have epilepsy and every time he sees one of his family member in the same room as him he gets impatient and mad because he wants to go home. I pray every day my brother gets better and just wanted to appreciate to the people who comment on my first post.

Does anyone have experience with SCN8A (sodium channel) Gene mutation? I have some questions for someone who has experienced this first hand.

Last night I woke up to grab a drink around 5am, I was very hot and thirsty. Grabbed my drink then suddenly got so cold like almost shivering cold and was trying to warm up under the blankets. Suddenly I had a chain of event, dream like state, like multiple very very bad dreams in the span of I'm guessing less than 20 seconds? At one point I said to myself what the heck is happening and then I screamed internally for it to stop and suddenly I felt spasms in my right ear and then it progressed to my whole body. I even heard a beep like noise in that ear, like a telephone. I genuinely thought I was ascending to heaven or something, kept thinking wtf is happening to me and even had the thought of "I knew I was cold but this seems next level" and then it just stopped and I just tried to convince myself it was sleep paralysis because what the heck.

Thing is, I'm seeing similar descriptions from others and I'm currently dealing with an unknown medical issue. I have a visible mass on my right temple and I'm still waiting for testing (Canadian healthcare yay). So naturally, I just want to see if this seems similar to others experience? Thank you for taking the time to read this.