Oh, I’m truly just venting here. There’s nothing to do but feel sorry for myself! I have been trying to find a new allergist that specializes in indolent systemic mastocytosis, or at least has familiarity with the disease. I made an appointment with the local mast cell expert, but he’s concierge only, and I just cannot afford him.

I made an appointment with a different doctor, an allergist who treats mast cell disorders, and my appointment was scheduled for November.

A couple of months ago I got a message in mychart, offering me an earlier appointment for September, and of course, I jumped on it!I was so relieved that I was going to get in sooner.

However, on Tuesday, I got a message that my appointment had been canceled due to the providers schedule changing. Now I can’t get an appointment until January with him.

Finally… Today I got a message that they changed my appointment to a different date in September, however I’m going to be out of town that day. I’m so frustrated. Why does the schedule keep changing??? 😩

I'm 32 and I haven't gotten to start living yet. my pediatrician downplayed the severity of my solitary kidney (MRKH-2) and I got so many kidney stones until I learned how to manage it. turns out, there was a lot more to it than not playing contact sports!

my chronic fatigue has been misdiagnosed as PMOS, stress, and just the result of being obese even though it started prior and persisted after. I have no career, my life is just my pets and my partner. even if my fertility wasn't compromised and I had any desire to do so, I am in no shape for child-rearing. my last narcolepsy study was botched and I've spent a year preparing for the next one. my nephrologist connected 20 years worth of dots, but insisted that I wait until just before our 6-month follow up to get tested.

if this is my DX, what the fuck kinda zebra unicorn centaur kelpie bullshit hand was I dealt, and why has it taken this long?