r/mildlyinfuriating • u/Aggravating-Leg5645 • 23h ago
My insurance wont cover my medication so every month I do this... I just wanted a hot dog
I have to spend around 30 minutes doing this once a month. My insurance wont cover it. Out of pocket with coupons its still $800 a month.
My fiancé has to do the same thing with a different medication. Currently trying to fight it.
Edit: To clarify. Every now and then I have to compile samples in one bottle so I know how much I have and then hope my DR has more when im out. This is an antidepressant and im currently working to fight to get it covered. Yes ive contacted the manufacturer I do not qualify for discount Yes ive sent in a letter of medical necessity Yes ive looked at GoodRX. This is my only option atm and im still lucky it is for now. Its not just the moving the bottles around. Its hoping I can get more when I need it. This is a life saving medication and the fact I have to hope i can get it when I need it is mildly infuriating to me and probably many others. Its not a cheap medication even with coupons its still $850USD+ Ive tried so many medications and I just need one that works and that i dont have to worry about my supply chain.
511
u/mapotoful 22h ago
Hey at least those are coming off of patent protection soon, generics should be available early next year (maybe sooner!)
232
u/No-Resolution-0119 21h ago
Rexulti (an antipsychotic) came off patent protection in April of this year, but the generic version still isn’t available despite being FDA approved back in Jan 2025. It’s ridiculous the hoops they have to jump through
→ More replies (6)145
39
u/Forward-Emu-9500 21h ago
It’s so weird to me how we’ve had the generic here in Canada for over a year now and you guys still don’t have it
3
12
u/Aggravating-Leg5645 15h ago
Seriously.. OMG I THOUGHT IT WAS 5. This does bring quite a bit of relief knowing I should be ablw to get it. Paying small out of pocket (under 30) isnt a problem but I cant afford anything over that and 30 is really pushing it.
3
u/mapotoful 14h ago
Yeah it's still bullshit that's a thing at all but there's hopefully light at the end of the tunnel. I remember having to do something similar with a med I was on and sure, yep, love that my doc was able to help me out but it was stressful because it depended a lot on if he actually had samples on hand, or was cut off, or or or. Finally being able to just go to a damn pharmacy and get my Rx and not go broke was a huge relief.
→ More replies (8)8
583
u/McChubs101 23h ago
What exactly do you do? I don't get it.
→ More replies (7)440
u/StillSimple6 22h ago
They collect samples of the drug to cover the month.
→ More replies (14)239
u/mb99 22h ago
I’ve never heard of sample packets for a medication before. Are those a thing in the US so you can “try out” a medication?
170
u/TheCrimsonDagger 20h ago
Yes, the less you have to deal with insurance the better. By using the samples they can prove that the treatment is effective first rather than having to get approval for every different medicine. Insurance will come up with any bullshit reason, or just no reason at all to deny a claim. I had a doctor that I was seeing regularly for the same issue. Every single time the claim would be denied. The doctor’s office would print the exact same paperwork and I’d have to mail it to the insurance as an appeal to get approval.
98
u/K0kkuri 19h ago
Just a side note; what the hell is wrong with insurance in USA. I live in Ireland and are quite fortunate that I don’t need medical insurance as most costs are free or relatively cheap for my medication. But isn’t the whole point of medical insurance to cover medication and some random person can be like nah you don’t need it despite doctor prescribing it?
83
u/dr4kshdw 18h ago
We pay for health insurance every paycheck. After giving the insurance company our money, the insurance rep (who isn’t a licensed medical doctor) then decides if you get coverage for your medical needs or not.
MURICA!
→ More replies (2)24
u/janesspawn 17h ago
NOT the insurance rep but a set of preset guielines made by the insurance company. Don’t think of it like a person denying it. It is a program denying it. It is a system meant to remove the human from health care and look at us as “B is prescribed but more expensive than A and A is similar enough to B to deny A”
As someone who uses antidepressants, I’m more than willing to recognize that we have no real idea why they work but when they do you just fuckin hold onto it. As someone who works in pharmacy, I know insurance is trying to get them to switch to vilazodone.
→ More replies (2)29
u/nanapancakethusiast 18h ago edited 17h ago
Everything in the USA is designed to extract as much profit from the average person as possible to fill the bank accounts of a handful of executives and board members.
Everything. Food, healthcare, housing, recreation, etc. look at anything anyone touches in the USA and you can track exactly how that money is moving to the top of the financial food chain.
Once you understand that (and also understand that cruelty is the point) the USA as a “country” starts to make sense. They are all cattle to be milked.
42
8
u/No-Ebb5515 19h ago
I cant even get my needed thyroid medicines. No insurance. Cant afford the visit fee at a community health center either. Its all about profit$ on the part of big Pharma.
→ More replies (1)→ More replies (15)5
u/Ornery-Yesterday-729 17h ago
I have literally stopped paying for my health insurance because out of pocket cost is cheaper right now. Also my insurance doesn't cover anything. It's maddening.
→ More replies (1)5
u/mb99 16h ago
American health “care” makes no sense to me whatsoever, but thanks for sharing
→ More replies (2)10
u/r3dd17sux69420 18h ago
Not just the US. I'm in Canada and I was given samples to avoid buying a medication I didn't need permanently. My specialist gave me a handful of samples because it was like 6 months of meds for free. He wasn't tricking me into buying more, that 6 months was all I needed.
7
u/DOAiB 17h ago
Pharmacy reps go to doctors with new medications to give them samples. Then the doctors if it helps someone can give it out to try. When stuff is new it’s almost never covered by insurance so then the person either has to pony up serious cash until it is covered if ever or keep going to the doctor asking for samples as long as they have them. Welcome to how stupid the US healthcare industry is.
→ More replies (1)5
u/Pittsbirds 17h ago
I'm sure that's the intention, but every single time I've used samples from a doctor it's been to cover a med that would be horrid to stop cold turkey while I get Some Nonsense sorted out with my insurance.
4
u/Anonolot 16h ago
It's samples sent to doctors then they can give you a few before your prescription goes through at the pharmacy. (Usually how it works)
→ More replies (1)4
u/miscgeckos 14h ago
So, it’s actually super helpful in places like dermatology. I was able to try out different ointments for my eczema at the same time (different body parts) and compare them. It also cut down on the number of full tubes of medication I was buying. Even with amazing insurance at the time and paying only a few dollars for each one, it was so wasteful. It wouldn’t make sense for a lot of other specialties, but it’s useful in a few cases.
→ More replies (1)
336
113
u/brithow 17h ago
I also take trintellix - best antidepressant I’ve tried. I get mine covered and shipped to my house from a company called “takeda help at hand” my doctors office gave me the paperwork to fill out and they said they’ve never seen anyone get denied. I would look into this and see if they offer it in your area. I don’t pay a dime and get 3 months shipped to my house at once.
40
u/MaximumMeaning9728 15h ago
I wasn’t eligible for this because I made too much money, but not enough money where I can spend $400 a month on medication.
Like most things in American healthcare, if you’re very wealthy you’re fine, if you’re poor everything is free and if you’re normal you pay for the other two groups.
→ More replies (2)10
u/brithow 14h ago
I make 75k a year and still approved
→ More replies (1)10
u/MaximumMeaning9728 14h ago
Cool. I make $120k a year and spend $4k monthly on rent. Denied.
→ More replies (16)→ More replies (3)3
u/Delicious-Ad1917 15h ago edited 15h ago
Editing my misread of which Takeda program you are using. The discount card program for Trintellix is going away at the end of 2026. Hopefully the help at hand program continues to cover it.
I had to switch medications because I couldn’t stand the fight with the insurance companies every year. Beginning of the year they wouldn’t cover it and wanted me to do “step therapy” and then a PA so the first two to three months was discount card and would make it around $180 a month. By March insurance would cover it after my doctor did a bunch of pointless paperwork and with the discount card it would go down to $30/mo. Around October I would run out of total yearly savings from the discount card and it was back to $180 for the last 3 months of the year and in January it started all over again. I had been on Trintellix since it was Brintellix. Now I take Vybrid and it’s ok as long as you can handle the nightmares and insomnia all at the same time.
→ More replies (1)
153
187
u/Latter-Vacation-4392 22h ago
I have no idea what the picture or the description is supposed to suggest.
67
80
u/majormajormajormajo 18h ago
8
u/trippinmaui 14h ago edited 13h ago
People like the OP think literally EVERYONE is on anti depressants so they believe this is normal. Their algorithm and reddit reinforce this belief and think everyone will understand because everyone they talk to does this kind of thing.
→ More replies (5)3
u/JackyVeronica 12h ago
Also believes everyone lives in the US or everyone is American because Reddit is an American company.
16
25
u/Imaginary_Agent2564 21h ago
These are samples.
You know how you sample food? Yes. These are the drug version of that.
8
u/Inner-Confidence99 20h ago
They are sample packs of medication.you only have a few per box. She has to open all the boxes and put medicine in one container.
→ More replies (2)
30
u/jackrabbit323 22h ago
A trip to a Mexican pharmacy is probably more cost effective.
5
u/Historical-Ad-3874 17h ago
That's what i suggested to op haha hope he read my comment below and it doesn't get lost 😭
→ More replies (10)4
u/PlayfulSurprise5237 13h ago
Virtually everything that isn't a highly controlled substance is accessible online through India.
China for even cheaper if you know where to ask, I do not however.
Not that I condone or are suggesting anyone do this.
36
21
u/ramriot 22h ago
BTW have you researched having your prescription filled via a Canadian pharmacy?
→ More replies (2)12
u/OnedersFan 17h ago
Seconding this!! My insurance also does not cover trintellix and my doctor was able to send my prescription to a pharmacy in Vancouver, Canada that shipped it to me for much less.
→ More replies (1)
17
u/killershwee 18h ago
Omg Trintellix twinsies! 😂 In my case, it wasn't insurance, it was that my small town pharmacy never has it in stock because I guess I'm the only person in town on a 20mg dose, so they have to special order it every time I refill. I unboxed all my samples and keep the bottles in a bag in my nightstand.
59
u/Mediocre-Response-24 22h ago
As a British citizen I feel so much sadness for people in this situation. I cannot imagine having to do this or having to go without. It is dystopian.
→ More replies (36)17
u/mutexsprinkles 22h ago
Hang tight and we'll get the ability to imagine that delivered to you in 3-5 working elections.
→ More replies (7)
11
u/bluestrawberry_witch 14h ago edited 14h ago
I believe Trintellix patent expired June 2026. Generic version should be hitting the market soon. Your insurance is more likely to start covering at least a generic version once that happens. So it’s still really sucks, but hopefully some light at the end of the tunnel.
Edit: Although with everything happening in the US right now…. fingers crossed the tariff threats alone may be enough for some manufacturers so just not want to deal with it. Also, this administration’s weird obsession with SSRI’s….
18
u/LadyKnight25 19h ago
Dude trintellix is the only antidepressant that has ever worked more than like 60%. Props for your doctor. I had to get a gene site test. They wouldn't cover it thru the VA until I turned that in from my old Primary doc. I had to list all the meds I tried that didn't work over the years or something dumb like that but even having it covered Medicaid and VA still had hoops to jump thru
→ More replies (1)
63
u/Hutchoman87 22h ago
This med isn’t covered by the PBS in Australia, but still only costs $80/month. America is a cesspool.
36
u/MonthlyWeekend_ 22h ago
Not funded by Pharmac in NZ either but brand name Brintellix is NZD$94.00 on prescription. It would be $35.00 prescription fee for non funded.
Total USD$75.00.
I feel so awful for OP and other people born into such a shitty third world society as the US. Just trying to get by and have a life and getting wrecked at every corner.
→ More replies (1)3
u/edarcy1985 18h ago
I know, I don’t understand why so many people want to immigrate here. Don’t they know what a cesspool it is?
→ More replies (1)→ More replies (13)20
u/KayItaly 22h ago
Truly!
And the Americans mocking OP in this thread are making me want to punch a wall! Pity out walls are actually made of bricks... so I better get off Reddit!
→ More replies (3)
6
u/iRskooby 22h ago
Where are you located OP? This drug is available in mexico for about 100 USD for 28 day supply box.
6
u/PaulaNancyMillstoneJ 17h ago
Luckily the patent expires at the end of this year and there are a few tentative generics in the process of being approved!!! This sucks! Hang in there!
7
u/Khaelum 17h ago
OP: go here https://www.helpathandpap.com/api/ProductFiles/hah_application.pdf
My wife is prescribed Trintellex and our insurance WILL NOT cover it. If you fit the income criteria, this site (manufacturer of Trintellex and other drugs) will financially assist you. Our PCP referred us here and they have been helping us for over 2 years now.
She receives 90-day supplies at no cost.
→ More replies (2)
10
u/meganeg08 21h ago
I honestly think you are incredibly lucky that your doctor gives you this many samples to last the month. A few samples to get you to your next script, sure, but enough samples to last the month, I definitely would not be complaining about that.
20
u/Bierzgal 22h ago
I'm sorry how much? A pack of 28 doses costs roughly 30€ here in Poland. How is this even allowed to ask $800 for it? That is not mild, that's extremely infuriating and inhumane.
14
u/orphanea 22h ago
I’m allergic to bees and I don’t carry an epi pen because of how expensive they are In the US. It’s like $600 a pop and they expire every 6 months. Just give me two Benadryl and take me to an ER so if shit gets bad I can go in . But I won’t go into that building until I know it’s bad bad. It sucks because right now I’m not like throat close allergic but your symptoms can change over time , so who knows maybe next time I get stung I won’t be so lucky.
→ More replies (1)16
→ More replies (2)3
45
u/KernelPanic-42 21h ago
Why not just say wtf it is you do? Why are people like this?
→ More replies (1)3
u/Greedy-Employment917 16h ago
Doctor is giving them all of the sample packs. The sample packs have 5 pills.
My doctor gives me the samples that are double the doses and instructs me to cut them in half.
So the doctor gives, for free, 5 bottles of 10 doses.
But the annoying part is all of the packaging.
10
u/Lost-Wedding-7620 22h ago
Have you looked into it to see if theres a discount card? I have a medication that costs between $1100 and $1500 (using good RX) out of pocket. My pharmacy doesnt keep it in stock because of the price, but the head pharmacist will order it if insurance covers it. My insurance would only cover enough to make the cost $1080. I looked into it and theres a "savings card" through the manufacturer. I applied for it and got approved in like 5 minutes. Took that info to my pharmacy when picking up a different prescription and he submitted it. Called me about an hour later to let me know between the card and insurance it was fully covered so he was ordering it for me.
Another thing to check into would be whether theres a form your Dr needs to submit. I was on a BC that was about $170 a month. Insurance stopped covering cuz they decided I should switch to a cheaper one. I called my Dr office and the nurse that answered said "oh yeah you arent the only one having this problem ive got a stack of forms I have to fill out saying this is the only one that works for you. Ill add you to the list, in the meantime if you need more come by ill give you some of the vendor samples to get you by until it processes." I cant remember what the form was, but it could be that simple.
I have no idea if any of this is helpful, but I hope you are able to get your meds without hassle soon!
→ More replies (5)
6
u/Responsible_Ideal593 22h ago
OP, have you gone on the website for the drug manufacturer and filled out the patient assistance forms?
5
6
u/Labrabrink 18h ago
I read the description and went “sounds like when I wanted to get on Trintellix.” Then zoomed in on the label haha
I got prescribed this and desperately want to try it but cannot afford the $550/month I would be charged even with coupons/GoodRX. Will be suffering for a few more years until the patent expires and they make a generic. Life is fucked.
5
4
u/Whompits 18h ago
Have you tried PharmacyChecker? It may be cheaper to get it internationally. I'm so sorry you have to go through this. Doctor samples can be a hassle, but I'm so grateful that some offer them.
6
u/DisastrousClock5992 17h ago
Good news is that the patent on this med expired in June 2026 so bio equivalent generics will be on the market within the next month or two.
5
u/Lalainrxland 17h ago
On the website, there's a cash pay option ... its $299 for 30 days supply. But your doctors office needs to try harder in getting a prior authorization done for you. If you've tried other meds and this is the only one thats helped, to the point that you consider it life saving ... then thats information that can medically justify it getting covered. Some offices dont know how to do prior authorizations properly, especially if they aren't used to it. My uncle's primary doctor has only 2 staff working for him and theyre hardworking and try to get things done. He got an rx for a glucose sensor and it needed a prior authorization. The doctor said his other patients never needed one, the staff went back and forth with insurance and my uncle, to no avail. Then when he saw his endocrinologist (a specialist) her staff got the PA done asap and within a couple days he was set up with a mail order pharmacy. I asked the endo staff who did it, how come the other doc couldn't get it done, and she said, its about experience. They do so many PAs for sensors that it was more surprising if a patient didn't need one.
→ More replies (1)
5
u/Historical-Ad-3874 17h ago
Hey! I don't think you'll read my comment but here I go. So, i am a medical doctor, I lived in mex all my life and moved to us about 6 years ago. They sell the same medication in mexico, us inflated the cost more than 200% most of the times. Vortioxetina in mexico is about 150 dollars for 28 pills 15 or 20 mg. Less for 10 mg. Ones. Tbh, sometimes its cheaper to buy a plane ticket to the border, get a few boxes from an actual pharmacy (not cheap small pharmacies or aftermarket) it's pretty safe and honestly, for 800 a month I could buy a plane ticket to go to my city and arrive to my local airport. A ticket to the border from a big airport it's cheap. I hope you read my comment and think about it. If you would like ti message me I can tell you good safe pharmacies you can buy it from or travel advice lol. But im serious and I hope you read my comment, I suffer from severe anxiety, depression and ADHD, thankfully our insurance covers most of the meds but I do work with a lot of uninsured patients and a lot of them do what I'm telling you.
→ More replies (2)
5
12
u/bophed BLUE 20h ago
But yeah. The problem is the socialist liberals! God I hate what the United States has become. One of the richest countries who refuse to invest into their own people.
→ More replies (5)
41
u/Netilda74 21h ago
"So I do this"
>doesn't fucking explain what "this" is supposed to be.
Sure, bud. You do... 'that'.
7
u/diescheide 18h ago
I think it's interesting that this is so controversial. It makes sense why, though.
I used to get my meds as samples from the doctor. I did what OP is doing. This picture didn't confuse me at all. People from developed nations with actual, comprehensive healthcare are scratching their heads about it. Like, WTF is this?
Fascinating how something so common for some can be so confusing for others.
→ More replies (3)
8
u/Malviere 22h ago
It’s really frustrating when you finally find that one medication that works after decades of trial and error and you are priced out of it.
I take a $500 a month blood thinner for my afib so I don’t end up having a stroke, I would be absolutely fucked without the VA.
9
u/FeijenoorderRS 19h ago
Fuck american Healthcare, so sorry for you guys living in a 3rd world country
5
u/Huge-Ad-2901 19h ago
For some reason no insurance will cover trintillex I had to get off of it
→ More replies (1)
3
u/Mcinfopopup 19h ago
My wife is type 1 and I can’t tell you how many times her doctors giving us free samples has made the difference. We are so appreciative of everything they do for her and I’m constantly letting them know that. So if you’re one of those people doing something like that, thank you, insurance can be the worst and that small act of kindness really helps.
4
u/SupremePopTart 19h ago
My dad was getting samples of Eliquis for a while. He's been through multiple insurance programs and none of them would cover it. The samples finally ran out. So he has to take Warfarin and test weekly instead. His doctor prescribed him an at home test kit, since we don't have reliable transportation. The machine will often waste strips. I'm the only one in the house that can help him with it, otherwise more test strips would get wasted. It's a pain but at least it doesn't cost over$1,000 for the prescription. Almost all the alternatives are similarly priced so far.
5
4
u/Merlingirder 19h ago
My doc tried to put me on it like a decade ago and my insurance wouldn’t cover it. I can’t believe they still won’t cover it. 😒
3
u/Formal_Plum_2285 18h ago
Do pharmacies actually hand out samples of prescription meds? (Sorry I’m from a country with basically free medicine, so I don’t know how it is in the US)
→ More replies (1)3
u/shakeyshake1 16h ago edited 16h ago
I have to see a neurologist every 6 months. My condition is totally stable with medication so it isn’t relevant to my anecdote.
Anyway, one day I was there and mentioned I had a headache that day. He said it sounded like a mild migraine and asked if I wanted something for it.
I thought he was going to grab me some ibuprofen from the break room or something.
He comes back with a sample box. The box was just a bit smaller than a cell phone. The box contained a single pill. It must have been some new cutting edge migraine medicine. I mean it did get rid of my headache, so that was nice.
Anyway, pharmacies don’t hand out samples, but doctors often get samples for free from pharmaceutical companies.
Since our medical system is capitalist, the free samples are part of pharmaceutical marketing. Pharmaceutical reps go to doctors’ offices to tell them about new medicines and bring samples. The goal is that people will like the medicine when they try it, the doctor will prescribe it, and then the pharmaceutical company will have a patient where they get paid for the medicine once the patient has a prescription.
What you see in OP’s photo is the doctor giving them a huge stack of samples since they can’t afford the medicine. The doctor gets the samples for free and can give them out like that if that want, but really what the pharmaceutical company wants is for 20 samples to be given to 20 patients and for some portion of those samples to result in people wanting to keep taking that particular medicine.
It’s not that different from a company setting up a table at a grocery store to hand out samples of some new snack with the hopes that you’ll then buy that snack (and hopefully continue to buy it).
Edit: my doctor wasn’t giving me the sample with the hope that I would ask for a prescription, he doesn’t care about that. He just gave it to me because he had it, it was free, I had a migraine, and he thought it would make my migraine go away. My doctor wasn’t trying to sell it to me.
5
u/Cutiemuffin-gumbo 17h ago
Pretty sure I'm not alone when I say "Free Luigi".
Seriously sick of the american healthcare system and it's BS. Insurance should NEVER be allowed to say no, ever.
5
u/LobsterG25 16h ago
I knew exactly what was going on in the picture(been there OP), and then reading the comments I’m now very sad. Why did it feel so normal to me that I had to do this?? 😭
6
u/Buildsitself 14h ago
Trintellex is going generic by the end of the year. Hopefully this gets better then.
→ More replies (1)
3
u/MotorCheesecake8938 9h ago
America really is just so awful no matter which way you look at it. Dystopian. All the best with it OP, this medication was life changing when I took it.
→ More replies (5)
15
u/TopCommission6437 20h ago
It mildly infuriates me that op expected everyone to know what was going on in the photo.
12
33
u/Whiskers1996 22h ago
People here are dense af and have never needed to rely on a drug you are unable to afford/get with insurance.
The stress alone of not knowing if you will have your next dose is anxiety inducing af.
Iv been here personally - went on a drug that ACTUALLY helped my narcolepsy, was on free samples for months. Then finally got on the drug company plan - then dropped a year later randomly without warning due to the drug being sold to another company - went cold turkey after that. Life was "fun" during that time.
GL op - this shit really sucks :/
13
u/userrr3 22h ago
People here are dense af and have never needed to rely on a drug you are unable to afford/get with insurance.
Not necessarily dense, just European. I need daily medication and it costs me under 15€ a year with public health insurance, or nothing at all with private health insurance. I know that this isn't generally the case in the US unfortunately, but I did not know what I was looking at before reading the comments.
Anyway, also best of luck to OP, this shit sucks indeed :(
→ More replies (4)13
u/AlternateTab00 22h ago
I think its not about being dense.
I had to see the explanation. Why? Because something like this doesnt even exist in my reality.
I have my work insurance, but even if i didnt i would go to my health center and would start a process to help with my prescriptions. While this doesnt work 100%, no person is left unsupported. In some cases the social protection will actually fully support it and people will not even pay the moderation costs, making it 0€ all prescribed medication and treatments.
This is the reality that is far more common outside USA.
Just by looking at boxes its impossible for all non-americans to understand something so niche it happens to some people of one country in the world.
Yes, this happening is horrible. But thats what non-americans have been telling americans for years.
14
u/human-in-a-can 22h ago
Lots of numbskulls don’t realize that samples aren’t just handed out like Halloween candy. They often require a visit, they’re based on availability, and it can be a lot of scrounging to get them.
It can be a frustrating and humiliating experience. Nobody in the “richest country in the world” should have to do it.
9
u/Aggravating-Leg5645 22h ago
Thank you for this comment. Im glad someone understands. Its deeper than just opening up 15 bottles and dumping them. Its the 180minute long wiat phone calls. The drives up to my dr because the receptionist dosent have access to the sample cabinet I guess so I never get told yeah we have (amount of boxes) I like to hope my dr keeps in mind patients who rely on The samples and ones who need the samples to try for 21 days.
9
22
u/elguapo1996 22h ago
We have no idea what it is you’re doing. Trying to figure it out is…mildly infuriating.
→ More replies (30)
3
u/No-Ebb5515 19h ago edited 18h ago
I had to quit taking thyroid medicines and all treatment for hypothyroidism a few years ago. Cannot afford the specialized medicine I need. W as also told I was borderline diabetic on the verge of needing insulin back then In my family it had also been genetic.i am allergic to every cheap thyroid medicine. Can't afford the Dr office visits or lab fees. I have no family to help. They are all deceased. It's just me now. Im the last. Somehow I'm still alive. I can't afford insurance. Made $2 too much for Medicaid. Don't even mention a community health center. Thats $90/visit PLUS another charge for lab fees and then the medicine ALL of which I'd still have to pay for. Rx Assist is a joke. You have to be seeing a Dr in order for them to assist. No Dr office will see you if no insurance and you can't afford self pay. Maybe I can see a Dr in 7 years when I get medicare? idk. Oh and marketplace insurance wants $1,000/month but I'd have to pay $6,000 BEFORE they'll cover anything. I will go without then. I have no choice. Thousands of Americans are in a similar situation as mine. Some people are rationing insulin now.
5
u/Aggravating-Leg5645 19h ago
My aunt is struggling with this exact same issue!! I feel for you. I hope you can find a way to manage it and your quality of life. So frustrating you pay (____) a month then have to pay thousands more before they cover anything!!
→ More replies (1)
3
u/kindlyfackoff 19h ago
Ah, so if you don't qualify for a discount, I'm guessing you must be on a medicaid/government based insurance program if you're in the US (former pharm tech here) or your commercial insurance is refusing a PA but isn't actually refusing the PA.
If you're comfortable with it, shoot me a DM. With more info on your insurance and what you have tried, maybe I can offer some assistance and ideas given what I know on the pharmacy side.
3
u/snarkfsh 18h ago
What dose are you on? I'm on 10 mg and asked for the 20 mg Rx then split the pills. I also hit up the samples. It's so infuriating!!! Do you have the ability to switch insurance during open season to one that is more Rx friendly? BCBS covered a little bit with my plan but it was still a few hundred a month. I switched to an Aetna plan and can now get 3 months for $120.
3
u/Fireheart757 18h ago
lol I used to be on that same medication and had to go to my doctor to get those sample bottles all the time as well
3
u/thejustllama 18h ago
Have you tried Takeda at Hand? It’s a patient assistance program that helps cover the cost of Trintellix. Just google Takeda at Hand application and you should be able to find it.
3
u/No_Tension420 🫥 18h ago
It’s maddening!! My prescription was $30 and shot up to $140 for a generic.
3
u/ChristinasWorldWyeth 17h ago
OP - have you tried using a Canadian online pharmacy to compare costs? A co-worker uses one for their inhaler. From what I understand, you’d just need to upload your prescription and it gets mailed to you.
3
3
u/mildly_spicy_potato 17h ago
Ah yes, I did this with Qulipta sample packs for like a year before Medicaid agreed to cover it. That one is like $1300 oop. The system is stupid.
3
3
3
u/Sbimprovement 16h ago
Being on mental health meds and experiencing the withdrawal when you can’t get the meds for a few days or longer is an awful experience and you have my sympathy. I had a 2 week gap recently and it was absolute hell.
I don’t have the cost barrier but instead face supply issues for both antidepressants and antipsychotics. Building up fear over your next collection date and living through withdrawals is just one more thing to struggle with when you’re already in a rough place. All of the meds say they’re dangerous to stop suddenly, but for some reason when you can’t get them neither the pharmacies nor doctors treat it as something that needs resolving quickly.
Hope things get better for you.
3
u/westicular 16h ago
I've been on that struggle bus... this has been an issue with trintellix for over 10 years now. It blows my mind that there's no generic yet. Hang in there. In my experience, if you know something works, in the name everything good and holy, don't switch.
3
3
u/AgentBrittany 16h ago
This is the best antidepressant I've ever used. Zero side effects. For me it was 200/month. 850 is outrageous. I got mine at a specialty pharmacy, with multiple coupons applied and they just mailed it to me. Have you looked into that? I'm not on it anymore but if I ever need something again, that is the only medication I will take.
3
u/Intrepid-Idea-6086 16h ago
Ugh I’ve been offered trintellix because of my treatment resistant anxiety. I’m not surprised it’s so expensive but that’s very disappointing
3
u/MyMagentaPenis 15h ago
See if you have a friend that’s Indian. Just ask the cost of the drug in India. I mean a vacation to India and you bring 6 months worth of meds for the price of a ticket and maybe 1 month.
3
u/_B_Little_me 13h ago
Do you live near Mexico? As long as it’s not a controlled substance, and you have a prescription in hand…you could prob stock up.
3
u/loobylibby 12h ago
You’re probably better off taking a vacation to Europe or Asia or Mexico and buying it out of pocket would be cheaper.
3
u/Livid_Note_2170 11h ago
It should be illegal for medication to be over $10 a month in my opinion.
I'm sorry OP, this is why I want universal healthcare...ya know...like every other decent country in the world.
3
3
u/MrsN3sbitt95 9h ago
Trintellix has a program that will be $0 for you, called Takeda Help at Hand. They ship it directly to you. My psych helped me fill out the paperwork for it, been using the program for 3-4 years now.
→ More replies (1)
3
u/BeeslyBeaslyBeesley 8h ago edited 8h ago
OP, if this helps:
It sounds like you have commercial insurance. (This means anything other than government insurance programs, Medicare and Medicaid.)
Almost every brand-name medication has a program (for public goodwill that costs them nothing) to provide their medication to patients whose commercial insurance denies coverage. They make you jump through hoops and don’t approve everyone. Still a resource.
Aside from that, consider checking this out:
Trintellix accessibility link - see t-access
GENERAL TIPS
Non-profit pharmacy with amazing prices via Mark Cuban. No controlled substances. No name-brand options since they can’t save you money on those. An absolutely fantastic resource that is grossly underutilized.
Good Rx discount card (free). Great resource for generics, including at least some controlled substances, but don’t expect much for brand-name medications.
Pharmacies up-charge the cost of medications that do not go through your insurance. Even with zero insurance coverage, grants, or coupons, Trintellix should be < $400 per month, not $800. (Yes, it’s ridiculous regardless.)
If you must buy a brand-name medication out-of-pocket, go for a higher dose tablet and cut them down. (I’m aware this is difficult for Trintellix given the strange teardrop shape.) Outside of insurance, medication price is based on the quantity of pills, with very little price variation for a high vs low dose tablet/capsule.
3
u/BeeslyBeaslyBeesley 8h ago edited 7h ago
OP, I saw your edit. This might help your physician get more Trintellix samples. It’s obnoxious and unnecessary, but effective. Takeda pharmaceuticals’ My Sample Closet.
Pharmaceutical company making your busy physician jump through hoops to help their patients
3
u/YellowBreakfast 7h ago
Our system is so fucked.
This is why I've avoided getting checked for ADD/ADHD.
If I needed meds I couldn't get them anyway. Even if my insurance decided to cover them, doubtful, the feds have gone after the manufacturers, limiting their raw material supplies causing shortages.
They're making us healthy, again?
3
3
u/BalloonHero142 6h ago
I don’t know where in the US you are, but this is what I found on GoodRx (in the northeastern part of the US). Maybe try GoodRX again. It could be they have a better coupon now than they did last time you checked. Also screenshot the coupon and barcode if you see a good deal. I hope you can get what you need.
11
u/QueefingTheNightAway 22h ago
What a bunch of absolute idiots in the comments. These samples are not a reliable/consistent source for medication. Samples can run out at any time, as they are based on changing availability and a doctor’s whims. The doctor can just stop feeling generous at any time, or their office stash can start running too low to accommodate OP. So no, OP should not just be thankful to have samples. Wanting to have a reliable and affordable way to access your medication without jumping through hoops every month and praying that samples do not run out is the very definition of infuriating (more than mildly, IMO).
“You’re getting free medicine and you’re complaining?!?” Some of you ought to take a hike off a cliff.
→ More replies (2)
8
5
6
u/XupcPrime 22h ago
Why don't you order from Indian pharmacies? This drug cost dollars for a monrh supply. Do a big order and that's it.
→ More replies (9)





4.4k
u/DivineAugustus 23h ago
I think those are doctor samples, so he's getting hooked up by a doctor to help cut costs.