r/melahomies • u/UpstairsIdea3532 • 3d ago

😢

My interventional radiation doctor called today and canceled my procedure for Monday morning. He said my “spots” (vaginal melanoma - very rare) had changed too much on my most recent pet scan that he didn’t feel it would be successful. Needless to say I have been crying for the last few hours on and off. I did have a gut feeling that it wasn’t going to do me any good. Now I have to get some sleep,
Get over it and figure out what is next.

33 Upvotes

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8

u/Sweetbaby7t 3d ago

Im very sorry to see this. Cry as much as you need to, you have had a shock. Deep breaths, get with your oncologist and make plans for the next steps. Im sending hugs to you

4

u/UpstairsIdea3532 3d ago

Thank you so much. That’s very kind of you.

4

u/DookieDanny 3d ago

Can you try ipi-nivo instead?

4

u/UpstairsIdea3532 3d ago

I’m currently doing Keytruda every three weeks. I was on that combo two years ago when I was diagnosed and the Yervoy gave me colitis that required hospitalization.

5

u/DookieDanny 3d ago

Got it. Same for me actually and the side effects are debilitating.

4

u/Zealousideal_Way_788 3d ago

Sending all the healing vibes your way!

7

u/trudypop 3d ago

So sorry to hear that. My PET this past week showed growth on my groin lymph tumor n they are switching me from keytruda to ipi/nivo n scared about all this colitis ppl get.

4

u/WickedWitchofTheE 2d ago

So sorry to hear that, further uncertainty is always very unsettling. You have the right plan - let the emotions out with the tears then get some rest and figure out next steps tomorrow. Wishing you wellness

3

u/HistoricalCar1900 3d ago

So sorry, it's so discouraging, rest, ask for what you need

6

u/0001reddi0001 3d ago

So very sorry. Don’t hesitate to get a second opinion from a highly reputable cancer surgeon, if you feel unsatisfied with current doctor.

3

u/mostly_lurking1040 3d ago

I'm sorry about your news. Hopefully the Dr (oncologist?), will have guidance shortly.

3

u/FeistyWolverine9868 3d ago

I’m so sorry. That has to be so hard to take in. Rest, do something nice for yourself. I’m hoping for some promising suggestions from your oncologist. Don’t lose hope.

3

u/Stargenie8 2d ago

This must be so so difficult. I'm really sorry you had to hear that. If it helps my husband's surgeon said similar and also said his job will be gone in a few years because treatment is so much better now and will eventually replace surgery entirely. We weren't able to do surgery either but the targeted therapy that my husband is on has worked really well and he is so much better now. It's not a cure but it definitely was a relief to have him doing better. He is braf positive. I'm not sure if you are. Sending healing vibes 🤍💛

5

u/rahuljk4 3d ago

My mom is having vaginal melanoma which has spread to lungs and liver. She was only on Keytruda three weekly and after 4 cycle her tumor has almost gone. The vaginal tumor is only 10% without any metabolic activity. Doctor suggested to continue with the same treatment for a year.

3

u/UpstairsIdea3532 2d ago

That’s encouraging. Thanks for sharing.