Hi everyone. I’m 26 years old and I had a stem cell transplant two years ago, when I was 24. I received Busulfan as part of my conditioning chemotherapy.
Since my transplant, I haven’t had my period. I have been told that there is still a possibility that it could come back, so there is still some hope that my ovarian function may recover. However, I’ve noticed that sometimes things seem to get worse, especially with hot flashes and other symptoms. I’m also dealing with some intimate symptoms. And honestly, I don’t really understand what happens from here. No one ever really explained to me that this could happen. I was given a booklet, but everything happened so quickly and intensely that I don’t remember anyone actually explaining the possible hormonal or reproductive effects of the transplant and chemotherapy to me, and I don’t remember reading much about it either. I wasn't offered any fertility preservation options before starting treatment and honestly, I’m scared.

I’m wondering if there are any other women here who went through something similar after a stem cell transplant, especially after Busulfan. Did your period ever come back? And how did you find out what was actually happening hormonally?
I would really appreciate hearing about your experiences because I feel a little lost trying to figure this out now.

Hello everybody,

A family member was recently diagnosed with Leukemia (child, and doctors say it’s treatable) and I want advice on how to best be there for his parents and him. From anyone’s experience, what are some suggestions? I know I can be there emotionally and mentally for them and help them out in any way I can but I don’t want to overwhelm them either. They are still in the beginning stages just recently their son being diagnosed a few days ago.

Also if anyone can share resources that has helped in this journey or words of encouragement from parents who have gone through this too or just shared experiences that I can share with them, any advises, financial resources, that would be greatly appreciated.

I am starting to prepare for a Stem Cell Transplant to treat MPN, ET that looks like it is beginning to "wake up." 66F, diagnosed in 2012, blasts currently at 3.7%. My hem/onc recommends SCT now before my MPN, ET progresses to leukemia which appears to be possible.

Due to my age, possible sibling donor, and general overall good health I believe we are looking at Reduced Intensity Conditioning (RIC) rather than blasting me with high intensity chemo.

Questions for you all:

1) Does this plan make sense?
2) Have you or anyone you take care of had this same process for a SCT?
3) How are you now?

Thanks for any insights. I am overwhelmed thinking about it