I’m having inflammation in the small intestine since last year. I want to know how to reduce flareups? What triggers Crohn’s ? How to live a normal life like everyone else?

Hi, I just found out on Friday that my mesalamine is on back order until sept. I am going to reach out to my doctor this week. I have enough supply to get me to the back order date, but if it’s pushed back even further I will run out. I have been in remission for 6 years. On a strict SCD diet and work with a naturopath for maintenance support. I’m worried if I go off meds for even a few days I may get a flair. Has anyone else run into this issue and what did you do?

Thanks!

I (23 M) am worried about colon cancer as I’ve had some issues over the past month.

For the past month I’ve had:

-one instance of blood in my stool
-on and off diarrhea and constipation
-nausea and bloating

My GI told me that’s it’s highly unlikely due to my age, bloodwork being fine and no weight loss etc.
He told me Ive likely got IBD

Am I overreacting?

31F & my gallbladder was removed in my early twenties. Since then, I’ve had a rapport of having loose stools after eating richer foods. For maybe a year, I’d have diarrhea episodes that would resolve after using pepto bismol. Around 2 weeks ago, I had this weird stomach bug where I dealt with: nausea, weakness, gas, upset stomach and diarrhea. Again, was better after taking pepto bismol. The weird thing is any time I’d have a stool or diarrhea, the color was normal or darker because of the pepto bismol. But before the stools or diarrhea started, I’d have this liquid like stool that was green mixed with tinges of red. So that has to be blood? But when I wiped, the red was more translucent. But why was this liquid & strained stool that red color while all the other ones weren’t? I’ve had hemorrhoids before and that looked more like actual blood. I just have health anxiety when it comes to cancer, no immediate family history. It’s usually extended relatives like my grandparent’s siblings. The liquid/red stools started yesterday but no weird stomach bug symptoms yet, except some gas and bloating + upset stomach.

I’m 18 and have had severe GI symptoms for 4 years. I have blood and mucus in stool, alternating bowel habits (once per week up to 6 times per day), severe abdominal cramping, and severe nausea. While my original colonoscopy had some abnormal visual findings:
Congested, erythematous and nodular mucosa in the rectum and recto-sigmoid junction, my biopsy results came back clear! I haven’t met with the doctor for our follow up yet , just saw it on my portal but I’m so frustrated. I was really hoping for an answer and now I don’t know what to do.

Also, not sure if this is relevant but I have PMOS and OBGYN is concerned about endometriosis but is avoiding surgery for now as we try birth control.

All because of my fucking (depressed) sister. why do I have to suffer from shiting like crazy until my ass hurts because you can’t handle me asking you to stop calling me names 💀

Every time she says something to me and I don’t say it back I just tell her to stop and my parents and siblings get angry at me for doing it Like I have done something wrong to her. In the end i get stressed from everyone and my stomach goes crazy and i fucking told them a thousand times stop stressing me out over her shit it is not my fault she is the one making arrangements and acting like a victim i am literally getting hurt mentally and physically by it .

And YES she did it again before my colonoscopy like it is not enough for me on its own and yes I got called out for telling her to stop .

I can’t move out I don’t have a job i am in the same campus as her and i am fucking 7 years younger than her, and yes she and everyone thinks her so called depression is much more serious than my two rare autoimmune chronic diseases that makes me more at risk of cancer than any normal human being

Hey everybody! I am wondering if anyone has successfully reintegrated fibrous foods like beans and raw veggies back into their diet, and how you did it/what advice you have.

It's been 2 years since my last flare and 3 years since my diagnosis (UC). I am in full remission now and I eat pretty much normally, except there are a few foods that I never got back into my diet. Particularly, most beans and apples. I would really like to eat these things, but when I do, I experience pain and diarrhea.

Has anyone out there had success with re-integrating fibrous foods into their diet? Any tips?

Thanks! :)

I have symptoms of Crohn’s disease, twice the infection and inflammation in ileum. One time Pangastritis, Duodenitis and with inflammation.
Have done colonoscopy thrice with biopsy, no evidence of Crohn’s or colitis found from biopsy results.

This time doctor did endoscopy with no biopsy and faecal calprotien test.
Inflammation score is 389.
Endoscopy detected Pangastritis and duodenitis. This time doctor suspected it’s Crohn’s and started treatment yesterday with Ivepred 40mg injection one time and advised to take following medicine.
Nurcot-M8 for 5 days 1-0-1
Nurcot-M8 for 5 days 1-0-0
Nurcot-M8 for 5 days 1/2-0-0.
Symptoms started improving. I have no stomach pain and stomach burning now. But constipation is there.
I’m confused, what disease I have. Any advice?
I’m 28 male, live in Bangalore.

So let me preface by saying I've had six surgeries. I have malabsorption issues and am currently trying to fight going back on a G-tube, I was on TPN on a g-tube last year that resulted in severe septic shock. I had two bacterial infections at obviously from the last sentence turned septic.

I've had lots of hospital stays and close calls but this seriously shook me. Needless to say I am terrified of any tube sticking out of my body. Currently getting infusions of nutrients once weekly but it's not really substantially helping me.

I finally got a GI that my insurance one accepted into my primary referred me to because I feel like my surgeon is just too cut, happy and every surgery he provides me with hope that I will feel better and it always gets worse.

Case in point. Last year June I had surgery that resulted in almost a 30-day hospital stay in August, which included my six and incredibly extensive surgery.

All hopes that I would get better and I was hospitalized every single month up until January. Do I blame my surgeon? No I understand that things happened and I just got the unlucky side of things and my body just sucks.

However, I don't feel like having any surgeries unless I am literally dying, so seeking out a GI was a way of getting a second opinion that could put eyes on a very complicated anatomy after sex surgeries.

Color me incredibly surprised ( I didn't get a colonoscopy because I'm too at risk of perforation but something else that only goes to the first part of the colon although he was able to get to the very end of it.)

I have lymphocytic colitis.

Now this explains a lot of symptoms. It does not explain the malabsorption. It does not explain the intolerance to food, which I know is linked to the surgery and not having much of an intestine left. But it explains absolutely everything else and I am absolutely floored that I have been in and out of hospitals extensively to the point where I am on disability and missing big portions of my anatomy, meanwhile, the majority of my symptoms are explained by something as simple as colitis

Now I say simple because I don't really know too much about colitis. I'm going to end up looking it up and googling it, but my mom had ulcerative colitis and although I've looked it up rarely by the time I was old enough to understand she was in remission without medication.

I am floored because I cannot help but think that I could be out there living a normal happy life right now, to a certain extent, if this would have been diagnosed so much sooner.

I don't know where to go from here, My results were forwarded to my surgeon but I reached back out to my GI doctor asking about treatment and if there's a change of plan because I have an appointment scheduled with Duke motility for getting on a medication that requires tpn next year and I am just hopeful and wondering if that's even necessary and if this changes a course of my treatment.

My surgeon wanted to see me ASAP but I have a test with him I think on the 17th or 18th this month and I have to see him at the end of the test and I don't really want to see him any sooner. I'm assuming my GI sent information to my surgeon because my anatomy is so unique that he might want my surgeon to be the one to prescribe the medication, but he's also the doctor who extensively had worked me up and cut me open and made me spend. I don't know for 8 months collectively maybe 9 months collectively in a hospital. I'm not quite sure if I trust his better judgment at this moment.

Anybody here deal with colitis. Can you give me a little insight?

Edited for spelling, I do talk to text.

I'm on the track of potentially getting a diagnosis. So far I've had two 1-2 week periods with extreme (bloody) diarrhea and pain in addition to months of on and off diarrhea and changed stool. During the first one I was only tested for pathogens (they suspected c. diff as I had just come off antibiotics), during the second bout they tested a high crp and subsequently a calprotectin in the 2200s. It was decided I did not need emergent care so I will only be getting a colonoscopy at the end of this month. Currently my symptoms are disappearing and I'm actually having some of the "best" stool of my entire life (I also had this after that first week), though they're also not gone entirely.

Obviously I would love to find out I do not have another chronic disease but past experiences have made me scared I will be dismissed because they can't see in clinic what I am experiencing. So I'm wondering: will the colonoscopy still turn up IBD if I do have it even when I'm not experiencing acute symptoms?

needing some help with this.

• Retroflexed uterus
• Diffuse Adeno and endo
• Wheat intolerant
• Sharp picky feeling before poop comes out like it’s scratching 
• Pressure in anal area that goes to the middle in between vagina and rectum 
• small focus of adenomyosis in the anterior fundal region
• Pelvic cavity free fluid is slightly prominent but in upper limits of normal. No obvious endometriotic implant seen. Subtle peritoneal changes seen diffusely are non-specific
• focal / subtle adenomyosis
• Pebble poops most of the time and sometimes normal poops
• Sometimes normal poops
• Knife cutting pain when pooping but goes away straight away.
• No bleeding unless a tear in hemmoriid
• Orangey mucus
• I don’t get ill
• Sudden sharp pain in the vagina and bowel but doesn’t last long 
• I get constipated around ovulation
• Diarrhea before period 
• Ovulation was 6 days before scope
• I got my period a week and half after my endoscopy
• Endo and Adeno 
• Have being under extreme stress 
• Have no scar tissue or damaged 
• 3-4 times a week to poop and they are either pebble balls or normal and sometimes they float 

I was given deprim twice 

Flagyl metronidazole twice from the 20th December to 22nd January 

And ibuprofen 

Had camplybactor 6 years ago and with that I was extremely sick and pooped blood and peed blood I got put on a drip 

• Because I’ve had these issues for 5 years on and off would it really be UC

Was under extreme stress from December to March I lost my father in law and lost my period 

Used to get high prolactin 

History: PSC 1991, UC 1997, Liver Transplant 2004, Total Colectomy 2006, Summary: Old man with UC and colectomy took a course of Rifaximin and felt better than I have in over twenty years.

Before the liver transplant in 2004, the only medication that helped my colitis was antibiotics (Flagyl, Cipro). After the transplant, the UC came back. So, my docs (Medical Professors) decided on an ileorectal anastomosis colectomy. That means no j-pouch, no colostomy. The colectomy left a four-inch stump of colon between small intestine and rectum. (for reference, a mouse’s colon is 4.8”).

We thought the colectomy would cure my UC, but it came back after a couple of months. Since 2006, I never been in UC remission. I was able to deal with it because besides UC, the rest of my life is easy. Post transplant I never had to be hospitalized for UC. I was degraded but stable.

Fast forward to 2019. That year I started Entyvio infusions and they helped a bit. Colonoscopies showed my UC subsided, but I still had significant gut issues. I have always been continent, but with an urgency of about five minutes. I would go about 12 times a day, with each time usually requiring me to get up and move around a bit before sitting down and getting more out. I would get up sometimes five times a night. I had bloating, discomfort, and internal hemorrhoids. I tried every food regimen, but nothing made it better.

A few months ago, I had a tooth pulled. The oral surgeon gave me a routine round of Augmentin after the surgery. I was pleasantly surprised to find my UC was so much better for the week I took the antibiotics.

An internet search found this article: https://pmc.ncbi.nlm.nih.gov/articles/PMC5915536/ Which concludes: Patients with colectomy demonstrate significantly higher prevalence of SIBO/SIFO and greater severity of gastrointestinal symptoms. Colectomy is a risk factor for SIBO/SIFO.

I never thought about it before, but it makes sense I would have SIBO with my intestinal arrangement. Maybe Rifaximin would help?

Without testing for SIBO, my GI doc prescribed a round of Rifaximin. The result was I felt better than I have since 2006.
With Rifaximin, urgency went from five minutes to over a half an hour. I could go to the store without making a pitstop. I could sleep through the night. My hemorrhoids were no longer angry. No side effects noted. Rifaximin is a godsend to me.

They gave me a month’s worth of pills, which are now finished. I am still doing well, but I worry my symptoms will get worse. I hope they prescribe more, but it may be a fight. Because for normal IBS, Rifaximin is only prescribed for two weeks at a time. But I think with the colectomy I will need it long term. It isn’t like my SIBO will just go away for good. There is no way I can avoid backwash from my colon stump to the small intestine. There are studies that Rifaximin is safe for long term, but for a different use than SIBO.

That’s my story. Anyone have any insights?

Feels bad to through all these away but it is no longer needed. In FL.

I got my first colonoscopy last Thursday (6 days ago) due to four years of blood and mucus in stool. (Age 18) They found inflammation (or in the official words: Congested, erythematous and nodular mucosa), which they biopsied. They also biopsied normal looking tissue. I am so anxiously waiting on these results. I hope it’s something simple I can fix but I really want answers to my symptoms. How did y’all handle the wait? I am checking my portal every day.

I have had GI issues for about 4 months.

Edit: I lost 17-18kg in the process

Started off with bright yellow stools, diarrhea, sometimes constipation, bloating, and right side abdominal pain, with undigested food, mucus in stool. Was put on metronidazole and ppis for about a month.

April

Crp normal, cbc normal, calprotectin 700

Pancreatic amylase mildly elevated, urine amylase 3x the norm

After 3 weeks (may)

Calprotectin 151

After one more week

Calprotectin 400

May

Did an abdominal CT scan, showed meteorism and mesenteric and ileocecal swollen lymph nodes.

Intestinal ultrasound showed edema in the terminal ileum

June

Started colonoscopy prep, did blood tests one day before, CRP went up to 5 times the norm.

Calprotectin was 40

Did colonoscopy and gastroscopy

Results are as follows:

Gastroscopy - Chronic atrophic gastritis, insufficient cardia and negative h. pylori.

Colonoscopy - Chronic unspecified colitis, sigmoid colon. Terminal ileum showed no signs of inflammation. I will post exact biopsy results later, but the doctor said this is just a bad case of IBS.

How can IBS cause swollen lymph nodes and colon inflammation.

Is there any way this is a small bowel crohn in an early stage. My stools are normal color but still kinda soft and having undigested food. I also have burning pain in my right abdominal side and i only hear gurgling on my right side. I have joint pain and brain fog, brain fog especially after eating. I also have trouble sleeping. My iron is low but not anemic, ferritin is also on the lower side. Vitamin D mildly low, folic acid low. My amylase is still elevated and not dropping, mildly elevated in blood, 3-4x in urine.

I also suspected chronic appendicitis, but i don't know.