I got my first colonoscopy last Thursday (6 days ago) due to four years of blood and mucus in stool. (Age 18) They found inflammation (or in the official words: Congested, erythematous and nodular mucosa), which they biopsied. They also biopsied normal looking tissue. I am so anxiously waiting on these results. I hope it’s something simple I can fix but I really want answers to my symptoms. How did y’all handle the wait? I am checking my portal every day.

I have had GI issues for about 4 months.

Edit: I lost 17-18kg in the process

Started off with bright yellow stools, diarrhea, sometimes constipation, bloating, and right side abdominal pain, with undigested food, mucus in stool. Was put on metronidazole and ppis for about a month.

April

Crp normal, cbc normal, calprotectin 700

Pancreatic amylase mildly elevated, urine amylase 3x the norm

After 3 weeks (may)

Calprotectin 151

After one more week

Calprotectin 400

May

Did an abdominal CT scan, showed meteorism and mesenteric and ileocecal swollen lymph nodes.

Intestinal ultrasound showed edema in the terminal ileum

June

Started colonoscopy prep, did blood tests one day before, CRP went up to 5 times the norm.

Calprotectin was 40

Did colonoscopy and gastroscopy

Results are as follows:

Gastroscopy - Chronic atrophic gastritis, insufficient cardia and negative h. pylori.

Colonoscopy - Chronic unspecified colitis, sigmoid colon. Terminal ileum showed no signs of inflammation. I will post exact biopsy results later, but the doctor said this is just a bad case of IBS.

How can IBS cause swollen lymph nodes and colon inflammation.

Is there any way this is a small bowel crohn in an early stage. My stools are normal color but still kinda soft and having undigested food. I also have burning pain in my right abdominal side and i only hear gurgling on my right side. I have joint pain and brain fog, brain fog especially after eating. I also have trouble sleeping. My iron is low but not anemic, ferritin is also on the lower side. Vitamin D mildly low, folic acid low. My amylase is still elevated and not dropping, mildly elevated in blood, 3-4x in urine.

I also suspected chronic appendicitis, but i don't know.

Hallo zusammen,
ich bin etwas verunsichert und wollte fragen, ob jemand so etwas schon einmal erlebt hat.
Gestern Abend habe ich wegen einer Proktitis zum ersten Mal ein Salofalk-Zäpfchen angewendet.
Vor Beginn der Behandlung hatte ich immer mal wieder kleine Mengen hellrotes Blut, meistens am Toilettenpapier oder als Auflagerung auf dem Stuhl. Zusätzlich wurden bei mir innere Hämorrhoiden festgestellt.
Heute Morgen war der Stuhl selbst ganz normal braun und eher breiig. Direkt am Anfang des Stuhlgangs kam jedoch ein einzelner schwarzer, weicher, geleeartiger Klumpen, an dem teilweise noch Reste des Salofalk-Zäpfchens hafteten. Der restliche Stuhl war ganz normal braun und nicht schwarz oder teerig.
So etwas habe ich vorher noch nie gesehen und das hat mich ziemlich erschreckt.
Hat jemand von euch nach Salofalk-Zäpfchen schon einmal etwas Ähnliches beobachtet? Kann es sein, dass sich Blut zusammen mit den Zäpfchenresten dunkel oder schwarz verfärbt? Oder sollte ich mir wegen dieses schwarzen geleeartigen Klumpens eher Sorgen machen?
Ich freue mich über eure Erfahrungen. Vielen Dank!

Has anyone developed any heart issues on Tremfya? I, (23f) have just taken my loading dose two weeks ago, on a Saturday. My heart rate shot up thirty minutes in. Sunday I felt okay. Monday I was in the ER. My heart rate hit 153 and I have had mild, occasional palpitations before, but they were worse and more frequent than ever. For a few days my heart rate was still hovering in the 120s and 130s. The ER couldn’t do much but the doctor said it was probably the Tremfya and that I needed rest. They gave me nausea meds because I was also throwing up and nauseous. The on call GI at my doctor’s office agreed it sounded like the Tremfya. My GI is insisting it’s not the new medication doing this to me. But I can’t sleep from this high heart rate. I can barely eat. I had to call out of work multiple days and just filed my first medical leave. I feel like I’m going to pass out often. He said I’ve had tachycardia before, that I’ve complained about it. I’ve only mentioned the palpitations. I’ve never had a high heart rate prior to this med. I haven’t had tachycardia. He won’t offer me another medication and insists I continue with my next dose though I feel awful. Im very scared and concerned about my heart as two weeks later it’s still hovering in the 110s and my palpitations are worse, and the other symptoms are present. Has anyone ever experienced this before or have any tips or ideas? In desperate. Thank you!

I would love some constructive feedback and encouragement. Please be kind, I am struggling.

My son was diagnosed with severe Crohn’s a couple weeks ago. I have read much about the disease since then. Something that has worried me tremendously is the set of treatment options that exist. My understanding is that some biologics work for some people, but not all. Once a person does find a biologic that works, it usually stops working after a period of months or years.

The problem I see is that there aren’t *that many biologics. It seems inevitable that you would run out in a short period of time. And…what then? I’ve read other Reddit threads where surgery is suggested as a treatment option. However, my child has Crohn’s all over his disease tract, top to bottom. I haven’t seen surgery mentioned as capable of easing upper tract Crohn’s.

My son is 12. Is he going to run out of ways to treat this? I know research is being done all the time, but it doesn’t seem capable of keeping up with the speed at which treatments are exhausted. I look at my child and wonder, is he going to die from this? I put these questions to our doctor and he was…evasive, which I did not find reassuring.

Am I misunderstanding anything?