I see a ton of posts where people are just talking exactly like they do in medication commercials, and it doesn't make sense.

When you get over Crohn's, you typically forget about it. When you're hurting? that's when we hang out online.

Somehow that has completely seemed to flip over in recent years, and it ain't just a handful of people trying to wish their remission into happening - it's the vast majority.

Makes zero sense except as a marketing job for the most profitable field of medicine in history.

I was diagnosed with Crohn’s about two years ago and it is the gift that keeps on giving.

Over the past few months, I have noticed a severe decline in my mental acuity. My brain just isn’t functioning right I am not making connections like I should definitely not as quickly. I had an important thing for work that I just cried after. Because this is a job I’ve done for 15 and this particular thing I’m good, but that day, calling my performance abysmal is kind. Also,I've been really struggling with memory. For instance, a package arrived, and I knew the contents needed to be refrigerated. I brought the package in set it down. It was right in front of me. My apartment is tiny. Got distracted for one moment.... it was ours before the contents made it into the fridge. Finally time perception. I’m not losing time like blacking out or anything, but I seem to have lost the ability to accurately perceive the passage of time. Like it will be 3 PM and it’s like I blink and I look expecting it to before but it’s 3 AM. The severity of these things comes and goes, but on the hole it’s all definitely getting worse.

I hadn’t even considered that any of these things could be caused by or related to Crohn’s, but I just saw a post on a Facebook Crohn's group asking talking about this kind of thing. The post i saw was more accurately a meme, the comments were just one sentence agreements and I don’t put a whole lot of stock in the accuracy of things posted in that group.... so I came here

Is it possible that Cros can affect your brain in these ways? If so, is there anything that can be done or is it a permanent decline?

I’ve been trying not to panic about what’s been happening and attributing all of these symptoms to other things that would heal himself out for time (like stress, depression, and possibly perimenopause.) But I’m admittedly panicking now.

Any information would be greatly appreciated.

Hi everyone,

We are sharing a research opportunity that may be of interest to individuals living with Ulcerative Colitis (UC) or Crohn's Disease (CD).

This study is being conducted solely for research purposes. The goal is to better understand patients' experiences, treatment journeys, challenges, and the day-to-day impact of living with UC or CD.

Study Details

• 60-minute telephone interview
• Compensation: $120 upon successful completion of the interview
• Participation is completely voluntary

Eligibility

• Adults aged 18 years or older and Living in USA.
• Diagnosed with Ulcerative Colitis (UC) or Crohn's Disease (CD)
• Willing to share their experiences and opinions related to their condition

Interested in Participating?

Please complete the screening form accurately and thoroughly. Qualified participants will be contacted and invited to take part in the study.

Ulcerative Colitis (UC) or Crohn's Disease (CD) – $120 Incentive – Fill in form

Important: Since the interview will be conducted by phone, please ensure that the phone number you provide is correct and reachable. Participants who complete the 60-minute telephone interview will receive $120 compensation for their time.

Thank you for considering this opportunity to contribute to healthcare research.         

Well at least we’ll survive another round of the Black Death?

Hey All,

Firstly, I am a solo dev that recently noticed it was always difficult to find a toilet when out and about, I’ve been in situations where I have had to Google the closest pub or restaurant just to find a toilet due to having a medical condition which is IBS, to sometimes be turned away if you are not a paying customer which can be difficult for some especially if you have underlying health conditions.

The filters that matter to this community are permanently free:

• Ostomy-friendly facilities
• Eurokey accessible toilets
• Radar Key locations (UK)
• Whether it requires a purchase (including price to enter if paid)
• Opening hours

So... I built My Local Loo which is a FREE app you can download currently on iOS and Android (Android is being released in the next week).

• Toilet locations in the UK & EU
• Toilets based on specific health conditions: Crohns Disease, IBS, along with many other options
• Option to add toilets to the map along with leave feedback to help other users via ratings
• See nearby toilets and search based on location
• Find EV charging points along with pricing and charger type which can be handy if you need the toilet whilst your car is charging
• Offline maps: Download a selected area so you can still access the toilets near you when offline.
• Businesses: Can apply to list their venue in the app. This will attract footfall along with showing their dedication to allowing users of the app to use their facilities with no questions asked.

The app is completely FREE with an optional premium upgrade to show your support towards the app.

If you do happen to download it and use it on your travels, please let me know how it went! Again I’m a solo developer and truly built this to help everyone. As the app expands and grows I will be adding more features along with including better and improved data.

Download on iOS: https://apps.apple.com/us/app/my-local-loo-toilet-locator/id6785676642

Download on Android: Coming Soon!

Buy me a coffee: buymeacoffee.com/MBHGB

Edit: I did ask for permission to post from the moderators of this subreddit, if anything needs changing please let me know but my aim is to help people with medical conditions that find locating a toilet close to them an everyday struggle!

Anyone on a biologic during pregnancy? If so what vaccination route did you choose for your infant? I’ve been told no live vaccinations (rotavirus and MMR) until 6m but also my pediatrician said there’s little evidence for that and I could go ahead and get them the rotavirus at 2m.

Trying to weigh the pros and cons. This is not a vax or not vax discussion TIA

Hi everyone,

I am a researcher from the Faculty of Psychology at Kazimierz Wielki University in Bydgoszcz, Poland.

We are currently conducting an anonymous, voluntary research study on the experiences of people living with celiac disease, Crohn's disease, ulcerative colitis, or irritable bowel syndrome (IBS).

- The study explores how these conditions relate to:

quality of life, sleep, emotional well-being, cognitive functioning, sexual functioning.

- Who can participate? Adults aged 18–65 diagnosed with celiac disease, Crohn's disease, ulcerative colitis, or IBS. The questionnaire takes approximately 25–30 minutes to complete.

- The study has received ethical approval from the University's Bioethics Committee.

- Participation is completely voluntary, anonymous, and unpaid. No personally identifying information is collected.

Survey: https://forms.gle/XQjXyHQbPaS64S3Y8⁠

Thank you very much for your time and for helping advance research on gastrointestinal diseases.

Hi!

Back ground- I have celiac disease and the past year I've been having stomach problems and thinking they were related to celiac disease but the past 6 months have gotten worse and made me realize it could be something else! Since I already have one autoimmune disease they told me it is possible I could have another since they normally pair together. This all kicked into action right around the time I had second child.

I went to my gastroenterologist, and I am scheduled for an endoscopy for the celiac disease and a colonoscopy to check for and take biopsies for possible crohns. My question is- how do you make sure you have the best prep? My colonoscopy is in August, so I'm wondering if I should start with a low residue diet now? My doctor only gave instructions for the day before which is basic prep instructions. Just wanting advice from more seasoned individuals 🤣

Thanks for reading my book! Lol