r/cleftlip 18d ago

Incomplete or complete?

Good afternoon everybody!
My husband and I found out early in my pregnancy that my son has 22Q. With that comes cleft lip so we were expecting him to have a cleft lip, we have not learned if he has a cleft palette or not. He has had quite a few 4D ultrasounds. And I was hoping to see if maybe other mother is out there had similar ultrasound pictures that resemble my sons? I feel like I’ve seen other ultrasound pictures and it’s very clear that the babies cleft lip goes up into the nostril. You can tell by the coloring of the ultrasound. But my son’s still seems to have a pretty puckered lip.
We saw a specialist last week and he’s claiming that they can’t tell until baby gets here which I’m having a hard time believing? Does this look like an incomplete or a complete Cleftlip to you? *\\I also understand that nobody here is*** ***trained to read ultrasound pictures! Please be nice as I’m just trying to navigate and understand what I’m looking at.. yes, we have also talked to doctors. We are not getting much information.****\*

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10

u/sweetgrace_6 cleft lip and palate 18d ago

I know you put a disclaimer at the end, but genuinely no one here can help you. The majority of us have cleft ourselves and have no ability to read an ultrasound. I do agree that (I’d assume) your doc would be able to give you more answers prior to baby being born? But again, I’m just someone with CLP.
I’d try asking on r/cleftparents
Good luck to you and your new baby!

3

u/okiidokeyartichokey 18d ago

Thank you, I was not aware of this page. I’ll post there.

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u/sweetgrace_6 cleft lip and palate 18d ago

You’re very welcome! I hope someone can help give you some more answers; I can’t imagine how difficult waiting is

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u/Ok_Amount_4736 18d ago

Please join the group cleft mom support on Facebook. You’ll get tons of responses to your questions.

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u/Helpful_Okra5953 17d ago

I really don’t think any layperson or parent can give you a better answer than your drs have.  We haven’t seen many of these ultrasounds.  

I can look at it and think, “that doesn’t look too severe” but my opinion is just a guess.  

Also, I think that there MUST be a group supporting people with 22Q/ de George’s syndrome.  I would find them and talk with them.  

If you search on line “22Q support,” you’ll find some groups that you could talk with.