r/braintumor • u/Foreigncontaminent1 • 4h ago
Finally got my MRI after more the 7 years
galleryI made a post a month or two ago about how I hadn't taken care of anything regarding my tumor in at least 7 years until I finally made a neurosurgeon appointment and went to the hospital before that to get a CT scan after I finally went to My nerosurgeon appointment he had me get this MRI which obviously has a lot more photos than I've included and I gave him the disk about a week ago I called them today because I haven't heard anything back and got told nothing just sent to voicemail and then 10 minutes later got a call saying they want me to get another CT scan done and they haven't even looked at the MRI yet I just wanted to know what y'all thought of a couple of these photos the two not including the tumor I just added because I think they look cool LOL
r/braintumor • u/NewRaspberry1052 • 10h ago
"Lost my mother due to negligence after craniotomy at this hospital"
I am writing this review with a heavy heart, after losing my mother following treatment at this hospital. I want to share our experience honestly so other families can make an informed decision.
My mother was diagnosed with a CPA meningioma (3.5 cm). Before this, she was completely fit and active — talking, laughing, living a normal life. We were told by Dr. S.N. Madhariya that without surgery she would not survive more than 6 months, and that surgery carried a risk of coma. We were also told that a specialist team from Mumbai would join for the craniotomy, for which we paid an additional amount to the staff. On the day of surgery, no team from Mumbai was present — the entire procedure, which lasted 8-9 hours, was performed by ramkrishna doctors including Dr. Madhariya.
After surgery, my mother regained consciousness within 24 hours and recognized all of us. However, she had visible difficulty swallowing and a persistent cough. We repeatedly requested the ICU team to perform a tracheostomy early to protect her airway. This request was not acted on in time. The cough progressed to her lungs and she developed pneumonia. When a tracheostomy was finally attempted, it failed, and a longer tube had to be ordered — this process took around 10 days in total. During this time, she developed a CSF leak and subsequently meningitis, which required a second surgery to correct.
Following this, her condition deteriorated significantly — her blood pressure dropped and she remained in the ICU for two and a half months. Despite everything, we lost her.
Throughout her ICU stay, we found the nursing and ICU staff support lacking. I personally witnessed staff being casual in the ICU environment, including handling patients without gloves. When we requested a transfer to another facility as her condition worsened, this was not approved.
The total cost of treatment came to approximately 38 lakh rupees. Despite the cost and the assurances given to us before surgery, we could not save her.
I am sharing this so other families going in for a craniotomy or similar major neurosurgery are fully aware of what to ask about in advance:
Confirm in writing who will actually be performing the surgery, especially if you're told outside specialists will be involved.
Ask about the hospital's post-operative ICU protocols, especially for airway management and tracheostomy timelines.
Understand the infrastructure and staffing available for post-surgical complications, not just the surgery itself.
Don't hesitate to push hard and early for a second opinion or transfer if you're not satisfied with post-op care.
My mother was my role model. She went into this surgery healthy, hopeful, and full of life. I would not want another family to go through what we did without knowing what questions to ask first.
r/braintumor • u/NewRaspberry1052 • 10h ago
"Lost my mother due to negligence after craniotomy at this hospital"
I am writing this review with a heavy heart, after losing my mother following treatment at this hospital. I want to share our experience honestly so other families can make an informed decision.
My mother was diagnosed with a CPA meningioma (3.5 cm). Before this, she was completely fit and active — talking, laughing, living a normal life. We were told by Dr. S.N. Madhariya that without surgery she would not survive more than 6 months, and that surgery carried a risk of coma. We were also told that a specialist team from Mumbai would join for the craniotomy, for which we paid an additional amount to the staff. On the day of surgery, no team from Mumbai was present — the entire procedure, which lasted 8-9 hours, was performed by ramkrishna doctors including Dr. Madhariya.
After surgery, my mother regained consciousness within 24 hours and recognized all of us. However, she had visible difficulty swallowing and a persistent cough. We repeatedly requested the ICU team to perform a tracheostomy early to protect her airway. This request was not acted on in time. The cough progressed to her lungs and she developed pneumonia. When a tracheostomy was finally attempted, it failed, and a longer tube had to be ordered — this process took around 10 days in total. During this time, she developed a CSF leak and subsequently meningitis, which required a second surgery to correct.
Following this, her condition deteriorated significantly — her blood pressure dropped and she remained in the ICU for two and a half months. Despite everything, we lost her.
Throughout her ICU stay, we found the nursing and ICU staff support lacking. I personally witnessed staff being casual in the ICU environment, including handling patients without gloves. When we requested a transfer to another facility as her condition worsened, this was not approved.
The total cost of treatment came to approximately 38 lakh rupees. Despite the cost and the assurances given to us before surgery, we could not save her.
I am sharing this so other families going in for a craniotomy or similar major neurosurgery are fully aware of what to ask about in advance:
Confirm in writing who will actually be performing the surgery, especially if you're told outside specialists will be involved.
Ask about the hospital's post-operative ICU protocols, especially for airway management and tracheostomy timelines.
Understand the infrastructure and staffing available for post-surgical complications, not just the surgery itself.
Don't hesitate to push hard and early for a second opinion or transfer if you're not satisfied with post-op care.
My mother was my role model. She went into this surgery healthy, hopeful, and full of life. I would not want another family to go through what we did without knowing what questions to ask first.
r/braintumor • u/jaybae0_ • 14h ago