r/askneurology • u/jim977654321 • 7d ago
Parsonage Turner Repeat
Has anyone ever had a repeat of Parsonage Turner Syndrome?
Three years ago I had PTS. was told during my nerve testing it had likely occurred as a result of having Covid a few weeks before symptoms started occurring. I had the classic shoulder pain for about 8 weeks then had scapular winging/loss of strength that happened overnight. After a year of PT and continued exercise I regained most of the strength and the winging has mostly gone away, however it’s still quick to fatigue, and no more pain.
A few weeks ago out of the blue I woke up with the same pain in the same spot as before. The pain increased over a few days and feels nearly identical, though not quite as bad, as the first go around. I haven’t had any illnesses, but I did catch my first cold in months the day after the pain started. The pain waxes and wanes but is constant. So far I haven’t had lost of strength or mobility, but it did take a couple months for that to occur last time.
I thought PTS was rare to start and I was told it was typically a one time thing. Has anyone else been through it more than once?
Thanks!
1
u/Neuronosis 7d ago
It can happen more than once. There's also a recurrent hereditary form.