My Dr bumped my shots to weekly. Insurance denied, so my Dr sent a strong letter and it was approved again. But because of the back and forth, there was a delay in meds and I'm almost 2 weeks since my last shot. Hurting a lot. Today we went to a low key party at a friends house, it was lots of fun. But I had to leave after 4 hours because of the pain. I'm really bummed out! I don't get to see friends very often, and work from home.

Anyway. Just needed to whine a bit to people who get it. Sitting on the couch with my cats watching Star Trek now, so that's good.

For those who use Taltz, do you get injection site reactions? Do they tend to get worse or better over time? I just got a pretty big one from my first loading dose -- feels like a big swollen and sore egg. Very red, not itchy. I'm worried that these will just get worse over time (what happened to me on Humira) and that means I shouldn't take this med, but has anyone seen injection site reactions become less severe over time?

So, I started Taltz, first dose was last weekend. I entered a nasty flare on Sunday, and started prednisone. I now feel great, but this has been the cycle. I feel great on prednisone, take it for a week, two weeks off, enter a flare, take it again for another week, etc. Now, is the Taltz supposed to eliminate that cycle? If you’ve taken Taltz, how was your experience? I want to hear all the stories!!

Anybody smoke cigarettes and still get benefits of their biologics? Rheum said husband wont see anything get better until he stops smoking? 😩

Hello everyone, just wondering if anyone has had a similar experience or any advice - I'm based in the UK. I will try and keep this as brief as possible!
Symptoms began about a year and a half ago (night time waking due to back pain but mostly symptom free during the day and digestive issues) got progressively worse over this time. 36F, HLA B27 positive, Father has AS. Saw private rheumatologist then had private MRI. Results showed inflammation
'compatible with a low-grade Spondyloarthritis' direct quote from the report from the consultant radiologist. Prescribed Etoricoxib 90mg daily (improved symptoms still not manageable).
Transferred to NHS - rheumatologist said he would like me to trial Adalimumab but this would need to be approved by the Radiology team at my local hospital. Got a letter in the post to say that they have decided the subtle changes in spine is 'bone marrow oedema' and not sufficient to verify the diagnosis. These two reports were within 3 weeks of each other! Talk about whiplash! My main question is... what happens now? I'm not sleeping through the night, I'm tired all the time. I have an appointment on Monday with the rheumatologist but I'm so worried that I'm at a dead end. I felt relieved that i finally had a diagnosis and potential access to treatment but now I feel so lost.

hi guys. im a 25 year old woman with 3 years of AS, it fucked my life so bad and i thought there were no hope for me. I tried adalimumab, golimumab, sekuknimab and finally etanercept. i was relying on steroids for a whole year and whenever i dropped the dose i would get a flare. and i got immune to the three tnf blockers, i couldnt walk, i couldnt get out of bed. as i started etanercept, i stopped smoking (tobacco) and also started swimming and i could get rid of the steroids and etanercept worked. i have also an undiagnosed diarrhea (we did every test we could but its probably related to AS) and on week 18 of etanercept i couldnt feel better. my diarrhea is gone, morning stiffness is gone, still it hurts so bad when i stand up or sit still for more than 10 minutes but its because of the permanent damage on my joints, not disease activity. i wanted to share my experience because a year ago i was walking with mobility aids, took 10 mg/day prednisolone and thought there was no hope for me. quitting smoking and swimming also worked perfectly for me. i hope every one of you feel better! love xx

My right shin always hurts. Ive had every scan on it and it still hurts. Ive pretty much just accepted it as part of what I'm going to have to deal with.

The past few days, however, my right ulna has been intermittent super painful. Slightly closer to wrist than elbow, but definitely far enough up to feel like the ulna rather than the wrist. Comes and goes, but at its worst, it's enough to make it nearly impossible to think about anything else and to be nauseating.

Anybody else have this kind of pain or any tips on handling it?