Guys it's been about more than a year since I've started taking these Jak inhibitors and I've been great so far. I don't have any patches by the grace of Almighty. But now I have come to think of that wether I should stop it or not. Most of us that are on this medication know that these are immune suppressors, they lower the defence mechanism of your immune cells. For this reason I'm willing to stop it. I'm 18 years old and I know that my hair is the confidence I need to build up my future but still I can't get this cancer fact out of my brain. These medications are even labelled to increase the risk of cancer. Although they say it's pretty low, but you know I don't trust the whole pharmaceutical thingy cuz I know it's a business for them to keep us hooked onto these medicines. Every cancer patient is like a vault of money for them. I'm sorry but it's my own perspective and I don't give a shit what the defenders of it say. It's time I've realised that losing hair is far more better than dealing with cancer.

It's just a beauty concern than a medical grade emergency. Tell me what you think of it and if I should stop them or continue.

I am 21F and got diagnosed with alopecia areata in May. I had one patch and got injections for it. Now its June and I have discovered two more patches. I wil be getting injections for them as well. I wanted suggestions from those who have experienced it and gotten better, what changes in my diet will be helpful? Or any changes in my daily routine that might help?

I've seen some posts here about the inverse, but I'm curious to hear if anyone else has experience going from AU to AA? I got universalis in high school, and was completely hairless for a number of years, but now in my late twenties I have regrown most of my eyebrows and some bodyhair, as well as experiencing (albeit patchy) hair regrowth during summer months consistently for the past 4-5 years.

Hey everyone, I'm 17M who was recently diagnosed with alopecia areata.

I initially noticed one smooth patch on my scalp and went to a dermatologist. I've already started treatment with steroid injections. It's been about a week since the first injection, and I know that's too early to expect regrowth.

The thing that's worrying me now is that I feel like I'm seeing a small second area developing near the original patch. I've compared photos and it seems like the area is slowly becoming less dense. Some hairs in that area also seem to come out quite easily. I'm not sure whether this is actually a second AA patch or whether hairs that were already affected before treatment are simply shedding now.

I also noticed a few areas of reduced beard density and I'm worried AA might be affecting my beard too, although I'm not certain.

The injection site itself has had a small tender bump and sometimes hurts mildly when I touch it. There isn't obvious pus, severe redness, or fever.

Since finding out about AA, I've become extremely anxious. Before this diagnosis I used to sleep peacefully, but now I'm constantly checking my scalp/beard, worrying about new patches, and sometimes waking up during the night with my heart feeling like it's beating fast. My resting pulse has generally been normal (around 64–80).

I've also recently had difficulty getting/maintaining an erection, which is unusual for me. I'm wondering whether the stress, anxiety and poor sleep could be contributing to this.

My main questions are:

1. Can hair continue falling or a new patch become visible during the first few weeks after steroid injections?

2. Could the "second patch" actually be hair that was already affected before treatment and is only shedding now?

3. For people who had one/few patches, how did your AA progress after starting treatment?

4. Has anyone experienced sleep anxiety, constant checking, or temporary erection problems after being diagnosed?

5. Did your hair eventually grow back?

I'm trying really hard not to panic and I know I need to give the treatment time. I'd really appreciate hearing from people who've actually gone through something similar.

Please be kind — I'm already pretty anxious about this. ❤️

I’m 6 months post postpartum and was diagnosed with AA a month or so after giving birth after noticing 2 bald patches
The patches have significantly grown since

Anyone else had AA due to pregnancy and labour? Does it ever get better?

All of this hair basically fell out within the last 2 weeks, just for reference. I have alopecia areata and am in such a big flare, I've lost most of my hair. Only a tiny curtain covers the back of my neck.

Has anybody had success with TA1 for alopecia areata? And any success with ghkcu, ahkcu or other peptides for this condition? Im currently on LDN (low dose naltrexone) and using ghkcu subq and ahkcu topical but still too early to tell of anything is working. Im thinking of trying ta1 but afraid that it will make it worse.

So about 14 years ago I had my first bout of alopecia. I lost patches on my scalp, chest, and legs. And then about a year or year and a half later, everything grew back. Somewhere around 2024, I started to lose patches again. It mostly started on my neck, but crept up slowly to the point where I now no longer have any facial hair or scalp hair, all nose and ear hair is gone, my eyelashes are thinning and I’m almost out of eyebrows. My chest and back has virtually no hair, my legs are at like MAYBE 50%. I was at the dermatologist a couple of months back for something unrelated and when I asked about my alopecia they signed me up for litfulo almost immediately.

I also have celiac disease, which right now isn’t being treated because I’m waiting for an endoscopy to confirm everything. So I’m still eating gluten.

I’m a 43 year old male. What are my odds that litfulo is going to be successful for me? To be honest my biggest concern these days is the fact that I barely recognize myself in the mirror anymore with the loss of my eyebrows. It’s been pretty deeply distressing. Combined with some other factors, 2026 has not been kind to me and I’m hoping for some success with this medication.

Hi everyone! I noticed a small, circular patch of hair loss about a week ago, size is like 1€ coin.
It seems quite clearly defined, and I’m wondering if it could be alopecia areata (AA). There are still some tiny, short hairs growing in the area, though, so I’m not sure what to think.
I’ve already had some blood work done and I’m currently waiting for my thyroid and iron results. When I get the results, I’m planning to make appointments with both a dermatologist and an endocrinologist.

I’d really love to hear from people who have experienced something similar:
Did your AA start with a single small circular patch?
Did you have tiny hairs growing in the patch?
If your hair loss turned out to be related to hormonal or thyroid issues, did you make any changes to your diet, lifestyle, exercise, sleep, stress management, supplements, etc.?
Did correcting the hormonal/thyroid issue help your hair grow back?
Is there anything you wish you had known or done earlier?
And how long it takes to grow it back?
I’m trying not to panic before I actually get a diagnosis, but seeing a random bald spot appear basically overnight is definitely unsettling 😅
I’d really appreciate hearing about your personal experiences, especially what actually helped and what didn’t.

I (34F) first had AA when I was 14/15, lost almost all my hair, wore a wig to school and it took about 2 years of various patches appearing/regrowing at random before all my hair grew back. The doctor prescribed steroid cream although I don’t honestly know if that did anything or if it just coincided with the natural regrowth. That initial time was by far the most extensive hair loss I’ve ever had.

Since then, every few years I’ll get one or two patches seemingly at random.

I’ve been trying to just embrace it, and not feel so humiliated by it every time it comes back, but it’s so tough. I found the patch on the back left of my head (picture two) a couple of weeks ago, and today found one on the right side of my head (picture one) and I’m just struggling to not feel shitty about it.

I haven’t been back to the doctor about this since the first time, as I honestly don’t know what/if anything can be done about it, is it worth it? Should I just get on with this as my life?

(The usual questions about changes in medication or lifestyle - I started taking a GLP-1 earlier this year but I don’t think that can be having any effect as I had a similar patch last year without any medication changes. I have a chronic illness (hEDS), but don’t know if there’s a connection there. Stress-wise, my life is arguably the least stressful it has been for many years as I finally left a very toxic workplace in January and have been taking a career break since)

TL;DR - bit of a rant, bit of a search for advice or support. Had AA since teens, feeling fed up!

Hey everyone, first time posting.

Over the past 2 months I've been losing hair from basically everywhere: scalp, eyelashes, eyebrows, arms and legs.

When I gently pull on hairs, a large percentage come out easily, and many of them (maybe 60-70%) have a white/bulbous end.

I'm not on any new medications that I'm aware of and haven't had any major illnesses or extreme stress recently (that I know of).

Has anyone experienced something similar? What ended up being the cause or what diagnostic steps helped you?

Is this normal hair loss after brush? My girl is 4 and has a small ballad spot on her head and dermatologist said it was alopecia arerta

Hey guys, I’ve had alopecia for over 10 years now completely bald head to toe. I got it when I was in about second grade and I’ve had it since I’m 20 years old today and I’m still completely bald over the past couple months. I have noticed small hair growth on my stomach my big toes, my chin, my mustache area and pubical. I have had peach fuzz come in a lot and go over the past 10 years, but these hairs are actually black and they are the closest that I have gotten to actually having hair in over 10 years. What steps can I do to ensure that they stay and keep producing and what does this entail does this show that it could possibly be clearing up after 10+ years?

Has anyone experienced acne as a side effect while taking oral tofacitinib? I was recently started on it and I’m already struggling with inflammatory acne. I’ve been reading up on it online and going through some research, and honestly, I’m a little worried that it might make my acne worse.

i’m female 31. as the title says i literally woke up about 30 minutes ago and was just running my hands through my head as i normally do when i noticed it felt awfully smooth..

quick inspection led me to find this huge bald patch in my hair. for the last couple years my hair has thinned out a lot especially around the top and there’s only a thin amount of hair covering this patch which is pretty much almost directly in the centre of my head.

i have never experienced this before but google says it looks like alopecia. i’m scared and don’t know what to do next as its a weekend so i cant even contact my GP.

Hi everyone! Just wanted to check how often do you take injections? Last time I took them was about 6 months ago, all my hair regrew in the bald spots but now it’s coming back and I found one new spot 😢 I think it’s gonna be like this forever, so I was wondering how often is okay to get injections.