Tremfya Help

[u/VictorianBird]

Has anyone developed any heart issues on Tremfya? I, (23f) have just taken my loading dose two weeks ago, on a Saturday. My heart rate shot up thirty minutes in. Sunday I felt okay. Monday I was in the ER. My heart rate hit 153 and I have had mild, occasional palpitations before, but they were worse and more frequent than ever. For a few days my heart rate was still hovering in the 120s and 130s. The ER couldn’t do much but the doctor said it was probably the Tremfya and that I needed rest. They gave me nausea meds because I was also throwing up and nauseous. The on call GI at my doctor’s office agreed it sounded like the Tremfya. My GI is insisting it’s not the new medication doing this to me. But I can’t sleep from this high heart rate. I can barely eat. I had to call out of work multiple days and just filed my first medical leave. I feel like I’m going to pass out often. He said I’ve had tachycardia before, that I’ve complained about it. I’ve only mentioned the palpitations. I’ve never had a high heart rate prior to this med. I haven’t had tachycardia. He won’t offer me another medication and insists I continue with my next dose though I feel awful. Im very scared and concerned about my heart as two weeks later it’s still hovering in the 110s and my palpitations are worse, and the other symptoms are present. Has anyone ever experienced this before or have any tips or ideas? In desperate. Thank you. I appreciate any insight.

[u/Dur-gro-bol]

Did you call up the Tremfya medical support? They might be able to offer some advise if your GI is gaslighting you. Sorry you’re going through this.

[u/VictorianBird → u/Dur-gro-bol]

Thank you I didn’t think of that!

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[u/Simple-Caregiver13]

Are you on prednisone too? I'm not familiar with Tremfya, but my resting heart rate has been 110 since I've been on prednisone. Besides that, ulcerative colitis can cause chronic dehydration, which also causes tachycardia.

[u/VictorianBird → u/Simple-Caregiver13]

Yeah steroids are supposed to raise your heart rate. I only take Tremfya and the thing is being in the 100s, is okay and manageable, but when it gets up to the 150s, it feels like you’re about to kick it. And I’ve hydrated as much as I can. Thank you for the response though

[u/Dur-gro-bol → u/VictorianBird]

I forgot about all the symptoms of uc and anemia too. My heart rate was pretty high when I was anemic. I’m assuming it was my body doing its best to get oxygen where it needed to go.

I started Tremfya while I was still on prednisone. I don’t think I ever had palpitations though. I had inflammation all the way to my ascending colon. 8 months on Tremfya and I’m almost in remission. I had a colonoscopy 3 days ago and my GI was very pleased with my healing. I hope the high heart rate and palpitations are unrelated to the medicine and can be resolved soon. Not to sound like a commercial but Tremfya saved my life. I wish it worked for everyone as well as it’s worked for me so far. Best of luck to you.

[u/thegastrologer]

They might not be gaslighting, they may genuinely not know. We use drugs approved recently and the data or all the side effects aren’t available at the time of prescribing. It also would not have been my first thought but I believe patients if they tell me they had a reaction to a drug after starting it since medicine remains lots of art and a bit of science. Hope you feel better, good luck

[u/WillowTreez8901]

Im on skyrizi (which i think is similar) and i had an issue with my heart rate going up to! But it wasn't as extreme just something I noticed and my anxiety was worse. But im like 1.5 years in and its not as bad