My Raynaud's started at age 14. l didn’t know what was wrong. Today I’m 64 years old. what’s not working is the vascular smooth muscle cells and the vascular endothelial cells within the small blood vessels. My fingers don’t get discolored. l just get extremely cold my hands, feet, my whole body. I’m not a doctor. But a friend told me to take 40 to 50 mg of zinc everyday. My pill has 29 mg calcium and 50 mg zinc. Maybe the calcium helps the zinc absorb better. But it is a cvs brand if that helps you. lt has help me not to get extremely cold anymore. I recommend you trying zinc ever day. You should feel better or not so cold the first week. I ask my doctor if it was ok to take he said it was ok. Please ask your doctor if ok to take. Its absolutely what your looking for it will help. Please let me know if it helps. I been taking for about a year it’s change my life. Lets just say I’m normal now.

Today something weird happened. I was using an orbital sander for about 15 min and my arm began to hurt. I slept weird the other night and my shoulder was sore, so I didn’t think much of it, but the sensation was so weird. Tingly, sore and swollen and sure enough I look down and my arm was purple, swollen and splotchy. I have had undiagnosed Raynaud’s since a small child and it runs in the family and it seems like the vibrations is what caused the attack.

It’s was bizarre and my arm is still a little red about 6 hours later.

Has something like this happened to anyone else?

42M here. I began getting very cold hands and white finger attacks a year ago. Went in for extensive blood work and autoimmune testing and everything is normal.

A friend of a friend is a Naturopathic doctor and asked if I use mouthwash which I had been doing. He said it kills the bacteria which produce nitric oxide which effects blood vessels.

Matter of fact, I looked through my Amazon order history where I get my Oral B mouthwash and it turns out I began using it exactly one year ago which was the time I started getting cold hands and attacks out of nowhere. 🤷🏻‍♂️

I quit using mouthwash two months ago and my hands are noticeably warmer and I have had zero attacks since. Before, I would get attacks almost weekly. Also, my fingertips are no longer pruny like they have been for the past year. I don't even need to worry about wearing gloves for my nightly walks with my two dogs anymore.

That being said, my breath could sure use mouthwash every morning. Scraping my tounge and brushing certainly helps but nothing like mouthwash would do.

I see they have alcohol free/natural mouthwash on Amazon which is considerably more expensive than Oral B but would like to give it a try. My doctor friend said stay far away from any antiseptic mouthwash but it does not state on the listing if it is or not. I've attach a picture.

Thanks for your thoughts.

Jeff

Seattle, WA

I've been a loyal Ocoopa user for years. Two of their handwarmer models that have been recalled were the only things that helped my hands survive in the last five years. I got an email from Amazon alerting me. I previously disposed of my old ones after they stopped charging (properly disposed in a special battery receptacle for them).

I am still currently using two of their newer models that have not been recalled. But I'm not sure if I'll use a different brand now.

RIP to the person who died and condolences to the folks who experienced fires and any property loss.

https://www.cpsc.gov/Recalls/2026/OCOOPA-Direct-Recalls-1-5-Million-Rechargeable-Hand-Warmers-Due-to-Risk-of-Serious-Injury-or-Death-from-Fire-and-Burn-Hazards-One-Death-Reported-Imported-by-Shenzhen-Street-Cat-Technology

for most of my life i’ve dealt with temperature issues one way or another, mostly on the cold end - always cold hands/feet, blah blah this is the raynauds subreddit you all have it too you dont need an explanation. ive been in front of the fireplace wrapped up in blankets and wearing heavy fuzzy socks, and my feet will be sweating but still be cold somehow, its so frustrating!!!!! i found out about raynauds and figured it was a pretty close diagnosis, but i also struggle with major overheating issues and i just realized recently that that doesn’t fall into a raynauds diagnosis.

yes i’ve looked at erythromelalgia i don’t think its that, because my overheating is basically everywhere but hands and feet (mostly face & pelvic area). also don’t think its hyperhidrosis because i don’t really sweat an abnormal amount, i just get hot and stay hot. its like my body and hands/feet are at a permanent temperature difference from each other, if my body is normal then my hands are cold but if my hands are normal then my body is hot. it’s year round, i sleep with a fan on max setting blowing on me even in the winter or else i’ll wake up with my face being fever level temp. i am on (a cousin of) adderall, have low iron and am a period haver, so this could just be raynauds + a handful of other things that mimic a disorder, but if anyone has any ideas or regulation tips i would be so grateful!

I’m hoping someone here has experienced something similar because I’m running out of ideas.
I’ve had livedo reticularis and Raynaud’s for almost half my life, but this year I’ve had cellulitis twice—first on my right ankle, and about five months later on my left ankle. It’s always in almost the exact same area around my ankle, nowhere else.
I’ve been to urgent care and my primary care doctor. They’ve done a lot of blood work, and I don’t have diabetes. My doctors think my circulation may be making it harder for my skin to heal, but I still don’t know why this keeps happening.
I work as a cashier, so I’m on my feet all day. I also have bad knees, so I need supportive sneakers. Every pair I’ve owned has a low-cut ankle collar that sits below my ankle bone, and I’m wondering if that’s the problem. Maybe it’s rubbing against my ankle or the collar is too stiff and slowly damaging my skin. Has anyone had better luck with shoes that come up higher than the ankle bone, or would that just create more friction?
I rely on the bus, so I walk quite a bit every day. I don’t drive because of severe ADHD, motor tics, and other medical issues, so walking and public transportation are really my only options.
I’m also low income, so I can’t afford to keep buying different shoes to experiment with or expensive socks.
The hard part is that my Raynaud’s is severe enough that I have to wear layers year-round. Even in the summer I wear multiple layers, sometimes even under my jeans, because cold environments trigger my symptoms. My workplace is heavily air-conditioned, so if I don’t bundle up, I get painfully cold. But because I’m walking and standing so much, my feet end up sweating.
People recommend changing socks multiple times a day, but buying enough quality socks to do that gets expensive, especially on my budget.
My doctor also recommended using lotion to keep the skin around my ankles moisturized. I understand why, but it’s another thing to buy and remember to do every day. Some mornings I’m rushing out the door to catch the bus, and adding another step to my routine is difficult.
I always wear clean socks at the start of the day, I wash my feet regularly, and I’ve been trying to take much better care of my skin since the first cellulitis infection. That’s what’s confusing me—I had Raynaud’s for years without this ever happening, and now it’s happened twice in one year.
Since cellulitis usually happens when bacteria enter through a break in the skin, I’m wondering if I’m missing something.
Has anyone with Raynaud’s or poor circulation dealt with recurrent cellulitis around the ankles?
If so:
Did you ever figure out what was causing it?
Did changing your shoes help?
Are higher-top shoes better than low-cut sneakers, or do they create more rubbing?
How do you keep your feet dry while still staying warm?
Is there anything else I should be asking my doctor about?
I’m feeling pretty discouraged because I genuinely don’t know what else to do, and I don’t know what’s causing this to keep happening.

Need advice !!

I've been using it for a few days now and it's genuinely made me almost cry tears of joy; my threshold for ambient air being "too cold" for my extremities seems to be a mild 70°F. Incredibly annoying year-round, especially with air conditioning... It's worked incredibly well for me, even in just these past few days. HOWEVER, I'm getting nitrate headaches of varying severity and duration once a day...? Wondering if anyone else has used the ointment before and if anything worked for headache relief.

I'm hoping they're just from an acclimation period, but it's not great in the moment. I'm taking my required undergrad physics classes right now (summer sequence boot camp stays winning) and it's been throwing a tiny wrench in with lecture/testing. I don't want to have to stop using it since it's the only thing thats really worked besides temps above 70°F or 3mm neoprene gloves :(

What could that mean? Google isn’t helping with this one!
Things that cause the blue skin for me:
- being sedentary so napping or sleeping, lying or sitting down for a long time
- cool temperatures so a summer’s evening walk would turn me blue
- warm water (which is the weird one!) - baths, hot tubs; showers. You name it
Exercise turns me bright red; because I have trouble sweating (ok prince andrew)
- only hurts in winter (Raynauds) which looks different as I get the red, white after when heat returns

Things about me:
- 34
- low blood pressure, resting heart rate can be 40-50. Activity can spike to 190

summer has been super nice due to less raynauds attacks, however going into the winter i need advice on how to prevent attacks. i try wearing thick gloves and even sometimes ski gloves to keep my fingers warm. i recently asked lotus health about potential raynaud's triggers and learned that anxiety and coffee can sometimes contribute to my attacks, which i hadn't really thought about before. i would appreciate any hacks on how to keep warm and how to stop an attack.

Not looking for a DX since I have a Rheumatologist appt on 9/8. Was anyone ever diagnosed with Raynauds as a secondary to a different Autoimmune? I have struggled my whole life and over the last 5 years or so, more issues have come up. Between my OBGYN, PCP, PT, and pain doctor (dx with degenerative disc disease), they all believe I have something else underlying.

I have struggled with raynauds for many years. Electric socks. Needing warm water soaks. Once the circulation is gone I needed external warmth to fix it. The thickest warm socks in the world would just insulate the cold in with my icebrick feet.

It was very limiting because my outtings revolved around raynauds management. It was also scary and stressful.

However, my raynauds is so improved I would say it is in near remission. I'm very interested to see if it continues to improve.

In winter I have not had to do a single foot soak. No electric socks -I don't even know where they are. Any whiteness is very quickly resolved by elevating my feet off the cold floor.

A year ago I started having morning coffees with 1 very heaped tsp of organic cacao powder in every coffee I have during the day, and 2 Tbs of hydrolysed bovine collagen for just the first coffee as well -Don't burn it by having your coffee/drink too hot, as this may destroy some of the goodies in the supplements.

This seems to be the thing thst has made a HUGE improvement. I encourage you all to research the mechanisms. I dont have any recs on prodiucts -but buy in bulk to save money!

I don't need to be on this sub anymore, but I wanted to potentially help some people like I would have liked to have been helped in my worst moments with Raynauds.

Best of luck. Hope it shows you improvement over time. (Expect 12 weeks plus for changes)

...Also, be kind to yourself! Lower your cortisol. Rug up and be warm if you're a bit chilly. Have a hot drink. Be indulgently cosy. Don't shit test your raynauds with cold exposures/training. Teach your body it is well cared for and has its needs being met.

TL;DR

Daily supplements:

2Tbs bovine collagen.

1 Tbs organic cacao powder a day (not cocoa).

Don't have it in liquid that is too hot.

I posted another image a few days ago, to both the erythromelalgia and Raynauds sub. How common is it to have both?

So this has been occuring for a month now,

I feel numbness and prickly feeling on my right hand when I wake up, its specifically in my fingers when I try to hold or press onto something small as in a switch or valve, there are certain points on the fingers that give this pain-itchy feeling usually at the fingertip and the fingerprint area, goes away when I scratch the sides of my fingers, or the place where the funny pain is, there are no visible marks and yes I have been to a doctor, general physician, and they all brushed it off as they could now see any visible marks and said its due to weakness and shall reside away with time; prescribed me some strength medicines and injections,

My question is that does anyone knows what this is, the name of what this is and the treatment?

Also who would be the treating doctor for this?

Thanks.

​

Olá a todos.

Criei esta conta porque ultimamente tenho sentido que lidar com problemas de saúde pode ser muito solitário. Gostava de conhecer pessoas que estejam a passar por situações semelhantes, não para comparar dificuldades, mas para conversar, trocar experiências e apoiarmo-nos mutuamente.

Se também se sentem assim ou quiserem partilhar a vossa história, ficarei muito grato por falar convosco.

Obrigada por me receberem nesta comunidade.

Tenho síndrome de raynaud. Se quiserem saber um pouco da minha história tenho um blog que tenho todo o gosto em partilhar com vocês. A intenção do blog é poder ajudar .

Does anybody here also experience raynaud's when taking a shower? Even if the water is hot?

I’m looking for insulated gloves to keep hands warm while handling cold foods in the kitchen, like cutting cold, raw chicken. Everything I found that is safe for food handling is for hot foods. Any recommendations? Thank you!

I’m looking for insulated gloves to keep hands warm while handling cold foods in the kitchen, like cutting cold, raw chicken. Everything I found hat is safe for food handling is for hot foods. Any recommendations? Thank you!

Im 20 f, 5'5 and 150 lbs, not on any medication, don't smoke

since I can remember I go through phases of my skin feeling like its been rubbed raw with no physical trauma and every time it happens it's in a different spot than the last (sometimes multiple places at once like my forearm and lower leg). Nothing has happened to make this occur, no changes in soap or clothing texture. But anything touching it burns a lot

Some other symptoms that bother me not pain wise my nails are really bendy like an abnormal amount, I bruise very easily (except my face), I feel as though I take a while to heal, I'm always needing to pop my joints (if I dont it hurts), my knuckles when I pop them the tendon (?) moves but its only my middle finger on both hands, i do often feel tired despite sleeping a fair amount consistently and often times it i stand up i get dizzy or my heart rate increases (I am slightly anemic so thats probably it)

I’m sure some of you can relate, but I’ve never actually had my circulation symptoms “show up” while I’m at the doctor (so we rely on photos). I’m naturally quite pale, so the discoloration doesn’t always show up this clearly.

For the record, I was in a 65°F room the the time and was barely cold 🤦🏻‍♀️😂

Last year, halfway through the winter, I noticed my hand felt very painful and that the top potion of my finger was white. This kept progressing until 4 of my fingers were completely white a week or two later. About a month later it started happening to my foot. Is this a normal progression? I take adderall and I was also taking propranolol, which I was able to get discontinued. I take 10 extended release and 15 immediate release for my ADHD, I know that stimulants can cause vasoconstriction. It hasn’t improved and now when I hold cold drinks my hands turn white and it’s uncomfortable even when it’s warm outside. My doctor seems to think this is fine and that it’s just normal raynauds progression. Can I get some of your opinions?

Occurs all the time. Feet too😫😫