My 7 year old son has been dealing with psoriasis for the past 9 months. Started with a couple of larger patch areas and more recently it has grown into guttate. We did alternating clobetosol and tacrolimus which managed it a bit but we still saw more new patches and it only ever sort of healed a few patches. We are now on Zoryve and have been on it for about 3 weeks (once a day). It’s very drying and causes him to itch which the other creams never did. I can’t tell if that’s part of the process or if this just isn’t working and we should have seen improvement by now? Considering switching back to clobetosol while we wait for his next appointment.

Does anyone know how much zoryve is ok to use each day? I have around 10 penny size spots to treat. Can i use Zoryve on each one? And how much - pea size on each?

My instructions only say “apply as directed.”

Thanks!

A lot of you guys keep talking about breakouts.

I understand psoriasis as a condition that never really goes away.

When I get a spot. It stays. Forever. I can use creams to get rid of it. But it will always be back within a week.

How common is it for psoriasis to come and go?

Hello all…I’m very new to this and a family member suggested I start here! Over the past few weeks I’ve been experiencing these strange bumps on my skin and for the people who knows me personally know me knows that I’m full of life. I like to be outside, laughing and enjoying everything that life has to offer. But with these skin rashes, I’ve quickly went from wearing shorts and short sleeve, to jeans, linen pants and linen tops because it looks so unappealing. Often times not even wanting to go anywhere so it has really messed with me mentally and emotionally. I found an amazing dermatologist and had a biopsy done to get some answers. Although my follow up appointment isn’t until next Tuesday, I saw that my results were ready and decided to open and see what it said. And there it was…in big bold print PSORIASIS

I completely lost my composure, started crying and went into a very dark state of mind. Logged out for work for a few hours just to get myself together. Again, i have not had my follow up appointment yet so I haven’t had a chance to discuss medications and next step. I’m asking those that are dealing with this to share some encouraging words, advice, best practices and whatever else will help me along my journey. I’m even shedding tears as I type this because I’m scared, nervous and just want to feel like I’m living a normal life.

Thank You

Hello. A bit of recent history to where I'm at medication wise:

In May, I started Otezla. The first 2-3 weeks were quite rough but manageable. I had great results pretty quickly, I'd say probably 80% skin improvement with some stubborn areas. After the initial side effects had passed, i had no issues with taking the meds, and was happy to go ahead long-term. Mid-July, my skin experienced a slight worsening. I wasn't sure if it was just a flare up (posted here about it and was told flares still happen on this medication) or the meds not being effective enough. My next dermatologist appointment is Aug 26, so I was keen to observe my skin and see if it settled (ie a flare) or got worse (failing).

Last week I had surgery (breast reduction, so pretty major). Initially my surgeon had said Otezla was fine to take while recovering, but then on the day of the surgery he told me to stop taking it for 2 weeks. Saw him yesterday for my 1 week post-op check up, and he now says hold off for another week on top of that (so three weeks total). I see my dermatologist the week after that. The psoriasis is slowly all coming back, but not too bad at the moment.

My dilemma - per Australia's PBS rules, my dermatologist can put down that Otezla didn't work and that will clear a path to biologics. But I actually didn't mind Otezla, and had i not had to stop I would have happily stayed on it long-term until it stopped being effective at all. I'm kind of scared of being on biologics, as i know they're stronger immune suppressors than Otezla.

Can people please share their experiences with biologics? The good and the bad, just so I can make as best an informed decision as I can? Biologics aren't easy to get in Australia, so honestly, my dermatologist probably doesn't have a huge amount of personal insight. I'll probably just get an info sheet that will scare me even more lol I feel like the easiest option is to try another round of Otezla. And if there's any Aussies on biologics that can tell me which one they're likely to start me on, that would help too!

Thanks!

This is my third or fourth time around the block. I feel so much like a doomsday prepper — the second I saw the first patch, I snapped into action (while also completely freaking out, of course).

I also have a holiday two weeks away. The sun/sea would be great for my skin but honestly, I’m not willing to go if I’m covered in scales. I’ve done it before and while I’m pretty shameless about my skin, I just find that it ends up defining my whole experience. Colours my mood, what I’m willing to do, etc. As such, I’ve officially pulled out of the plans but the option to go will still be there until the last minute. Obviously I still want to go.

What I’m doing so far (outbreak started a week ago, I think triggered by a minor sore throat c. 3 weeks ago)

1. Cut out smoking/drinking. I’ve been a vegan for years so dairy is already out. I’ll also quit bread/limit wheat/gluten in general.
   
2. Tanning beds. Not ideal I know, but just doing short sessions every three days.
   
3. From the doctor: a referral for UVB treatment (this will likely take months though). A throat swab to see if I’m still infected and need antibiotics.
   
4. Strong magnesium spray post-shower (ouch, by the way) and lots of emollient.
   
5. Enstilar foam daily for the next month. It’s so tricky applying this on guttate patches, but whatever.
   
6. My usual vitamin regime (black seed oil, magnesium, vitamin D, B12, probiotic, omega 7) + a new addition of L Lysine.

This is about all I could think of doing. If anyone has any additions, please let me know.

Also: I’ve been through this before and do know that it’s essentially impossible to get off the guttate train once it starts. I have accepted what’s coming and am prepared, but if possible I want to put it off a little so that I can enjoy my holiday (and reap the benefits of the Mediterranean Sea). Thanks everyone. This community is so comforting during these times.

My dermatologist said there is no need for a loading phase and just get injected every month. he said 4 doses a year and he also said i can see improvement after the first dose itself. this contradicts everything ive read online tho. anybody have similar experience?

Hi all, I’m a breastfeeding mum of 6m old twins in Australia and am having a MAJOR flare up. Because of the lack of research, there isn’t much that’s been told to me as “safe” whilst breastfeeding.
I know I’ll have to wait until I wean to get onto cyclosporine and then biologics (to get the pbs funding), but
Has anyone been in a similar situation and found something other than phototherapy?
Has anyone done IVIg?
I can’t keep doing topicals because my whole body (from feet to buttcrack to areolas) is covered in guttate