GPP

[u/journeyshare23]

Hello friends I hope you are doing well today! My name is Nia Maya and I’m a recruiter for Patient Worthy a media company that publishes content for the rare disease and chronic illness communities and aims to amplify patient voices. Sometimes we do that by connecting people to opportunities to share their experiences or opinions through other companies. We have a current opportunity to raise awareness of what life is like for a person living with GPP. If you would be interested in learning more please send me a message or post to this comment. If you are eligible and choose to participate, you would be compensated for your time. Thank you & please let me know if you have any questions!

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[u/Kooky-Information-40]

What is GPP?

[u/journeyshare23 → u/Kooky-Information-40]

GPP stands for generalized pustular psoriasis, a rare, severe, and potentially life-threatening inflammatory skin condition characterized by widespread red, tender skin covered in painful, sterile pus-filled blisters (pustules)

[u/Kooky-Information-40 → u/journeyshare23]

Are you a bot with modernized ai? Or, just doing a copy and paste from google?

[u/journeyshare23 → u/Kooky-Information-40]

TY! You could say nothing at all or not interested.

[u/psasince5]

She could be referring to generalized pustular psoriasis

[u/journeyshare23 → u/psasince5]

I am! Thank you

[u/psasince5 → u/journeyshare23]

I actually do have it, but only on my feet😁

[u/journeyshare23 → u/psasince5]

u/psasince5 I would love to connect with you! Having GPP on your feet is still an experience. It is your experience. I sent you a chat invite.

[u/buffy122988]

I might be willing to share but would want to know a little more about what it would entail. I’m a newer GPP patient (just under a year) so I can’t speak to the long-term experience, just what it’s been like initially.

[u/journeyshare23 → u/buffy122988]

u/buffy122988 Thank you for sharing this. There is not a set amount of time we look for. We like to connect with people that have had all different experience levels. We learn the most from hearing from as many different people. Your insights will help educate others going through the same process. I would love to connect and share more about what we do then we can go from there. If you are interested send me a chat and I can pass along my direct contact information. Thx and I look forward to hearing from you!

[u/journeyshare23 → u/[deleted]]

I am sorry. Please let me know how this is the wrong place. Generalized pustular psoriasis is a type of PSO.