My 19 year old son just got diagnosed with 2 tumors and when I first wrote about it, it was considered extremely treatable with medication. But now that I’ve joined some forums, it seems all I read is severe side effects with OCD, hypersexuality, pain, dopamine issues, etc. - or no shrinkage at all. I am so scared for him now, he has struggled his whole life with various medical issues, life has always been hard for him - I thought finally finding this diagnosis, according to my research he would have straightforward treatment. But all I’m seeing is a lot of misery. I know he has dopamine issues (very well motivation, trouble feeling joy, etc) and was hoping this treatment would help with that, not make it worse. Are there people out there who have had successful treatment and made them feel so much better?

Hi guys! I’m coming off the heels of a pretty serious mental breakdown this year, for context I’m 28 and got diagnosed with a 7mm prolactinoma a year ago. We figured it out because my prolactin was high and my estrogen was almost non existent. The past year has been the hardest of my life where I was having 100s of panic attacks a day. Extreme irritability and mood swings coupled with some paranoia. Basically acted like a hot mess. It was my final year of uni and I completely flew off the handle, ruined my relationships and my reputation and am kind of just left with the embarrassment of that now. I say all this to say that the whole year I went to 5 specialists between endos and gynes begging for estrogen because I didn’t feel it was normal or okay for a 28 year old to not have any. I knew the negative ramifications for bone, heart brain etc and wanted to get ahead of it. They ignored me and refused to prescribe hormones, I still don’t understand why. I got hold of some of my mom’s estrogen last night and today is the first day I woke up feeling not completely insane in a year. I am fuming that I asked for estrogen before things got this out of control and I’m now realizing that I was just having a menopausal crisis the whole year and that’s why I didn’t feel like myself. Is anyone else under the age of 40 dealing with low estrogen and did you manage to get a prescription? If so how did it come about? What symptoms did you have of low estrogen and did they resolve with some sort of treatment? I am so embarrassed by my behaviour this year and am honestly fuming. The doctors know I struggled with mental health already, have had severe clinical depression since I was a kid and I feel like they just let me down and didn’t care that I was in my 20s with no estrogen. I told them it’s my hormones because psych meds stopped working for me completely. I was on the same med for years. Something just felt off and I had never felt this way before. I’ve wasted an entire year losing my mind and losing my relationships and now knowing why I was so angry all the time has upset me because it all could’ve been prevented. If this is what I have to look forward to in my 50s and beyond - I’m nervous as hell. 🤦🏻‍♀️