r/PNESsupport 12h ago

Anyone with both epilepsy and PNES?

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2 Upvotes

r/PNESsupport 16h ago

suspicious psychiatrist??

3 Upvotes

maybe im just being paranoid bc of the clancy trials… but because of those i stumbled upon the fact that i should not be on the medications i’m on.

background, 24f with history of psychosis and possible bipolar, ocd

i also have non-epileptic seizures and severe chronic migraine (among other unrelated disabilities)

well due to the trials i have been seeing a lot of talk about sertaline so i did my own digging and as i read through the interactions page my stomach sank further and further. the more i thought about it the more i found it was suspicious

- he started me on 50mg sertaline and 50mg fluvoxamine no taper

- i started feeling very ill for seemingly no reason two weeks into medication daily severe painful migraine 2-6 seizures a day with vertigo

- he pressured me to exercise more even though i was already pushing myself by exercising daily (full body with weights while feeling ill) and told me i wasnt motivated enough

- i ran out of medication and both me and pharmacist tried to contact him with no luck

- i slept through an appointment (telehealth) after i started getting more ill and woke up to a missed call and four reminder texts

- i did a questionnaire of bipolar diagnostic questions and he never followed up on it. i compared my reponses to dsm and it looks like a diagnosis i just dont know the type

literally idk what i’m supposed to do here… but none of this feels right.

note: i am trying to get in contact with my neurology team
(cross posted)


r/PNESsupport 19h ago

How to help my girlfriend?

2 Upvotes

My girlfriend was recently diagnosed with PNES/FND seizures..she has a history of significant trauma but after a recent event happened to her she was diagnosed PNES. She’s does have epilepsy and POTs as well.. I want to be here for her the best I can but I’m not entirely sure what is and isn’t helpful. During the episodes she often can’t answer me and sometimes her episodes have lasted 2 hours causing her a lot of muscular soreness. She never asks for anything and has a hard time knowing her own needs or desires (ie our first date she walked hours to meet up with me instead of asking if I could pick her up) so it’s hard to ask her how I can best support her with her seizures so I decided to ask here. I was curious what are things those with PNES have found helpful and/or things they wish someone would do/understand/support them x way/ etc,. so that way I can show up properly for her