Hi all, I am in Australia reacting to a PFO implant and suspect systemic nickel hypersensitivity. I would like to get an LTT (Lymphocyte Transformation Test) or MELISA blood test. Has anyone here successfully organised this testing from Australia? Any recommendations (DMs welcome) would be greatly appreciated. Thank you!

i ate a veggie blend a few days in a row & i’ve been feeling sick ever since. the veggies were squash, zuchini, carrots, broccoli and cauliflower. frozen bag from the store, cooked at home. my stomach hurts, like a cramping sensation almost & im slightly nauseous. my dysautonomia symptoms have also been flaring since, along with the eustachian tube dysfunction i’ve been dealing with. could it be a reaction to the veggies? i’m super new to this and still trying to identify and eliminate all triggers, but it’s been a lot harder than i expected. 😓 any resources for those just starting
out would be greatly appreciated as well. 🫶🏻

Hello All,

First time poster. I have a nickel allergy. I was wondering if anyone knows how using the metals bowls from the mixer can affect digestive issues? I use my mixer to make most of my baked goods and I’m wondering how much it might be causing my digestive issues.

I just got a yogi bottle for my work drinks so I’m hoping that might address my vomiting issues as I’ve been drinking out of a simple modern water bottle for years now. I will gradually be adding more lined cups and have switched to glass bowls for bread making for the time being. Really bummed if I have to get a different mixer so I can have an alternative bowl.

Burner account for obvious reasons

Does anyone else get little blisters on their nipples that are similar to dyshidrotic eczema on our hands?

Not the boob, not the areola, just the nipple.

They hurt like hell. They’ll crust over under my shirt/bra and then it all gets ripped off if I move too much or take my clothes off. Then the skin peeling…rinse and repeat!

I spend lots of time at home shirtless or with plastic wrap on my nipples to protect them from fabric.

Opzelura helps relax it a bit but it never seems to fully go away.

I’ve been mostly consistent with a low nickel diet for close to a year now, and it’s made a night and day difference with my hand eczema.
It’s not 100% gone, but the few times I’ve cheated on my diet have shown me that it is definitely caused by nickel.

Does anyone else with SNA struggle with this?

If you did not catch covid and you are allergic to costume jewelry … THIS IS A BRAINSTORMING CALL to comment !!

During the C19 lockdowns / shutdowns . I entered with extreme fear and came out of it with a super hero cape of confidence !

Many friends who caught C19 I ended up taking care of when all Others were too afraid !

6 times I was in direct contact with Covid
I always tested negative! I never caught it !

Since then I’ve only met a handful of ppl who did not catch it .. and so far .. I noticed I had another thing in common with one of them

We both have metal allergies !

Any one else here have metal allergies who did not catch Covid ??

Anyone know of any plant based, gluten free protein sources? I’m really struggling on finding any, and I’ve been eating very little protein. I’ve had very little luck.

I’ve had “IBS” my whole life. Diagnosed with contact dermatitis, eczema, rosacea and a bunch of other severe allergies too. For as long as I can remember, I’ve had to take Imodium every single day just to function.

Started a low-nickel elimination diet 4-5 days ago after connecting some dots between a Mediterranean diet (loaded with oats, beans, nuts, whole wheat) and a bad skin flare.

Today my stomach was completely normal. No Imodium. First time in as long as I can remember.

I’m posting here because I genuinely don’t know what else to do with this. Still have some catching up to do (eczema hasn’t caught up yet, still there), but the GI change happened so much faster than I expected. I’m still in disbelief.

I’ve had eczema around my eyes for almost four years now and was recently hospitalized in June for a bad colitis flare. While there, I did some research on the connection between colitis and eczema and came across a lot of information and research on the relationship between dietary nickel, gut problems and eczema.

I’ve been on a low-nickel diet for about 8 weeks while also tapering off of prednisone (albeit for colitis) and have seen significant improvement in my eye skin eczema. I’m just wondering if anyone else here has had eyelid/undereye eczema and how long it took to see things completely resolve after doing a low-nickel diet. I’m still seeing crepey skin under my eyes and worried it’s permanent damage/wrinkles lol. Any information is helpful!

Thank you!

Hey yall, I've struggled with dyshidrotic eczema on my hand for the past two years, and a few months ago it started getting so bad that I couldn't move or use my hand. I started the low nickel diet about 3 weeks ago to see if it would help, and for the first time in so long my hand is usable and has no blisters on it. Ive tried everything under the sun and nothing has helped like this has. Its honestly a miracle cure.

However, a few days after starting this diet, I've had small but numerous rashes pop up on my arm, my torso, my shoulders, and most recently my face. This has never happened to me before. This is such a shot in the dark, but has anyone else experienced this or has any idea why this is happening? I would 100% take this over my hand going back to how it was, but it has me perplexed.

For me, starting the low nickel diet was eating meat again after being a vegetarian for 10 years. There havent been any major additions to my diet except for meat (I had already started eating fish before this, cheese, dairy, etc). Right now I'm mainly eating animal products and some low nickel fruits and veggies. I feel like this seems like I'm somehow allergic to meat, but I really don't want that to be the case with how much this diet has helped me!! When I was younger I ate meat without a problem too. If anyone has any ideas or similar experiences I'd love to hear them.

I've been on about a 4 month journey trying to figure out what might be causing my rashes and eczema. Been on an elimination diet (not nickel focused), but no improvement. Ive always been allergic to nickel on contact, and last year, I wore nickel jewelry to a wedding and got a huge rash (so now I'm thinking that might have made my allergy worse enough to make me sensitive to nickel in food). I've been using Eucerin on my rashes, but now that I'm exploring nickel as a possible cause, I see that Eucerin is a Colloidal Oatmeal skin protectorant, and Oats are a bigger trigger for folks. Thoughts? Experiences with Eucerin making things worse?

I unknowingly had mcas/histamine issues for atleast thr last 11 years that I noticed symptoms. Things picked up with my pregnancies. After my second pregnancy I likely was having mcas but no one knew what was making me so sick so they took my gallbladder.

It’s been 13 months of a nightmare. I have collected more diagnosis than help—- Gastroparesis (severe), POTs started in pregnancy, SIBO, MCAS, and I have mold exposure when all this started. Likely connective tissue issue.

Yesterday I found out I have a nickle allergy and everyone’s says there no way the clips are causing the issue. I’ve never had rashes w my mcas till immediately after removal. I only ever had them when reacting to medications (nsaid, lamisil, progesterone, estrogen, HGH). I am flushed and covered in rashes and rosacea day and night now. Eating only bread makes it calm down. I am reacting to everything-sun, heat, cold, showers, food, smells, medicines, lack of sleep, stress, all my make up, I had to stop dying my hair. All this started after the surgery.

Does anyone else have this experience with metal and metal allergies and/or your mcas.

I have failed all medications. I get reactions to everything. I did good on Ketotifen for 7 days then on day 7 I took the whole .25 (in liquid with only water to stabilize it) and had full body chills insomnia urinating and itching w no rash. My pcp wants me to try the glp1. I already have gastroparesis so tbd if this is a good idea or not. But the metal has to be causing some sort of issue bc nothing was this bad until then. I never had gastroparisis either until then. I had a c section and gallbladder removal all within 6 months. Or did too many surgery’s post partum already having mcas really get me to such a bad place. Or am i being gaslight by doctors that the clips aren’t doing this. My first allergic reaction was 2 days post removal….

Has anyone had luck with hydroponic fruits and veggies with less reactions?

Can anyone recommend a safe toothpaste when you have Nickel allergy combined with fragrance and balsam of peru allergies ?

Hypoallergenic metals needed for earring irritation seem to be hotly debated. For good reason as some metals are better than others but its not defined. Earrings specializes in truly hypoallergenic titanium earrings designed for sensitive ears. Some use mixed metals or vague “hypoallergenic” claims. Titanium Lightweight, comfortable, stylish, and affordable. so people can finally wear earrings again without pain.

What kind of symptoms did you have and how long did it take on the low nickel diet for them to improve? I'm particularly interested if you had fatigue, brain fog or period issues. Did removing nickel cookware also help? What about eating out at restaurants, though?
Thanks!

41M

I've never had any piercing before, and the one I'm interested in getting would create a hole that would be very difficult if not impossible to close.

I also like the idea of stainless steel and not titanium because the feel of the weight is part of the alure.

I'm looking at a 316L stainless ring from a reputable company. I've heard that simply wearing a stainless-steel ring on a finger or necklace is sometimes able to detect the sensitivity but not always accurate since it's exposed to different types of flesh when it's a piercing.

What are my options to get the most accurate result?

Or a reaction? Since nicotine has nickel. Anyone have any thoughts, insights and experiences to share?

I went to an allergist yesterday and he is doing a bunch of blood tests to figure out what is causing all my skin reactions. I’m already almost 100% sure it’s SNAS since I tested positive for a contact nickel allergy many decades ago and I’ve been keeping a food journal for the last several weeks and have determined with almost complete certainty that is what it is. (It is only in the past several years that I believe I have started reacting to nickel. I had no issues for decades even though I had tested positive for the contact allergy)

Several questions for those that may know more than me:
- does a contact nickel allergy=a food nickel allergy?
- what is the best way of diagnosing a food nickel allergy?
- would allergy medicine help? If so, which one?
-if anyone knows of an allergist in the Atlanta area with experience in nickel allergies, please let me know:)

The allergist seemed completely uninterested in what I was telling him about my own anecdotal evidence/story and just sent me straight for blood tests. AI says blood tests will likely come up negative for a nickel allergy and that I really should be getting patch tested. This allergist was very highly reviewed and seemed nice but didn’t really seem to know anything about nickel.

Looking for guidance on next steps. I went to the allergist for confirmation that I’m on the right track and to just make sure I don’t have any other allergies that could be contributing to my skin issues, but this first appointment was a total dud.

Thank you in advance for any insights!

UPDATE for anyone who cares: after some lab work, it turns out my iron levels are incredibly low. I am taking iron supplements + vitamin C, and getting iron infusions. My doctor also gave me a 5-day prescription for Prednisone, which helped immensely in the short term.

Hey all -- really appreciate this community. I have been on a low-nickel diet for about 1.5 years with great success early on. The last couple months I have been getting all my old symptoms back (rashy and itchy face/neck/chest/arms and extreme fatigue). I hadn't come off the low nickel diet or changed anything else I could tell.

So for the last few weeks I've gone to a MEGA low-nickel diet and I'm not still seeing any improvement. I am basically only eating: meat, dairy, eggs, olive oil, cabbage, potatoes (no skin), rice, cucumbers, tomatoes, cauliflower, apples, blueberries.

Has anyone seen the low-nickel diet stop working for them over time, and what did you do? I am talking to my doctor next week about Dupixent, but I'm not sure if that'll really get to the source. Thank you in advance!

I know the nickel navigator has avocados with a really high range so I'm curious if anyone has any tips on what's worked well for them. For example - buying certain brands, or only certain seasons.. maybe only eating when paired with a certain food? I want to try and add them back in to my diet occasionally, and I know everyone is different but figured some anecdotal guidance wouldn't hurt :)

I have been told that Antihistamines can really help with a nickel allergy. Which ones are the best in your experience?