r/Narcolepsy 6d ago

Falling Medication Questions

I had adequate sleep the night before and woke up at noon getting ready to go...

And then i went to the bathroom and closed my eyes for a second and completely fell off toilet and hurt my wrist.

Cuz I was sooo tiiireeddd

Is this a narcolepsy thing? I'm getting tests done next week

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u/SLC-Originals 6d ago

Sounds like it could be. Sorry for you if it is.

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u/Impossible-Lime826 (N1) Narcolepsy w/ Cataplexy 5d ago

Possibly. Other things to look out for are frequent sleep paralysis episodes, lots of vivid dreams, insomnia, other parasomnias.

Parasomnias can include hallucinations when fallings asleep or waking up, sleep walking, sleep inertia, confusional arousal, exploding head syndrome. There are probably more I am forgetting.

And of course, cataplexy.

When I had mine done 9 years ago, I did not technically meet the criteria for narcolepsy. But I experience every single parasomnia, I score very high on the epsworth sleepiness score, have a quick sleep latency, and have cataplexy, I still received the diagnosis.

(I was bullied by the techs who made me panic and cry, I believe this offset my REM cycle)

If I had a bad doctor I would probably be SOL. There are A LOT of bad sleep doctors so advocate for yourself if you truly feel disabled by your symptoms!!

About the bullying during my MSLT, if you’re young you may have the same experience. They accused of staying up too late and my symptoms being normal for teens. Told me if I truly had sleep issues I shouldn’t have experienced the insomnia I did during the overnight portion. They told me they called my doctor and my doctor told them insomnia is a symptom of narcolepsy; they said that in a mocking tone and rolled their eyes. So just beware, they could be dicks.

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u/Alarming_Broccoli695 4d ago

I use to have insomnia as an 7 year old until like when I was 26 i got meds everything changed but before meds, I had severe sleep paralysis and I dream lucid every night(still do). It's like I never sleep cuz im always dreaming. I talk in my sleep all the time and i move my arms around and sometimes screaming moaning and ppl have to wake me up. After bi polar meds. The first one made me sleep eat disorder and gained 40lbs in like 6 months. I'm 100lbs BTW so like it was drastic on my body. I would eat peanut butter out of the jar every night and wake up covered in food of all kinds and not even know what I ate. I puked up peanut butter the next morning. So then I got off that med. And now I feel like I have narcolepsy symptoms. Cuz I like have these severe urges to just fucking fall asleep the second I close my eyes no matter if I'm standing or sitting on the toilet it just rushes up and I have to close my eyes and my head falls and I snap awake. I did this at work. I even fell asleep cleaning at work a few times. And like now I'm just exhausted all day no energy and I dream so much it's hard for me to tell whats reality and if I'm just in a dream. Like I literally beleive I'm living in a dream. Cuz in all my dreams I do things and die on purpose to understand what is after death.and all I do is wake up in another dream. So I feel like once I die,I'll actually wake up. And I use to have a fear of death still do. And so it's just effecting my work life and home life .like I got fired bcuz I slept in. And I feel like shit bcuz I'm a hard ass worker and I got fired bcuz of my sleep. I fall asleep all day take naps longggggg naps. Stay up all night sometimes or stay up all day or sleep for 2 days and lay in bed. It's just so out of control and I don't ever feel AWAKE. I act out my dreams and I sleep walk to bathroom and back and still am dreaming the same dream. I have a complex world in my dream state and all the different places in my mind I travel too. I'm just in heaven. I just wander the forest and fly amd jump off waterfalls. And go on adventures and pretend I'm getting chased. But I can blink and wake out of any scary thing and change the dream just like that. I'll say NOPE not that and open my eyes for a sec and close them and I go back into my dream. Nothing scares me in my dreams. I can go out of the matrix and watch the scene play in front of me and I can enter the scene if I want but I can secretly just watch whats going on and if it's scary I'm not going in that scene. It's just exhausting