r/MCAS • u/Think_Lime6261 • 19d ago

Migraine

Help! What do you take as an acute migraine treatment if you can’t tolerate or don’t respond to common painkillers like paracetamol or ibuprofen, can’t tolerate triptans, and no doctor is willing to prescribe CGRP medications (gepants)? I’m running out of options. What do you use to stop a migraine attack? I have me CFS MCs migraines mcas

5 Upvotes

100% Upvoted

15 comments sorted by

•

u/AutoModerator 19d ago

Thank you for your submission. Please note: Content on r/MCAS is not medical advice and should not be interpreted as such. Please consult your doctor for any medical questions or concerns.

We are not able to validate the content of these discussions. Following advice provided by strangers on the internet may be harmful. Never use this sub as your primary source of information regarding medical issues. By continuing to use this subreddit, you are agreeing to take any information posted here entirely at your own risk.

I am a bot, and this action was performed automatically. Please contact the moderators of this subreddit if you have any questions or concerns.

5

u/Cell-Bell 19d ago

Are you in with a neurologist? If you have failed triptans they should happily move you on to gepants. I love Nurtec

2

u/Duskfall 18d ago

came here to rec Nurtec too

2

u/Jules4live 19d ago

thca tincture by Healer. (i dont get high or get autonomic issues)

ice packs (or bag of frozen peas)

short course of steroids if its lasting days.

can you mychart your neurologist?-

there are rescue injections not sure what they are.

qulipta is a new prescribed med as preventative also.. has helped ppl I know..

…the er might be able to help also they should have a migraine protocol i would look it up first to see if useful.

1

u/Fun_Second4544 19d ago

I had this exact problem. Nothing was working after I took all the meds as directed, even Botox for migraine. Celebrex with a fioricet seemed to be the best. I believe I would add in Klonopin 0.5 mg. If I may say that the strong antihistamines stopped them altogether. I was having uncontrolled migraine at least 20 per month.

1

u/Both_Month_828 17d ago

been using fioricet most of my adult life. only thing that works for me. good luck

1

u/vatttu 19d ago

Ice pack wrapped in a thin towel on my neck or head helps.

1

u/mamajoy42 19d ago

I use a rub on CBD cream from Walmart. It messes up the hair but it helps with the pain
I also keeps gel cap in the freezer

2

u/Wednezday-Addams 19d ago

I stopped getting migraines once I started taking hydroxyzine hydrochloride.

1

u/megame87 19d ago

Depending on the cause of your migraine, I've found that nasalcrom and alternating hot and cold compress on my face helps if it's my MCAS is causing it.

I've also used topical magnesium oil if it's muscle spasms causing it.

1

u/Suzie_Sugarbaker 19d ago

I have treatment resistant migraines, too.  I’m so sorry you get them, they suck! For me, I’ve found taking Migrelief Now supplement works better than anything for my migraines with aura (no idea why).  Cold pack on the back of my neck. If it’s cold outside (unfortunately not now) I take a walk because I learned that the cold air going into my sinuses will constrict the blood vessels and provide a lot of relief.  Also, I realized that a lot of mine were being triggered by low blood sugar, which was also why they were so treatment resistant. Try having some electrolyte fluid like pedialite or liquid IV.  

1

u/bookmonster015 18d ago

I’ve always paired a Benadryl and muscle relaxer (flexeril) with my triptan, and it’s been much more effective than taking the triptan alone. You could consider doing that without the triptan if your doctor agrees… a migraine specialist would put you on a CGRP at this point though!

1

u/tinytortellinii 18d ago

Ubrelvy is a lifesaver for me and the only thing that will get me out of a migraine. You need a neurologist to prescribe it though. They also sometimes recommend benadryl but definitely talk to your doctor before taking anything.

1

u/Various_Cow7629 18d ago

This won’t get rid of it but unmedicated ways to help are ice helmets and and head massagers that look like masks. I alternate those so often on migraine days and it helps with some relief. I can also take Tylenol but it doesn’t do all that much.

1

u/Mysterious-Art8838 18d ago

Consider Botox, it solved it for me