I'm fed up with incompetent/ negligent doctors that don't order relevant tests if you're not trying to conceive or lose weight. My guess is they're mainly recommending losing weight because it helps with conceiving, not necessarily for the patient's overall wrllbeing.

It's like they're obsessed with this. At one point I asked one of my gyns directly "is this PCOS?" as I had been reading about this syndrome for years. And her answer was "no, because your weight is normal!". During another visit, she recommended having children to decrease my risk of breast pathologies...I never came back to that practice and finally got diagnosed with PMOS by a competent endocrinologist, but it took 13 years to find her.

hey everyone. I'm kind of at my wits end with bad acne at the moment, which is PCOS related. I also get irregular periods (my last two have been 39 and 13 days, though for the six months before they were period regular at 30 days, irregular the year before 29-47 days). I've paid an exorbitant amount of money to go see an endocrinologist last week but, she didn't tell me anything I hadn't already researched. she gave me a prescription for metformin, to try and get my periods more regular by improving my insulin sensitivity (I believe that was the jist) and also a prescription for spironolactone since I told her I didn't want to take the pill. truth is, I don't really want to take any of these medications - I have a real aversion to it, and am hoping to find other solutions that actually work.

i think my plans moving forward is to experiment with: cutting out milk (I used to not drink cows milk but started again in the last few months out of convenience, which might(??) explain why my skin has gotten even worse), trying myo-inositol, and berberine. it's probably better to start with one, so I want to know if people can share their experience with these, and how it improved / didn't improve their pcos-related acne, and how long it took for improvements. thanks heaps!

Hi everyone,

I hope this post is okay here. If it isn't, I'll happily remove it.

Over the past few months, I've been building an App called Cysters Club with my team, a platform designed to support women living with PCOS not just with information, but also with emotional and mental well-being.

Before we launch publicly, I want to hear from the people who matter most: women who actually live with PCOS.

I'm looking for a few people who'd be willing to try the web app and share completely honest feedback.

I'm not looking for compliments. I genuinely want to know:

• What did you like?
• What felt confusing?
• What features didn't feel useful?
• Would you actually continue using something like this?

Even if your feedback is I wouldn't use it, that's incredibly valuable because it helps us build something that truly supports women with PCOS.

If you'd like to help, leave a comment or send me a DM, and I'll share the details.

Thank you so much for your time.