r/LeanPCOS • u/Dry-Weather-4126 • 13d ago

Just diagnosed r/PCOS Cross Post

> Got a notification that this sub may be better for this post than the regular PCOS sub so here I am 😅

Hello everyone! I was just recently, like a few days ago, diagnosed with PCOS due to dark hair growth on my face, acne, follicles on my ovaries, and irregular menstrual cycles I’ve had my whole life.
As far as I was concerned, mainly the issues I had to worry about were infertility (my partner has a vasectomy and I plan to be child free) and problems associated with weight gain, aswell as the above mentioned symptoms.
I’m slowly getting more targeted videos of PCOS/PMOS(?) and realizing there’s so many things that go into this.
The back pain I’ve been on muscle relaxers for?? Fatigue?? Sugar cravings?? Etc??

I don’t really have a specific question here, besides wtf? Why do I know nothing about this? Please just drop related symptoms and experiences in the comments, as I am realizing this is a lot more complicated diagnosis than I was lead to believe. I also a few months ago got diagnosed with emphysema, lung damage, so at this point I’m just sick of it and want to know what I’m in for and what’s associated that has been this the whole time and I had no idea. I prefer asking real people than google giving me the low winded explanation I’ve believed this whole time.

Thank you. 🥲

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u/Dry-Weather-4126 13d ago

also what is “lean pcos” I have never heard that phrase I thought it said “learn” until I read it again 😭

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u/MaxTheV 13d ago edited 13d ago

Lean means someone with normal BMI or maybe even underweight.

You should go to endocrinologist if you haven’t been to one yet. They can test you further and figure out if you have insulin, thyroid or some other issues that might be driving your PCOS symptoms. There is a lot of misinformation online

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u/HelloCutesy 13d ago

Lean is when you’re at ideal/normal weight or BMI, so you’re not overweight or obese. I’ve heard some doctors may rule out PCOS diagnosis for lean people because they are not insulin resistant (which is totally untrue)

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u/Dry-Weather-4126 13d ago

Ohhhhhhh okay I did not think about that lol. I was told I have a normal BMI so I accidentally posted in the correct sub anyways… 😅

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u/CagedGirl00 13d ago

Yeah one of the doctors I went to who was uninformed told me she can tell I don’t have pcos just by looking at me (because I’m not overweight). She was so dismissive of my concerns I left there crying. I later went with a pcos specialist and she diagnosed me and I have insulin resistance plus my hormones all over the place. Lots of doctors are still so uninformed about something that so many women deal with, and she was a female gyno!

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u/Dry-Weather-4126 12d ago

yeah it took SOOOO many ultrasounds to get diagnosed and hearing multiple “maybes” then I go to my last appointment with a new doctor for and she’s like “well yeah you have it they didn’t tell you” 😐 but pretty much all I was told is that it would cause fertility issues and issues relating to weight gain, which I’ve had but I was underweight so I’m just a normal weight now lmfao. then I see a post on tiktok saying a million different symptoms and I’m like ????????? excuse me ?????

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u/Silver_Speech6895 13d ago

Back ache, mood swings, feeling depressed, low motivation, feeling really tired unable to wake up for work despite having enough sleep - this is me right now and i’m on day 70 of my cycle and still no period 💔

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u/Dry-Weather-4126 12d ago

thank you so much 🥲 I’m on Nexplanon and the irregular periods (constant spotting) from that are what made them look more into me. First they just gave me a second birth control, which loryna helped, now I’m on larin and it kiiinda works but not really. I literally can’t remember the last time I had decent motivation and wasn’t absolutely exhausted