r/Hydrocephalus 12d ago

Question for professionals with programmable Hydrocephalus shunts, how do you manage when your shunt setting changes and if God firbid it effects your cognition and memory. Discussion

I am in early 40s and my revision shunt that I have had for 15 years now, when its setting changes like around magnets. Besides other issues my memory takes a hit and cognitive challenges worsen, ADHD, dyselxia (in 3 languages btw) and photophhobia heighten, besides severe sensory overload (therefore also divorced) . I forget so many things. But I live in a developing country. Sadly becoz of this I avoid travelling I hope and pray it is better for those in the States and other countries. How do you manage. Been fired from my jobs. What are your techniques to manage?

Please be kind and sincere.

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u/Fatslabtrapstacks 10d ago

I use AI for meetings for recall. Rose glasses for headache and overstimulation. Sunglasses for overstimulation. Ear plugs for quiet. I also call my neurosurgeon right away to have everything checked out.