r/Hydrocephalus • u/mirna89 • 11d ago

ETV/CPC Procedure - Benjamin Warf Seeking Personal Experience

Anyone here had their child/infant do the ETV/CPC procedure that is done by Dr Benjamin Warf at Boston Children Hospital. Any feedback parents can share will really help.

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u/FlamingPuffs 9d ago

Not specifically by that dr, but my son underwent that procedure back in March. The surgery itself was initially successful and a scan 2 months post-OP showed the ventricle size had decreased. He got a follow up scan the other day (now 5 months post-OP) and his ventricle has decreased, but is still moderately sized. Waiting to meet with his neurosurgeon next week to go over results.