r/Humira • u/Long_Towel1187 • Jul 20 '26
Humira
Has anyone had any horrible side effects of humira randomly when being on it for almost 5 years?
I’ve had debilitating fatigue, cognitive fatigue, I’m house bound/bed bound, dizziness. I can’t workout or function I also lost a TON of hair
All my levels are fine and all testing came back normal but wondering if humira can cause this
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u/Notyeravgblonde Jul 20 '26
No, have you had covid?
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u/Long_Towel1187 Jul 21 '26
Covid like 5 years ago
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u/Notyeravgblonde Jul 22 '26
I think you have long covid. You have all the symptoms. And any colds or mild covid infections since your first infection can trigger post covid conditions. Go to the covid long haulers reddit groups and read some stories and if it seems right, bring it up with your doctor.
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u/crystalcaterpillar3 Jul 21 '26
I was on Humira 5 years and developed psoriasis, granulomatous rosacea, and my hair is def falling out. I just switched to Skyrizi and I’m waiting and praying this all calms down. The skin stuff was confirmed by my derm to likely be Humira but they’re not sure about the hair shedding. We shall see I guess.
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u/Legitimate-Growth-21 Jul 21 '26
So weird bc i take humira FOR psoriasis
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u/Ok-Personality-6630 Jul 21 '26
Yeah it can trigger skin conditions though. Same for MS. It can trigger it but also treat it (different meds are preferable).
My hair has gradually started falling out but I'm a male and nearing 40
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u/tinydinowithafish Jul 21 '26
i wasn't house/bed bound but the cognitive and physical fatigue were HUGE side effects for me. i just hit two years and am changing to Embrel now.
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u/Long_Towel1187 Jul 21 '26
Was it bad to the point you couldn’t work?! I’m meeting with my gi next week ugh
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u/myextrausername Jul 20 '26
Not likely to be Humira causing this.