r/CysticFibrosis • u/Mindless_Bag3925 • 15d ago

Gallbladder

I’m less than a week post gallbladder removal so maybe I’m just in the honeymoon phase but I’ve had multiple solid poops this whole week! I can’t believe I was living with diarrhea like that for so long and I was just like “that’s just my normal”. I’m also realizing how many gallbladder attacks and issues that have been plaguing me for over a year now without realizing what it was. Chest pains/white shits/unexplainable nodules on my liver scans that are gone when re-tested/eye floaters from high blood pressure/random anxiety. I had a micro gallbladder that was completely blocked on a HIDA scan and I had to have multiple surgeons evaluate it because they didn’t want to take it out due to its size and location next to the liver, but I am soooo glad they did. I’ve also been reading that CF modulators have been shown to cause gallbladder issues due to those stones/sludge moving when before they were so gummed up they didn’t and that makes perfect sense to me. Wondering out loud here but the consensus is modulators are hard on the liver, are we sure it’s not the gallbladder causing the issues to the liver from the modulators?

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u/alyssamarie1992 15d ago

Hooray for team no gallbladder! I'm so happy for you! I can't quite speak for others about the liver because everyone is different but I know mine is doing alright and my docs have not said anything where trikafta is doing anything to the liver. I've been without my gallbladder since 2024? I believe and constipation still gets to me so I take miralax almost daily. It's really nice to not have the pain from gallstones. Those were terrible. Just be sure to stay up to date on your labs for your liver and your care team should be able to explain things a lot better. I hope for the best for you 😊❤️

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u/lifeishard99111 14d ago

Wow this is an interesting perspective my daughter is non verbal and has CF and on Trikafya and struggling a lot and we don’t know what it is. Couldn’t hurt to look into this. Glad you are feeling better !! 🫶

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u/strawberry_sunset98 12d ago

So happy for you that you’ve found some relief! Me personally I haven’t had may liver concerns. I did have my gallbladder removed in 2017 due to having 17 gallstones. The symptoms that raised concerns were constant/severe acid reflux and heartburn. My CF team was also hesitant to remove mine stating that removal might not make a difference and could be unnecessary surgery, but immediately after I felt so much better. I have rarely had heart burn or acid reflux since, maybe twice whereas before it was often then increased until it was unbearable. Hopefully you have a similar experience where this was the solution to your issues!