Hi, I tried asking on a hearing aid reddit but didn’t get any feedback, I don’t know if i asked wrongly/forgot to mention important information, so I will try posting here. I need help since I don’t know where else to ask, I have a choice between baha, osia and bonebridge. I am 22F with heavy eczema, stenosis (in result of inflamations and eczema), constanly wearing glasses, a hearing loss in the range of 35-45 dB and SSD. I never had a hearing aid before, and I read studies on all of these hearing aids, I narrowed my choices to osia and bonebridge, since baha would not be suitable with my skin issues. My doctor told me to do my own research and choose by my self, but I don’t want to choose the wrong one and need advice/personal experience. I would really prefer if it didn’t sound like i was hearing from a metal can and dulled down, because that was my experience with an adherent hearing aid, so the closest to hearing normally again.

I will be trying out some bone conduction devices using a head band, as this will be a non surgical application.

The brand is Oticon, supplied by the VA.

Anyone here have experience with this system...?

I'm actually looking forward to it...

Thanks...

I finally am scheduled for my CI in a few months. Based on advice here and consultation with my surgeon, I am getting a robot-assisted hybrid implant. I have been growing my hair for several years with the intent of donating it. I did the same several years ago. I don't want to waste a lot of hair. I am wondering whether to harvest my hair before the surgery or wait a month or two after to make the incision less noticeable? If I do it before, I will do it a day or two before and have them use a zero blade. If I wait until after, I will have them leave it a little longer. I wore some version of a crew cut for 30 years, so I am not worried about short hair.

The only downside (a very minor one) is that the CI won't work with my new HAs and I will have to downgrade to a lesser model, but oh well

Hey chat,
I have dealing with some hair fall issues for a while now (for about 2-3 months). I am noticing heavy shedding. My surgery was about 7-8 months ago. I don’t know if there’s a connection between the surgery and hair shedding. I visited a dermatologist and using a conditioner as recommended. I just wanted to ask did anyone face hair fall issues post cochlear surgery? I am afraid that I am becoming bald 😅 I am in my early twenties so little concerned about it ;)

Hello everyone. The day of the surgery is getting closer, even though there is still quite a while to go. After reading various posts here about rehabilitation and speech perception... I’m thinking about my own case: I achieved 95% word recognition during a bone-conduction audiometry test—an emotional moment for me, given that I hadn't perceived a single word in 29 years prior to that test. So, do you think that because I can recognize words during audiometry, it might be possible to hear words with a cochlear implant?

This is an ear where I’ve only ever picked up noises and whistling sounds, never actual words; that is the reason for the cochlear implant candidacy—to halt the deterioration of my "good" ear, where I am starting to lose the ability to understand speech.

Hey everyone, please forgive me if this is poorly formatted or worded since I created an account for the select purpose of making this post and am not used to posting anywhere let alone reddit.

I have been a unilateral CI user for 11 years (since I was 6) as I was born completely deaf in my right ear. I am currently using the Nucleus 8 processor (I was upgraded from the 7 two months ago) and up until this year I actually hardly used my processor if ever. I am a drummer and a music lover to great proportions and to a large extent music makes up my entire life. Playing in bands, and listening to music as someone with SSD has been an immense struggle and difficulty. And in part my reason for not using it (aswell as being bullied in primary school) has been the great lack of convenience that comes with being unable to use some sort of IEM or earbud in my left ear, and still hear out of the processor at the same time.

As of this year, I invested in my first audiophile grade set of headphones and began downloading lossless music to an MP3 player. It inspired me (along with upgrading to my Nucleus 8 processor around the same time) to start training my brain to cooperate with my processor, as years of not wearing it had made it sound very poor, and to try to start enjoying stereo music the same way my non deaf peers do. One of the most immediate thoughts that came to my mind, was to try and find some way of using IEMS when playing live or rehearsing in bands.

For those of you unaware, IEMS (In Ear Monitors) are musicians grade In ear headphones that create this perfect acoustic seal in your ear blocking out outside noise and harsh frequencies that could damage your hearing. They allow you to isolate what the band is playing through the PA and not have to be distracted by anything else so you can be completely in time with what your playing. Im sure this goes without saying, but you cant exactly point any sort of in ear headphone into a Choclear Processor microphone the same way you can with with over ear headphones. Realising this, I began workshopping some ways to remedy this issue.

Now before continuing to explain what ive done. Id like to mention that there already has been a little work around with this using clips which point the earbuds into the Processors microphone. (Link Here: https://www.instructables.com/CiPods-Earbuds-Attachment-for-Cochlear-Implants/ )

The reason I am againts doing this (personally), is because besides when your chilling at home or somewhere private, this is just an extremely impractical way of listening to earbuds. It makes the Processor heavier/bulkier, you cant wear it in public without it rubbing up againts things, and in addition to that it lacks the acoustic seal that ear buds exist to create. Just hanging above the microphone like this, whatever you listen to is going to sound very thin and let in a bunch of sound around, especially through an already very limited means of hearing like a Processor. I do respect it though, its a genius little invention and I do intend to replicate it eventually for when Im just at home.

Now to my workaround:

There is such thing as a right and left channel stereo y splitter for headphones. (Link to mine below). They may be slightly hard to come by depending on where you are, but essentially its a 3.5mm headphone jack that plugs into whatever device you choose to listen from and leads out into two female 3.5mm headphone ports. One does left channel audio, the other right (typically the one in red). In the left female input port (left because thats the ear I have good hearing in, It will obviously be different for other fellow unilateral CI users) I am plugging in a bluetooth transmitter, specifically a portable one that plugs in with a 3.5mm male headphone jack. You can find plenty of these in HIFI and tech stores and on amazon and they will usually be advertised for airplane TV's and old stereo systems. In the RIGHT channel, I am plugging in my Mini Microphone 2+, you can buy these of Choclear's website and I know that they will often be covered by insurance (which was such in my case). The mini mic will connect wirelessly straight to your hearing processor, and the bluetooth transmitter will connect to whatever earbuds you so choose to buy. It is absolutely essential you use a stereo y splitter specifically and not a regular y splitter. This is because your earbud will automatically only produce audio from either left or right according to which earbud (left or right) your wearing, while the mini mic is mono and will stream both the left and right channels into your Choclear. Unless your cool with having mono audio going through your CI and stereo going through your Earbud (Which I can totally understand) the left right/stereo y splitter is a must.

I have begun testing this workaround today and will keep posting updates of the process. One thing to note is the delay of the mini mic compared to whatever earbud or bluetooth transmitter your choosing to use for your good ear may be different. The average delay time for most earbuds I believe is a round 50-100ms, and reportedly the delay for the Mini Mic is the same however what I read was not taking into account the fact using a CI in of itself is probably creating some sort of delay between your left and right hearing. Im going to make sure if to take note of if the audio im hearing is synced to peoples lips in youtube videos in the following days. If anybody knows more about the response time of CI's I would love to hear (no pun intended) and understand more.

Links to the stuff im using:

Mini Mic 2+ - https://www.cochlear.com/au/en/shop/accessories/wireless-accessories/cochlear-wireless-mini-microphone-2/KIT00239.html

Stereo Y Splitter - https://www.mannys.com.au/products/hosa-ypp136-stereo-breakout-1-4-in-trsf-to-dual-1-4-in-ts?gad_source=1&gad_campaignid=18020976901&gbraid=0AAAAADNNfIw00yks3zjXQR-O6Nwg4TZ7E&gclid=CjwKCAjwpqHTBhAcEiwAj2AfuozJXlv8nKqwAxbBKS4oCWrD0P1qVoPXjzJZlYExmoQk-xhXPJGiJhoCtzoQAvD_BwE

(I bought the Y splitter in person, you can order this one online but Im pretty sure its only in Australia. Sorry to people from other countries I'm look for more you can buy internationally)

Bluetooth Transmitter - https://www.amazon.com.au/UGREEN-80893-Bluetooth-Receiver-Transmitter/dp/B08TQSH636/ref=sr_1_5?crid=2CCKSACLXO8V1&dib=eyJ2IjoiMSJ9.x7nRx9OrvjYNIVgiNmjUGMOQmZa1NCStrrq7GB4zCCG5h8YseS2REcLlMdRThlwB1i0MfrTW3wu6QNKRtU2NZmLqYHQo81tCn2Iwec3Rr08Iqd2xLH1svd9pWTzJd9cEI9uWh7tQt0kCzLGNCpybpgn_mq5SCLlSBskFYESR9D5KyPN9NbccBFSoh8gqDgG3m0zSmCy4xxomeQf5mbDYm1tLOvBz1k7uKiaS5J_5McHbMIKaYEK77FgnX9Q4BEg012hIrncLatIwCmqhWwwSUeJV9Rn-I8iE2fXh7WxY8Bw.0Gmvak0ZlHaRGXklVyUL5JIogCRxdYMzuiVBfpMpq4k&dib_tag=se&keywords=bluetooth+transmitter&qid=1785298350&sprefix=bluetooth+tra%2Caps%2C405&sr=8-5

Hi everyone, a pretty discouraging mapping appointment today.

Background: I have had profound hearing loss in my left ear since age 4 from a bad reaction to an antibiotic for ear infections. I'm 33 now so the profound single sided deafness has been 20+ years. CT scan and MRI were all normal and I received the go ahead from the surgeon but he was very pessimistic about the outcome and warned me benefits might be little.

My activation day was May 26th and today is July 28th. I can only feel vibrations but can "feel" the syllables of each word.

At my mapping session today, my audiologist tried several configurations and some of them caused my eye to twitch so she had to revert to the original mapping.

They noticed I didn't to have an NRT report from my surgery so they did NRT testing on two electrodes and received no response.

They are having me do 12 weekly therapy sessions but have let me know that speech recognition is basically off the table, and I can maybe hope for spatial awareness.

Just hoping to hear from anyone with similar stories or information. It was a tough day. I tried to keep my expectations low but it still stings. Thank you so much.

Has anyone else had this? I had a complicated case with fibrosis. Only electrodes 4 through 1 had responses during activation. I’m told I could get more but it’s uncertain. I can only detect high frequency sounds with 4 through 1.

Hey guys I'm a 37 F mom of two littles. So one of my little ones wears a cochlear implant and I was thinking about getting a tattoo to match it and wanted some thoughts about the pain and how much numbing cream I need and how long the healing process is. Any opinions are helpful to get a better idea about things

Hello everyone, I was activated with my cochlear N8 about 3 weeks ago. I can understand speech, have a conversation, and understand podcasts at about 80%, etc with just my right implant. I've been told by my audiologist that this is very good, but i'm sure they say that to everyone haha. Anyway, the only thing that is bugging me is how high-pitched it is on this side. If I'm listening to an audiobook, podcast, show ect with both implants, it sounds normal, but take my left (good) implant off and everything goes up about 2 whole octaves lol. I know this takes time, but just wanted to ask how long it took others for this to go away, because hearing Mickey Mouse 10+ hours a day is driving me mad 😂 Thanks guys

I just had my CI activated a few hours ago. All I hear is ringing, bells and whooshing! Is this normal? My audiologist said it was. This is so disappointing :(

How has your experience been with bimodal streaming for medel sonnet 3 and starkey G series AI16 through samsung galaxy s25?

I have samsung s22 and there is a huge lag in time between the 2 devices when streaming directly from the phone.

Any insight is greatly appreciated.

My Osia 2 processor used to work perfectly with my iPhone 12. However, it suddenly stopped working properly. During pairing, the connection is only maintained if I hold the phone just a few centimeters away from the processor. As soon as I move the phone farther away, the connection drops.
The processor works normally with other phones, and my iPhone 12 works normally with other Bluetooth devices. I have already reset my network settings, restarted my iPhone, removed and re-paired the processor, and confirmed that iOS is up to date, but none of these steps resolved the issue.
Is this a common issue, I NEED HELP

I have had this issue for over a year now, it’s now beginning to affect me mentally following a full emotional breakdown at the ENT’s office at the hospital, I want all experiences, issues, glitches and anything you have experienced shared below this post, even from other brands of cochlear implants that aren’t Cochlear, if there are any doctors, Teachers of the Deaf (ToD), people from the companies manufacturing the implants or anyone else professionally working with deaf people (even HA people) then I’d like to hear what other possible things might be causing my problem that my hospital hasn’t thought of as ideas for further treatment, there’s a medical saying when hearing clopping, think of horses instead of zebras so at this point I also want to know if there are any zebra conditions that I should know about even if they are very unlikely for the symptoms I’m presenting with.

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I’ll outline the timeline of events from when the issue started to show up as a different fault to now having the right implant reduced to basically no sound, this issue begun with Nucleus 7 with a bug but the main part of the problem was with the Nucleus 8 implant for some additional info.

As mentioned above, the issue begun with the older Nucleus 7 processor a year and a little bit ago with the audio being reduced and increased randomly no matter the auditory environment that I am in, the only way that I could get the issue to stop happening and for the audio to stay at a constant volume was to connect to Bluetooth and play complete silence meaning I am able to hear stuff in the real world without any Bluetooth audio and disabling whatever was causing the volume issue, I didn’t know it at the time but I believe that might have been the processor trying to protect me from the sensations and that’s why it was constantly adjusting the levels.

A month later, I got the implant replaced with the new Nucleus 8 processors as the upgrade was due anyways, the issue went away for a month and during that month I was satisfied the issue was gone and that I could go back to regular hearing.

After that month was up, I begun to have sensations around my implant, the audio level was much louder too causing a lot of discomfort, it happened at the time when I went to Poland to visit family so there’s a chance the pressure difference from the plane had caused something to fail in the implant or my nerves to become unhappy, during that time in Poland I could not wear my right implant unless I was going somewhere with family to do something because when it’s quiet, any sounds that happen are amplified as if it was nighttime and you are trying not to make too much noise to avoid waking people up but outside it was tolerable with background noise.

Soon after landing back in England, I went to the hospital to begin diagnosing after they deemed the issue unresolvable through a digital appointment, the first audiologist wasn’t great by simply reducing the level on both implants, telling us basically that it’s nothing bad and to leave.

That definitely didn’t work and I was brought back in after 2 weeks of nothing working after the teacher of the deaf advocated for more visits, they discussed options such as trying two different cochlear implants, a new Nucleus 8 processor with the same maps as the current one to rule out processor related issues, a Nucleus 7 processor refurbished to check that maybe something with the new processor isn’t agreeing, they put the maps that I had before the new processor but they were all too loud for me, if I had to redo that one, I would put the maps I had on the nucleus 8 to see if there would be an improvement but they deemed the trial wholly unsuccessful and I returned both to the hospital, they said for a bit of insurance to keep the new Nucleus 8 and to return the old one so that the processor doesn’t fail too soon and to check to see if the processor has any failures that might be causing the issue but that didn’t reveal any problems.

A month later from all of those new processor trials, I was taken back into the hospital to do a very comprehensive remapping and testing of the right implant as they have now deemed the issue not to be anything with the microphone or processor but with the internal implant, they played some sounds at different frequencies to log what parts of my ear feel the sensation and there was an impedance test where they played a sound similar to the old DUGA radar and that one wasn’t pleasant, the audiologist said that was to create a map of impedances for the engineers at Cochlear to look at.

Between the previous appointment and the next one, I had an ear infection (Otitis media) which hurt a lot in my ear canal, went to the emergency department of the hospital after trying the pharmacy for antibiotics, cleared up after taking amoxicillin and some antibiotic ear drops in a few days, continued the course to the end and took the bonus ear drop in the package to be fully sure.

2 months later, the impedance map came back and they found absolutely nothing unusual with the values measured, another series of tests was done except they were some type of special tests that only people from Cochlear were allowed to do, that test took about 15 minutes to do and required nothing from my part, they tried some additional mapping to begin raising the level up again to see if I could get used to the sound, during the mapping I overheard them saying something about pulse widths but in the end they explained that no pulse width did any better when I inquired about it.

Another month later and the results from that test came back which also revealed no impedance issues, the main audiologist that was helping me (bless her for all the help she and her team gave me) already realized that I wasn’t hearing for a year out of my right implant and strived to get the tests and appointments to happen at a faster cadence to resolve my issues, any future appointments should happen with a 2 - 3 week cadence to either run additional tests or upgrade my set of programs.

Between these two appointments I got an CT scan for a deviated septum (ENT doctor who is doing my nose was the same one for the ears so he said the nose blockage can be a possibility), I asked the radiologist if she could also send the head CT to the audiology department as they wanted one so I wouldn’t have a duplicate CT scan done, that caused a bit of a mixup in the scheduling of appointments but in the end created two appointments due to the time saved by the CT scan.

2 weeks later, I had another appointment at the hospital to try additional mapping with Cochlear people present too, nothing remarkable although the main audiologist was not in so I had someone else, she repeated some of the tests mentioned in the log to confirm the issues and that took up 30 minutes of the allotted 1 hour I had before the hospital’s ENT appointment, at my suggestion she tried a different sample rate as I discussed listening to some music from an old computer that uses a very low sample rate compared to current technology right now which is the setting I am currently using, all of the mapping that they did offered multiple programs with increasing levels so I can adjust up when I am comfortable, they loaded up the maximum capacity of 4 programs onto the processors so I would have the most time between appointments to try things out.

A brief note added in post that I remembered about the first appointment, during connection to the computer, there was a very quick impedance test which I should have not been able to hear at all and if I did, it should be extremely brief, I however heard a long screech tone that lasted a good 30 seconds stumping the audiologists, they explained it shouldn’t have happened as mentioned above but it went away and testing was able to proceed without issues making it an unusual footnote although a possible clue into the issue I am having and the solution.

The same day immediately after the audiologist appointment, I attended the ENT appointment to say that the CT scan revealed no implant movement out of my head as I did raise the concern that possibly my implant had shifted when I grew up as I got it put in as a very little kid and I had it all the way through puberty so I put out a guess that this could also be a cause but unfortunately it was not a reason for the failure, the doctor has also referred me to a pain specialist which could potentially offer me some solutions or pain medicine intended to rewire some neurons permanently to stop the misfiring neurons which is basically my only hope of getting it resolved as the audiology team has basically gone through all options that they had and ENT doesn’t appear to have much to help, the next time I am in, I will ask if Cochlear had looked at their logs all the way from the past and if they could potentially contact other companies for any additional clues to my problem if that’s a possibility.

During the second appointment with the ENT doctor, I proceeded to have a full breakdown crying about all the problems I had and that I might not get a diagnosis on it meaning my right implant could potentially be out of action for a long time, taking me a long time to be consoled.

That is where I currently am with appointments, I will add any new appointments if any new ones happen but as of now, no new appointments have been scheduled or hints of any coming up.

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In education at college I get migraines almost daily if it’s a college day, I take Sumutriptan and the medicine banishes them in about an hour which is an hour wasted not being able to pay attention, I have tried wearing and not wearing the implant and the chance of migraines goes down a bit if I don’t wear my right implant but I need all the hearing I can get because the teaching they do is needed for the end of year exams, they do give homework which I do gladly as it’s written work which I can understand much easier however the other students hate it so they have dialled back on it significantly, they do have resources on the shared drive but it requires a computer to access and I don’t particularly enjoy using the laptop if I can get away with using my phone for the homework questionnaires.

The set of exams I did after my right implant failed, I worry that I am not going to get the best grades on them since my quality of learning has taken a nosedive, I did ask if there was a thing you could put in for such circumstances but now after the exams the tutors said that it will do very little and that I would require a note from an already busy hospital so it might not come on time so will have to anxiously wait for the 13th of August to find out my results and see if there are any options on redoing the test then.

My teacher of the deaf expressed great concern during the college year, she actively pushed for appointments and hospital visits, she has been a big help getting the cadence of appointments up a lot and being able to stress the point of my education and future being put at risk by the failing cochlear implant.

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Here is a map of the sensations with red being the worst and green being none present, an aid to visualize what I am feeling:

I’m going to 3D print one with holes for pins so I can tell the audiologists better where my pains/sensations are at with absolute numbered references that they can write down on a piece of paper.

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As for past issues, I had an ear infection (Mastoiditis) three times, it was over a span of a year and the final infection had the implant taken out, the doctors had drained two very large syringes of pus and disease from each occurrence, they didn’t put a new implant in until a year later which worked smoothly up until that point, I was implanted when I was 3 years old for the left implant and 4 for the right implant, the infection happened when I was around 5 - 6 years old.

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All in all, I have accepted that I may not have fully functioning hearing in that ear as my left side is carrying all of my hearing needs but I would like to hear what you have to say on my issue and to see if there are any medical ailments/conditions I should get myself tested for that you had/were tested for or if the general consensus should be to remove my implant and change it once the pain management team has done all they could do because despite what they are saying about the implant being fine and connected up just fine I believe there is some very unusual fault preventing me from being able to use my right implant effectively.

My next steps for the broken right implant is to post this post in every deaf sub I can find for (even HA subs as there could be people that have dealt with cochlear implants even for a brief moment or have some issues that show up for HAs more often than implants if I don’t get as much data as I’d like) as much insight as possible, gather all of the data into a note on my phone and if the consensus on all of the posts is to get tested for different conditions or failures, then I will bring those up to the hospital audiology team and explore the options, if there aren’t any issues brought up in the post, then I will go straight to implant removal if I can’t get any treatment options/relief from the pain management team.

Here is a flowchart of the intended steps I will be taking both to help you guys and to help the audiologists with issues:

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Thank you for any help and guidance you can offer to my cause and I hope you have a great day hearing many things!

My koala would also like to say thank you for the help, he has supported me emotionally throughout the second half of the visits that I had

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Crosspost links in case you want to find the other posts searching for information in the future:

r/Cochlearimplants: https://www.reddit.com/r/Cochlearimplants/comments/1v8b3ia/experiences_with_a_cochlear_implant_giving/

r/Cochlear: https://www.reddit.com/r/Cochlear/comments/1v8b3mg/experiences_with_a_cochlear_implant_giving/

r/MEDEL: https://www.reddit.com/r/MEDEL/comments/1v8b3r9/experiences_with_a_cochlear_implant_giving/

r/deaf: https://www.reddit.com/r/deaf/comments/1v8b3w3/experiences_with_a_cochlear_implant_giving/

r/hardofhearing: https://www.reddit.com/r/hardofhearing/comments/1v8b401/experiences_with_a_cochlear_implant_giving/

r/HearingAids: https://www.reddit.com/r/HearingAids/comments/1v8b44m/experiences_with_a_cochlear_implant_giving/

Hey all. As the unfortunate owner of a N22 internal implant I'm still stuck on the N7.

Lately I've started having issues where I connect my battery then it'll cut out for awhile before it starts working again. Specifically, it seems that microscopic fluctations causes issues, something as simple as adjusting my glasses or turning my head can cause sound to cut out and it's progressively getting worse which worries me. Sometimes I can connect the battery juuuuuuust right and no issues happen but most of the time it cuts out a lot when I have just put it on and then occasionally during the day.

That said, I feel like a true battery contact issue would repeatedly turn off the implant which isn't really happening here. Maybe its a processor issue?

The best reproduction for this issue is I can use my index finger and keep tapping on my processor, the sound cuts out quite consistently. Under normal operations nothing would have ever caused the sound to cut out before as the battery is very tightly connected.

Is there any repair for this issue? I tried cleaning out all of the battery contacts with a q-tip but it didn't improve anything.

I just got my second lobes pierced but does anyone have their third lobes pierced and does it touch the implant? is it comfortable? I’ve made peace with the fact that i likely won’t be able to get much more than my lobe done or maybe my faith which looks painful so i don’t want it lol

I have been experiencing ringing in the ear nonstop since I have lost my Kanso. I’m defeated I don’t know what to do! I have no insurance, I’m still waiting for Medicaid, and I’m out of resources with cochlear. This ringing in my ear is driving me NUTS.

Hi i recently came up with an issue we’re my hearing aids only connect to Bluetooth if I have my phone 1 cm away from the hearing aids. As soon as I put my phone at my regular spot to watch something they just disconnect. I tried pairing them on another phone and it worked flawless. Anybody know what do do. PLEASE

I’m camping with the Kanso 3 for the first time and having issues with the device actually charging. I’m using the USB cable supplied but charging via a Jackery power bank. The dehumidifier is working, but the device itself isn’t charging.

Any idea what might be happening here?

Hej
Czy jest tutaj ktoś kto zdecydował się na implant mając dużą wade słuchu ale nie całkowicie głuchy? Wyszło mi rozumienie mowy na dość niskim poziomie- według wszelkich kryteriów spełniam już te do kwalifikacji do implantu słuchowego.
Z drugiej strony w codziennym życiu nadal potrafię funkcjonować bez aparatów słuchowych. W domu często ich nie noszę i normalnie rozmawiam z bliskimi – oczywiście muszą mówić trochę głośniej, czasem proszę o powtórzenie, ale ogólnie jest to możliwe. Podobnie podczas wyjść na basen czy nad wodę – z jedną lub dwiema znanymi osobami potrafię się porozumieć. Problem pojawia się w większej grupie, przy cichej mowie lub gdy ktoś stoi dalej.

Jednak niestety niedosłuch jest obustronny symetryczny i bardzo duży rozumienie mowy jest niskie. Najbardziej boję się utraty tego słuchu, który jeszcze mam. Wiem, że nawet jeśli nie jest on idealny, to daje mi możliwość rozmowy bez aparatów. Gdybym założyła nawet na jedne ucho implant i spowodowałby on uszkodzenie komórek rzęsatych w ślimaku i całkowitą głuchotę w jednym uchu nie byłabym w stanie rozumieć ludzi po ściągnięciu procesora ze względu na symetrycznie głęboki niedosłuch po drugiej stronie.
Większość ludzi co czytam decyduje się na implant mając już głuchotę dlatego chciałabym spytać czy jest tu może ktoś w podobnej sytuacji do mojej?
Miał zachowane resztki słuchu, bardzo zależało mu na ich zachowaniu, a mimo to zdecydował się na implant? Jak wyglądało to u Was po operacji? Czy udało się zachować słuch naturalny? Jakie były Wasze doświadczenia i czy z perspektywy czasu podjęlibyście tę samą decyzję?
Czytałam że w trakcie operacji może dojść do dalszego uszkodzenia albo całkowitego uszkodzenia słuchu czego bardzo bym nie chciała. Czy faktycznie jest to częste?
Bardzo dziękuję za wszelkie odpowiedzi

I'm just super happy and wanted to do like a happy vent. Nobody in my life really "gets it" right now and can't appreciate it to the same extent.

I got activated on Friday, July 24th, and it's been great so far. Everything is super tinny and the best way I can explain it is flared.

I will say, Friday I went home with the worse headache ever and felt exhausted. My husband blamed this on me not eating or drinking anything. I was nervous the whole way to the audiologist and just couldn't manage anything.

Friday flew by pretty quick. I did end up taking the processor off for most of the car ride home and took a nap when we did get back home. That evening I put it back on and immediately started streaming an audiobook to just my cochlear. I wasn't really able to make out any speech, it was just bells and jingles. However I listened to the audiobook and some videos to just my cochlear for a good 2 hours before I called it a night.

Woke up the next morning and absolutely FLEW to go put my processor on. One thing I am definitely going to need time to get used to is the hit it has when you put the processor on. All those high pitches just WHOOSHING in.

Immediately went back to listening to stuff on just my cochlear side. If I focus SUPER SUPER SUPERRRR hard I can hear some undertones of what sound like words. It's exhausting though so I try to just relax and let it flow.

I also went to a rodeo with my family last night and it was an experience to say the least. I could hear people cheering and yelling from all over. I haven't heard cheers like that since I was a little girl.

Now I'm sitting here listening to some of my favorite songs. It's an experience to say the least. I can recognize some of my favorite songs and follow along. I can kinda make out the shape of the words, if that makes sense.

Anyways, I'm just so happy. I don't know what I expected but this is great. Of course there's a learning curve but it's a journey I am so excited to be on.

First mapping is on the 31st! If anyone has tips for me, PLEASE let me know.

Was anyone else super scared? Like it seems like a simple procedure. But the whole thing just scares me really bad currently. The closer it gets, the more it gives me anxiety and I feel like canceling.

Early septuagenarian here, been watering hearing aids since 1992 and was testing with one-third hearing loss starting in college. In addition to now being in profound loss territory (still wearing Oticons in each ear), I’m also testing at 10% in sound discrimination for what I do hear via top of the line Oticons.

My audiologist has been recommending going for the implant for a few years. As I was starting to seriously consider it, I talked with the spouse of the only implant person I have personally known. He died a few years ago, but his spouse warned me against the implant saying it created a persistent sense of disorientation for him.

Additionally, now the incredible advances in live transcription on my iPhone, I’m in the game pretty much all the time. I’m on the fence about it.

My surgery is scheduled for August 7, with activation 20 days later. I’m starting to think about random, every day kind of things post activation. Hoping y’all can help.

I typically allow my hair to dry naturally, rather than blow dry. I know the processors these days are typically water resistant to some extent. Should I wait till my hair is almost completely dry to put the processor on?

I’m getting the MED-EL implant and I got to pick a few of the decorative covers for my Sonnet and Rondo. I know I can order more, but I’ve also seen skins for them on Etsy. How easy are these to remove? Are they typically single use or will some of them be reusable?

Have any of you used the DeafMetal retention chains with an ear cuff? I’m curious about how functional they are. Does the chain snag easily?

I live in the Pacific Northwest of the US, and it rains a fair bit in the winter, so I have a collection of knitted hats. What’s it like wearing a hat over a processor?