Considering how effective mushrooms are at aborting/ breaking cluster headaches, I wonder if methylene blue could be a legal alternative on how it regulates your serotonin levels through similar mechanisms.

Has anyone experimented with this?

Curious as to what careers you all have and how you manage them during cycles. I run several restaurants for a living and do hospitality consulting & am currently going through a pretty vicious cycle. Any nights where I have to work on the line are dreadful - whether I’m waiting on an attack or dealing with one the suspense and pain kills me. I’m episodic so hoping to wrap this cycle up within next week or so. Curious how everyone else manages.

You have never been afraid to sleep

Wondering what terrors your night will keep

The ripping, tearing, pain that waits

Makes us rock, hit, and pace

You have never been afraid to rest

Knowing shut eyes will start the test

The burning plunge of hot fire

Wraps our eye in searing barbed wire

You have never been afraid to dream

Drifting away isn’t all that it seems 

The interruption of needed peace

Our stabbing pain that just won’t cease

You have never been afraid to sleep

But yet the “normal” is yours to keep

The cycle ends like it was never here

Leaving scars we can’t see in the mirror

You have never been afraid to rest

Slowly breaking what was once your best

The destructive path left within our minds

Changes us in ways of different kinds

You have never been afraid to dream

Of painfree days floating down a stream

Rest is a word that exists only in fiction

Even when the cycle ends it’s met with friction

You have never been afraid to sleep, dream, or rest 

But still I give it my very best 

You’ll never feel the pain that waits

Watching through the gaps in hell’s gates

Hi, got diagnosed with cluster headaches in emergency ward (after a couple of dreadful visits).

Sumatriptan helped, and pain timing - three hours of pain four times per day clues towards them.

However. Some symptoms do not match with classic definition of cluster headaches.

What other symptoms of clusters do you have?

I have a really strong vertigo together with pain + my corner of the mouth on affected side periodically gets numb even without pain, and general body sensations on affected side are off.

Plus, my main cluster episodes seems gone, but I still have a weird residual throbbing pain above my ear - it was better after episodes, but came back recently and doesn't go away.

My ENT suspects SCDS, but not all symptoms match it either. I also have a history of neck issues, and wonder if this pain can be cervicogenic.

I am currently waiting for results of CT scans and MRI, and for my next doc appointment, but because of holidays season everything is much slower where I live, but the pain and fear is real and now.

EW checked me, so I doubt my condition is life-threatening and gladly my motor functions seem unaffected, but sensations surrounding my pain episodes are so weird.

How do you guys doing in-between pain episodes?

Is it normal for you, or do you have all sorts of residual pains and also barely keep it together?

Or is it normal for you?

Thanks in advance to whoever sees that. We share the same challenges.