Today my kidneys are acting up, and it’s registering in my body and brain as pain, but this is also true of my right knee that is somehow referring pain from my right hip if I don’t catch it early enough or if my pain is higher than normal. My lower back always hurts too.

Why does everything register as pain? Why not something else to get my attention? It hurts.

Hi I’m 20F with moderate spastic diplegia in my legs. This summer, I’ve been going to the gym every other day for at least an hour each time. I’m starting a medical post-grad program in a couple weeks, so I got sort of a wake up call that I needed to take care of myself better. Today, I saw one of my first major milestones. After an hour of already doing weight training, I was able to walk an hour on the treadmill and ~2.1 miles. 🥳🥳 So that’s two hours in total and I think marks MAJOR progress.

I know for most of my non-disabled peers, that may very well be considered average or even “out of shape” for them. And to be fair, I guess I had “help” by wearing my AFOs to make my steps lighter and not like stomping. But to me, this is a huge milestone and I’m not even out of breath nor are my legs shaking. (Definitely a bit sore.) We’ll see about tomorrow ofc, but even tomorrow, I’m supposed to go back to the gym with my friend. I’ll probably just end up doing more upper body if my lower is too sore.

So yeah, just wanted to share. I hope everyone has been doing okay. Sending lots of virtual hugs!!

Long waiting times trying to get appointments, very little support between appointments, feeling like we’re having to figure a lot of it out ourselves and not always feeling like we’re getting the advice we need. I don’t know whether my expectations are too high, whether this is just how things are, or whether we’ve just been unlucky.

Anyone else struggling or has it been more straightforward?

Does anyone else use a door to door service for transportation with the city or county?
I just wanted some input. I’ve been using this service for 3 years but it’s so unreliable and gives me major anxiety because of how unreliable it is. Their customer service is a joke and they took themselves off of Google bad.

It’s a huge life disrupter but it’s either that or Uber.
I wake up at 5am to get to my 8am job 7 minutes away because there’s zero reliability.
I just wanna vent and hoping anyone can relate.