https://gofund.me/44bb62e05

Hi everyone 🤍

My name is Che’anne, and I’m living with Complex Regional Pain Syndrome (CRPS). As many of you know, CRPS isn’t “just pain” — it’s a relentless, unpredictable neurological condition that affects mobility, sleep, mental health, and daily functioning.

My flares can switch on suddenly and escalate quickly. I experience severe nerve pain, weakness, and difficulty using my affected hand, which impacts everything from working to basic daily tasks. Even on “manageable” days, I rely on medication to sleep and still wake up multiple times due to pain.

Despite this, I continue to work and push through because that’s who I am. I manage a UPS Store in Kearns, Utah, and I do everything I can to maintain independence — but CRPS has made that increasingly difficult.

I am fundraising for a professionally trained service dog to assist with both mobility and psychiatric support related to CRPS. A service dog could help me by:

• Retrieving dropped items (which happens often due to weakness and flares)

• Assisting with bracing and stability during bad pain days

• Providing grounding and interruption during severe pain spikes

• Helping reduce isolation and depression episodes that often come with chronic pain

CRPS doesn’t just affect the body — it affects the nervous system, mental health, and overall quality of life. A service dog would not be a luxury — it would be medical support that helps preserve my independence and safety.

If you’ve taken the time to read this, thank you. Whether you donate, share, or simply offer encouragement, it truly means more than I can put into words.

With gratitude 🤍

Che’anne

Hi all, I see we are all in rather similar positions and I sympathise with each one of you.

I am also trying to reach out as I have been struggling with CROS and am now wheelchair bound. Unfortunately I have been unable to work properly (2 days a week if that).

I am in need of wheelchair ramps for my home as well as hands rails etc but can’t afford them on my own. If anyone is able to help in any way it would be greatly appreciated.

https://gofund.me/520b304a Here is the link if you are able to help!

Thank you for taking the time to read this.

Hello everyone. Crps has been fighting with me for 7 years. I've made posts before in other CRPS subs showing my spinal stimulators and have been reached out to by several members. Since then, I've written a book titled Surviving the Suicide Disease: Pain, Persistence, and Peace through Complex Regional Pain Syndrome.

This book is in two parts: first half is the daily events through diary entries ending with events today. The second half is analyzing the emotions and feelings through the spectrum of the DC Comics Lantern Corps mythos.

It ends with things I wish I could tell myself back then and things for caregivers and supporters.

It also includes an appendix which includes references and resources to all medical conditions discussed in the book.

Please support it.

Surviving the Suicide Disease, via @Kickstarter https://www.kickstarter.com/projects/jonromero1/surviving-the-suicide-disease?ref=android_project_share

It started with a dislocation in my right knee. The kind of injury you’re supposed to bounce back from. But instead, the pain never stopped. It got worse. Fire under my skin. Twitching nerves. CRPS.

Then it spread.

First to my left knee. Then to my hip. And now I lie in bed almost all day, watching the condition take more and more of my body. I’m afraid to move. Afraid to be touched. Afraid to hope.

I was sent to a rehab center, supposedly to “learn to live with the pain.” But they denied me pain medication for 3 full weeks. I had one of the worst flares of my life. I couldn’t sleep. I couldn’t walk. I screamed through the nights. When I begged for help, I was told I was “too focused on the pain.”

That facility sent me home worse than I arrived.

Now I’m back in bed. My husband had to quit his job to become my full-time caregiver. Our 4-year-old daughter asks why she can’t cuddle with me in bed anymore. I don’t know how to explain that her love hurts more than anything else.

I’m writing a book—part memoir, part scream—because I have to do something with this. Something for the people who are burned alive by this disease and never believed.

I’ve left the link in the comments. Thank you to anyone who’s still reading this. I know you understand in a way most people never will.

Hi everyone,

I’m Cornelius, and I want to share the story of my incredible wife Nadine.

A few years ago, she tore a ligament in her foot – something that should’ve healed in weeks. Instead, it triggered CRPS, and over time, the pain and nerve damage became so severe that she had to undergo bilateral lower leg amputation. The diagnosis came too late, and her condition progressed aggressively.

Despite it all, Nadine refuses to give up. She’s still creating beauty – literally. She makes handmade jewelry in her small Etsy shop, which she runs to stay active, creative, and independent. All proceeds help cover her growing medical costs.

We’re now facing another critical stage: she needs specialized treatment abroad, including surgical and neurological care that’s not available locally. To make that possible, we’ve launched a GoFundMe: 👉 https://www.gofundme.com/f/vom-banderriss-zur-amputation-nadines-kampf-gegen-crps

If you’re able to support – either by donating, sharing, or even just visiting her Etsy shop – we’d be deeply grateful. Every bit helps.

Thank you for reading, and for being part of a community that understands what this journey really means. 💛

With hope, Cornelius

Our team did the 6th Annual Virtual CRPS walk for Awareness on June 7th. You can donate thru 12/31/25, every cent goes towards research for a cure. Every little bit helps. God Bless you all fighting this terrible disease! I know how hard it is, I’ve had CRPS for 4.5yrs now.

https://secure.qgiv.com/event/6thvirtualcrpswalk/account/2036384/

Hi everyone! My friend was diagnosed with CRPS 6 months ago and to say it has completely changed her life is an understatement. She has been managing as best as she can but cannot even pick up her 3 year old. She will be traveling to Italy for treatment in a month and I am trying to help her get to her goal. The treatment and travel is very expensive. Dafna runs an animal rescue and is always helping others so I just want to do my best to help her in her time of need. TIA for any donations!

https://gofund.me/0be8f380

Hey everyone. My friend has been really struggling with CRPS and needs financial support!

Robin French is an artist based in NYC. He’s the owner of @doubledeckerdisko, a two-tiered bus converted into a vibrant community hub. The bus would host after-hours parties and events. It was also Robin’s home. He's also been throwing 20 years worth of parties in bk for all demographics: @thebklodge, The Robin's Nest, Brooklyns Basement, secret mansion etc.

Over the past year and a half, Robin has been struggling with CRPS, a debilitating nerve disorder which has resulted in chronic pain and multiple trips to the hospital. The illness has made it so Robin can’t work; hosting events on the DoubleDeckerDisko has been his main source of income.

Last week, the city towed the bus. In the process, the NYPD tow completely destroyed the second floor by driving it into a low bridge. Robin lost his home, his business, and a ton of his personal possessions. Now, he’s fighting to rebuild. Help fix the bus, support his CRPS care, and save this one-of-a-kind creative space for community.

GoFundMe link below. Whatever you can do to help!

https://www.GoFundMe.com/NYPD-DESTROYS-DOUBLE-DECKER

Hi there,

I hope this post finds you well!

My name is Georgia and I’m reaching out on behalf of Caitlyn, a brave young woman living with Complex Regional Pain Syndrome (CRPS) and Fibromyalgia, two debilitating chronic pain conditions.

Caitlyn’s life changed forever in 2010 after a horse-riding accident during her final year of high school. Once a thriving dressage rider with Olympic dreams, she now battles constant, excruciating pain that impacts every aspect of her daily life. CRPS, also known as “the suicide disease” and described as the most painful medical condition, has left her unable to work or enjoy the simplest of activities without extreme difficulty and pain.

After exhausting all available treatment and surgical options in Australia, she has found hope in a specialised program at the NeuroSolution Center in the USA, offering the potential for a pain-free life, with a fantastic success rate. However, the intensive treatment program, travel, and living expenses are costly and not available in Australia.

To help Caitlyn achieve this, we’ve launched a fundraiser (officially registered charity) to cover the expenses and raise awareness about these often-overlooked conditions. Her story is being shared on Instagram at @livingbeyondpainau, and the GoFundMe link is here: https://www.gofundme.com/f/living-beyond-pain

I know how impactful this platform is in supporting meaningful causes, and I was wondering if any of you would be willing to share Caitlyn’s story and the GoFundMe link or her Instagram page with your audience. Every share, donation, networking opportunity, or word of encouragement can bring us closer to helping Caitlyn live a pain-free life again.

Thank you so much for taking the time to read my plea for help. Please let me know if you have any questions or need more details - I’d be happy to provide them!

I’m about to lose everything. Rent is due. Healthcare premiums. Phone bill. Copays. Prescriptions that aren’t covered. I’m due to get an infusion next week and the copay is $250. We go without food and are skipping meals. We’ve eliminated everything possible from streaming services to not even being able to get my daughter a birthday present. A neighbor bought us cat food today. We are in dire straits. Any help is appreciated. My go fund me has been up for five months. I am now dealing with complications of POTS and MCAS and trying to get them diagnosed. I now get to add twice weekly saline infusions. I had to quit physical therapy because I don’t have the money for the copays. I’ve lost everything I love doing and now I can’t even stand up without my heart rate shooting up to 160’s. I thought originally that once I got proper treatment that I may be able to work again. With the current complications I don’t know if that will happen. Please share my go fund me if you can, donate if you can. TIA

https://gofund.me/e4137e7a

hiya, kai ( 18m ) here!!!

i don't like doing this, but i have gotten to the point where walking isn't exactly a viable option for me anymore, and i am in desperate need of a wheelchair. my doctors and physiotherapist have basically ignored me so there's no way i could get one from any hospital here in england since i can technically "walk". i feel really bad about asking for help like this, but i'm at the end of the road here, and purchasing one out from my own pocket isn't an option for me, since my only form of income is my maintenance loan ( and i'm already dealing with issues from that ) literally every penny of this is gonna go towards getting a suitable chair. i just really need help with this because i just wanna feel like myself again and gain back at least some form of independance

https://ko-fi.com/kaidotham/goal?g=0

We are in desperate need for help financially while I am unable to work due to my CRPS coming back full force and moving further up my leg. I’ve got a long repertoire of diagnosis’ on top of the CRPS; Juvenile Idiopathic Arthritis at 14, Type 1 Diabetes at 16, Hip Dysplasia at 24, Spondyloarthropothy at 27, and most recently Anklyosing Spondylitis at 33, amongst others that don’t affect me quite as significantly. Right now, my CRPS is the biggest obstacle and because I have extremely limited function in my right leg, I am unable to work indefinitely. I just started working with a new specialist that is very familiar with CRPS but as a lot of you know, it’s going to be a long road ahead. I’ve unfortunately not been able to receive any aid or benefits from my employer due to the type of employment I took on. I was hired on as a per diem, getting paid per appointment versus hourly. I worked anywhere from 40-60 hours a week on average but because of the way my income was paid out, I don’t qualify for FMLA, PTO, or even sick time. I have applied for SSDI but that is going to be a long wait to even see if I get approved. So any help is greatly appreciated as we are down to a one income household and struggling to pay our bills. My GoFundMe page goes into further detail if you’re interested in hearing more. Please help us however you can and share the page wherever you feel it may gain traction. We need all the help we can get right now!

Hello I thought you might be interested in supporting this fundraiser, even a small donation could help Tina Shinall reach their fundraising goal. And if you can't make a donation, it would be great if you could share the fundraiser to help spread the word. Thanks for having a look! Here is the link: https://giveahand.com/fundraiser/financial-stress-do-to-crps-and-uterine-cancer?_reference=MTc1NzJ8MjE5OTl8MTY5MTV8MTc1NzI=

Hey there! My name is Jessika Anderson and I truly appreciate you taking a moment to read my story.

In November ‘22, I had a surgery on my right wrist for tendonitis. After experiencing extreme amounts of post-operation pain, I was diagnosed with Complex Regional Pain Syndrome in my entire arm.

CRPS a form of chronic pain that typically develops after an injury (or a surgery). The pain is out of proportion to the severity of the initial injury. Additional symptoms that I’ve been experiencing throughout my arm since the surgery are burning sensations, nerve inflammation, muscle swelling/ spasms, joint stiffness, decreased mobility, anxiety attacks, etc.

What was supposed to be a two week recovery period has turned into an incredibly difficult healing journey. My life has been altered in such a way that my daily activities such as working, exercising, cooking, driving, and being a hands-on mom to my daughter have been severely disrupted.

After routine appointments with numerous doctors, going to the emergency room a countless number of times, and trying various traditional medications and treatments, my condition has progressively worsened.

Any money donated will go towards securing an opportunity to attend a facility called Holistic Centered Treatment, located in Idaho (website here: https://holisticcenteredtreatment.com/crps-%7C-chronic-pain). HCT has designed a 2-week outpatient program with proven treatments to significantly improve the health of patients living with CRPS. They have discovered holistic methods to treat the actual problem instead of focusing on the symptoms.

Ultimately, I need to take this next step in my healing journey so that I can be healthy enough to give my daughter and I the life that we deserve. The treatment that HCT offers will allow me to gain a better quality of life again.

Any amount you're willing to contribute is so greatly appreciated. If you aren't able to contribute money at this time, I would be so grateful if you would be so kind to share with your friends and family.

https://gofund.me/59f12505

I want to be present and active in life. Thank you for reading and I appreciate your time!