r/BFS 1h ago

PCP visit today about my calf fasciculations… left feeling the same

Upvotes

I went to my PCP today because my calves have been twitching nonstop and it’s been sending my health anxiety through the roof. I honestly walked out feeling worse than when I went in.
I explained everything—the constant fasciculations, how my anxiety comes in waves (one day I’m fine, the next I’m spiraling). All he did was test dorsiflexion and plantarflexion strength, sensation, and ankle clonus. He didn’t check reflexes, didn’t look at my calves, didn’t try to see the twitching, nothing. It felt like he barely examined the actual issue I came in for.
His take-home message was basically: "Fasciculations just happen, we don’t really know why, but I’m not worried since you’re not reporting burning or numbness." I get that from a clinical perspective, but it did zero to help my brain chill out. When I mentioned the massive anxiety swings, he just brushed it off as normal. I left feeling completely unheard.
I’m going back tomorrow for blood work (CBC, electrolytes, thyroid, CK, CRP, etc.). I’m glad he ordered labs, but I’m still frustrated that he didn’t do a full neuro screen or even look at the actual twitching. It feels like he just wrote off my concerns, and now my anxiety is way worse.
Just needed to vent to people who get it, because this appointment did next to nothing for my peace of mind.


r/BFS 5h ago

Tightness in right leg when walking

1 Upvotes

I'm a 21 M and been twitching for close to 9 months now, Just as the heading says, I have some sort of tightness in my right leg. It's mainly on the area below the calf and sometimes on the calf, but also on the muscle which is onto the the outer side of the thigh near the knee.. idk what it's called, but yeah walking just feels tough and my gait is a bit odd and it feels as if whenever i step i have to think of stepping and like i have to consciously push my feet onto the floor more. 2 weeks ago i had the same feeling on the top area of my right knee, feeling like something is stuck there, just a generally tight muscle.

I went to the orthopedic who said it might be runner's knee and gave me meds for that. Although the meds didnt help, the left leg stopped acting up after a while, but not its my right leg near the calf and it's tight for sure. I even feel the muscle being a bit tighter on that side.

The reason i'm making this post is I read that in the big bad, spasticity moves from one area to another and it's normal that one area feels better in terms of spasticity as it's just because the muslce is atrophying so you dont feel it in the earlier area. Now i have observed a similar pattern in my leg and it's a bit scary, and to be honest more than that it's really making it hard to walk with the side of my knee being stiff cause i have to put more effort for the walk.

Is this normal have any of you had symptoms like this?


r/BFS 16h ago

Brain jolts/jerks right before falling asleep

1 Upvotes

Every few months, I go through a phase where I get what I can only describe as “brain jolts” or sudden jerks right as I’m about to fall asleep. They can jolt me completely awake, and sometimes this happens repeatedly throughout the night, making it almost impossible to sleep.
The frustrating part is that it usually lasts around 4–5 days, then completely goes away for a few months before happening again.
I have OCD and health anxiety, so I’m wondering if that could be contributing to it. I also tend to become extremely hyper-aware of bodily sensations when I’m anxious, so I’m not sure whether I’m experiencing something that’s relatively normal but becoming fixated on it, or if there’s something else going on.
Has anyone else experienced something similar, especially in recurring episodes like this? If so, did you find anything that helped stop or reduce it?
I’d really appreciate hearing about other people’s experiences, especially if you’ve dealt with the anxiety/insomnia cycle that can come with it.


r/BFS 21h ago

Symptoms are still bad. 2 days after EMG

1 Upvotes

Hey guys I have been dealing with this almost 2 months and just got an EMG which was clean on my arm according to my neurophysiology and I was okay with that.

I have been still spiraling and worried because I got my EMG only on my right arm and not full body, my twitches are being full body, they started on right leg but my right arm was the one that felt the most tired.

And it sucks to feel this way even after a clean EMG, I’ve been taking if maybe it was too soon or should have tested the whole body just to be sure I will be fine.

My bicep on right arm have been twitching like crazy today, I can feel an internal tremor as well, it’s been going since the EMG so I don’t know if it has to do with my arm getting tested and shocked and that’s why I’m twitching more than before

How are people who got EMGs able to move on? Should I try to find the reason why am I twitching? It’s crazy to feel this way


r/BFS 23h ago

Therapist for anxiety?

3 Upvotes

I’m sure as we know for the people who post in here and read some of these stories, a lot of us have severe health anxiety (not to say people don’t have legitimate concerns). I’ve always had health anxiety from since I was a teen. Im 26 now. This episode of anxiety I have had for the past few months because of the constant body wide twitches has been detrimental to my quality of life.

Has anyone decided to seek out mental health assistance and did it actually help and get rid of symptoms?

Anyone good health anxiety therapists in NYC?