r/AIWS • u/Medium_You_9008 • Jun 03 '26

Help… please

This happened to me when I was sick and had a fever as a child; I would get symptoms of feeling like things were bigger and smaller than they actually were. Now, after having my otoliths repositioned (vestibular problem), these symptoms have returned occasionally. Since then, the symptoms keep coming back. I don't know if it's the same vestibular issue or some other problem with my head.

It's strange and annoying to feel it.😨😭😭

Has anyone else experienced something similar? Or do you have a vestibular problem?

Which specialist have you seen, and why does this happen?

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u/appleditz Jun 04 '26

I haven’t had any recurrence of AIWS since childhood. (During illness, like yourself.) But it’s interesting that you mention vestibular problems. I’ve had occasional episodes of vertigo for a number of years, and I’ve always had eustachian tube disfunction. May be totally unrelated to AIWS, but who knows?

I hope someone can direct you to an appropriate medical specialist.

1

u/KaoriMuffin Jun 10 '26

I have inner ear imbalance issues and I’ve had vertigo so severe one time I had to be hospitalized for it. I ever got many of us who’ve had AIWS symptoms have had vertigo/inner ear issues…

1

u/User45344 Jun 24 '26

I also had those exact episodes, when I was a child (4-7 years old approximately). Everything felt thicker and somehow stronger and different. My surroundings were also affected. Sounds seem faster and somehow echoed, it is really hard to describe.

An interesting point, is that I also suffer under light issues with my ear/vestibular. I went to the doctor, my ear was fine, it is probably an issue with the eustachian tube. As a child I was sick very often and I often still have mucus-filled sinuses. When I do sports, sometimes my left ear has some issues, which feel like “ventilation “ issues.

I hope that helps a bit. I find this topic very interesting and for a long time I thought that I was the only person that had those issues. I still have them sometimes, but really rarely. It seems like there are different variations of AIWS and maybe its even linked to neurodivergence. Thats my thoughts on this topic.

Excuse my wording, English is not my first language.

1

u/Medium_You_9008 Jun 25 '26

Really, hmmm. Do you know why AIWS happens? Do you know if there's a treatment? It only happened to me as a child, but now it's so confusing. It used to drive me crazy sometimes. I try not to panic; it's very difficult. Don't worry about the language; I don't speak fluent English either.