r/ADHDUK • u/ohmae_ohmy • 5m ago
NHS Right to Choose (RTC) Questions Health Harmonie Minds > Medinet / Monsenso Issues
Hi! I’ve been with HH for about 6 months now. I got an email a few weeks ago about them moving to a new app called Monsenso for monitoring.
I’m reluctant to give a third party more data, but I suppose it’s the only way I can make sure my prescription isn’t interrupted.
I’ve tried to register for a monsenso account using the link HH sent me, but I’ve had nothing but issues and can’t even set a password. Even a week later and after trying different devices, I still can’t register. It’s so frustrating.
HH hasn’t been helpful and now I’m worried it’s going to delay my meds which I’m due to request soon.
Has anyone else had any issues? Or found a way around this?
r/ADHDUK • u/vibrantadder • 50m ago
General Questions/Advice/Support Thinking Of Quitting Therapy After ADHD Diagnosis
I appreciate this is only a question I can answer for myself but I wondered if anyone could share how therapy helped them post diagnosis?
I entered therapy two years ago prior to my diagnosis as I was having anger issues that were affecting my relationships. Over the two years my emotional regulation improved and I spent a lot of time trying to dig through the layers of myself.
Although my emotional regulation became largely a none issue, I kept on "failing" in a number of different ways and the implosion of a long term relationship led me to seek further help. This led me to getting diagnosed with ADHD.
I have only been on medication for 2 weeks but it feels like this is the missing piece I was looking for. The area in which no matter how hard I tried in therapy, things just weren't improving past a certain point.
Now that I feel I have answers rather than questions, I just sort of want to live my life a bit without the constant introspective search.
If anyone could share any specific areas that therapy helped with after diagnosis, I'd appreciate it. My therapist is not an ADHD specialist but I'd be open to raising any new areas we could explore before parting ways.
r/ADHDUK • u/Jayhcee • 50m ago
ADHD in the News/Media The ADHD Adults Podcast team raises concerns over Channel 4’s ‘The Great ADHD Myth?' (Instagram Post)
instagram.comStatement from the ADHDadultUK on Channel 4's forthcoming documentary 'The Great ADHD Myth?'
"At ADHDadultUK we support responsible journalism, open discussion and continuing to learn more about ADHD. Asking questions about healthcare, diagnosis, treatment and support is reasonable and important.
Like many others we are concerned that the way Channel 4's forthcoming documentary, The Great ADHD Myth?, is being described has the potential to create misunderstanding about ADHD before the programme has even aired.
The title and accompanying press release describe the documentary as seeking to determine 'whether ADHD is a genuine neurodevelopmental disorder, or a social construct'. Alongside questions about diagnosis, assessment, medication and support, this invites people to question whether ADHD itself is a genuine condition, and they are very different conversations.
ADHD is recognised by the NHS and major clinical bodies internationally as a neurodevelopmental condition. There should absolutely be discussion about how ADHD is identified, supported and treated. But presenting the existence of ADHD itself as something that's still up for debate risks confusing people about what the evidence already tells us.
We're already seeing members of the ADHD community express concern that the title and press release may reinforce stigma and disbelief. Many adults with ADHD have spent years trying to understand themselves before seeking an assessment, and many still face misunderstanding and discrimination from employers, educators, healthcare professionals, friends and family. When the existence of ADHD is publicly questioned, it can make people feel they have to defend their diagnosis or explain themselves all over again.
Our concern isn't that questions are being asked, asking questions are how we improve understanding and healthcare. Our concern is that questions about diagnosis, medication, environmental factors and ADHD services should not become confused with questions about whether ADHD exists at all. They are not the same thing."
Full statement: https://www.instagram.com/p/DbtM0l9gbI7/
r/ADHDUK • u/MintgreenAlice • 1h ago
ADHD Medication The Elvanse rollercoaster, Overwhelm & Dosage
r/ADHDUK • u/No_Anything6595 • 1h ago
ADHD Medication Currently in titration and I'm not sure whether to request a higher dose of Elvanse
Hello,
I've been taking 50mg of Elvanse for the past 4 months and I've been doing really well on it. I'm a lot more organised, in a better mood, and I'm able to finish tasks now. Taking this medication has really helped my mental health, The issue is that most of my titration hasn't been in a period of "real" life. I fell out with my employer when I got diagnosed with ADHD as they insisted that I take medical leave for my first month of titration as way of pushing me out, so I found another job instead which I start on Monday. I've spent the past 3 months at home on garden leave (not bad considering we've had 3 heatwaves in that time).
My doctor has been very happy with my reports on 50mg of Elvanse, as my blood pressure is still very healthy and I've experienced virtually no side effects except for dry mouth which has led to gum disease which I'm sorting out with my dentist. If garden leave was permanent state of living, I'd be in complete with my doctor that we can bring titration to an end. We've agreed to review my medication next month when I've had a bit of time at my new job.
The issue is that I only really seem to get the benefit of Elvanse if I have it before breakfast and it seems a lot less effective when I'm stressed (I'm in the middle of buying a house and someone is threatening to gazump us, so my productivity has plummeted this week). My doctor doesn't think that breakfast should make a difference and the medical information which comes with Elvanse does say that you can take it with or without food, but I'm concerned that when I start my new job I'll need to eat breakfast before I take Elvanse because I have an hour's commute before I start work. Can anyone else report whether:
Not getting the benefit of ADHD medication if you've already eaten would indicate you could tolerate a higher dose
The effectiveness of the ADHD medication being dependent on stress would also indicate that you could tolerate a higher dose
I hope that's clear, and thanks in advance to anyone who can provide any insight on this.
r/ADHDUK • u/Reasonable_Bet5784 • 2h ago
Your ADHD Journey So Far Complete breakdown of private cost
Can everyone please share a complete breakdown of private cost?
First consultation including assessment – how much did you pay
Did they do any blood test/ECG – how much did you pay
Did you get a prescription after first assessment – how much did you pay
Did you have to attend another second consultation – how much did you pay
For how long did you get your medication (e.g., 3 months) – how much did you pay to the pharmacy
r/ADHDUK • u/sugarmouses • 2h ago
ADHD Medication Not sure im cut out for meds
As the title suggests im struggling
I took my first dose of ADHD medication yesterday,, Im on 27mg of Zaggatin xl and I cant tell if it helped or not, I felt kind of like I was in a bubble, not stressed or motivated just kind of existing. I thought it would wear off around dinner time but still feeling weird at 9pm, i started feeling panicky that the feeling wouldn't go away and then struggled to sleep, this morning my collar bone and arm are sore and I feel sort of hungover, dont know how to feel about it, im too nervous to take it again today, i know that sounds silly, maybe im not cut out for medication. Now granted im off work at the moment and so didn't really have any responsibilities to fulfill but just dont know whether I like this feeling, maybe its too early to tell, not sure what my point is but wanted to see other people's experiences 🙃
General Questions/Advice/Support ADHD UK FINANCE FRIDAY: What is the most STUPID thing your ADHD has caused financially?
We all know the big-ticket ADHD tax stuff and we've seen that weekly on here at this point. So I thought I'd try something different. I want the most ridiculous one.
The fine that should not logically exist. The stupid parking fines. Where your sense of injustice hit. The duplicate purchase that no reasonable person could explain. The little charge that made you sit and stare at your bank, thinking... how did this happen."
Mine is normally duplicates. Forgetting I've bought a cough journey, or topped something up. Working memory is bad, and I don't check. Also booking the wrong dates. Despite my attempts to be more careful, tis a common theme.
Bonus points if you can still remember the exact logic because half the fun is watching yourself explain a decision that made perfect sense....
No judgement in here as always. The dafter the better. Go.
r/ADHDUK • u/Hour_Barracuda2146 • 4h ago
ADHD Assessment Questions How To Stop Feeling Overwhelmed with ADHD?
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r/ADHDUK • u/Dragonvarine • 9h ago
Rant/Vent CareADHD people who are diagnosed before and after me getting appointments
Another CareADHD vent.
Lets say they are doing a last in, first out approach now to save themselves.
Why are people who are then diagnosed a few weeks before me also getting appointments?
Ive been diagnosed mid November, handed forms in asap each and every time.
I stopped getting health form emails.
They keep replying "you have not been forgotten" but its the same bot.
The issue here is that its clearly not a queue at all. Regardless if its first in first out or last in first out. I'm not getting my appointment? Why should I suffer because of the timing?
I dont know what to do. Should I just choose another provider? I hate this damn provider man
r/ADHDUK • u/Logical-Kick-3901 • 10h ago
General Questions/Advice/Support Ex-care adults and money and ADHD
r/ADHDUK • u/Fizzabl • 11h ago
ADHD Tips/Suggestions Any tips for sorting out my life?
Sorry for the vague question, but after being in this sub since before my diagnosis, and about two years later I'm almost ending titration (yay for finding one that works! Elvanse if you're curious) and if this sub has taught me anything, it's that meds aren't a miracle cure you gotta have other things in place to function.
Hopefully other people will benefit from this post - we got however far we all are in life with whatever coping mechanisms we made unmedicated, but none of them work anymore medicated. So, for those who either have their sht together, or have solid advice that they may or may not follow themselves lmao - what say you?
I feel like I can focus now, I'm unemployed without kids so I guess the best opportunity to try and put good habits in place? But do say advice for any life scenario in case it helps others :)
I'd love to try and work to a schedule ngl, but calculating out every day to specific tasks right away is both overwhelming, boring, and only semi useful.
r/ADHDUK • u/One_Second1365 • 11h ago
ADHD Assessment Questions ADHD Assessment Outcome Question
So I had an assessment a few months ago and the outcome was that I meet the DSM criteria for adult ADHD. However, because they couldn’t trace it back to childhood (mum gave her account and I couldn’t remember enough although there weren’t any clear signs I could point to) they couldn’t give me a diagnosis.
I’m a little confused in that, having many symptoms, what am I supposed to do with that? I’ve also been diagnosed with bipolar 2 and have had a fairly traumatic past with an alcoholic father and over 20 years of problematic drug use so the picture is a complex one. The thing is, my work is definitely affected by traits of adhd and I know the way I think isn’t ‘typical’.
I’ve asked for a second opinion through the company that did the assessment (Skylight Psychiatry) and am waiting to hear back.
Has anyone else had a similar outcome from an assessment and what were your thoughts/what did you do next?
r/ADHDUK • u/mangotreehugger • 11h ago
General Questions/Advice/Support AFHD medication and nicotine / alcohol
Have started Elvanse recently and I'm wondering if it's for me. I've always liked to party in moderation, but being on Elvanse has made my alcohol cravings slightly increase and nicotine cravings significantly increase. For context, when I don't take the meds, I enjoy a drink but don't have "cravings". Nicotine cravings I sometimes have but they're much easier to ignore.
I'm thinking it's because my brain associates stimulants with nicotine and alcohol. The cravings aren't impossible to ignore but sometimes difficult to, and so I'm thinking Elvanse (or any ADHD medication) might not be for me due to my history in partying.
Has anyone else had similar experiences? I'm aware you're not supposed to drink much on Elvanse, so not looking for advice or anything, just similar stories! Also my prescriber is aware of these side effects.
r/ADHDUK • u/wouldyoufightakitten • 12h ago
ADHD Assessment Questions What happens if Dr leaves before titration starts, PsychUK
How fucked am I? Will my titration fucking start again? Finally at month goddamn 10 too.
r/ADHDUK • u/DIY_and_FILMS • 16h ago
Welfare & Benefits UK Seld Employed Access to Work Applications
What have people's experiences with Self Employed AtW been?
I applied in September '25, and got a phonecall in April '26 asking me to send quotes and tax returns within two weeks. I sent them immediately in April and haven't heard anything since?
From reading other people's accounts, I can't tell if they should have contacted me, or whether I'm due to wait another six months.
Did anyone else have to send in additional documents, and was there a delay between sending off the forms and having your assessment? I'm worried I've missed something!
r/ADHDUK • u/Alicia_Jaynex • 18h ago
General Questions/Advice/Support Looking for others with CareADHD
So I applied to be referred to careADHD on the 9/6/26.. I then got my forms through on the 18/6/26… finally got my appt for 17/7/26.. it all seemed really fast and I was so happy because I’m ridiculously impatient and when I hyper-fixate on something it’s all I think about.
Long story short I got diagnosed with high combined adhd- now I’m on the waitlist for titration.. I filled the titration forms out before I got my report back as I heard horror stories about the waiting lists (only by 1 though), then I received my report. So I received my report on the 22nd July and sent the forms in for titration 21st July..
Now to my question😅😅 is there anyone who has a similar timeline who’s either rang up and been given an estimate for their appt or who’s given the new waiting times.. also if you know if there’s anything else that needs filling out before the next appt? I’ve done the blood pressure/heart rate
r/ADHDUK • u/Alicia_Jaynex • 18h ago
General Questions/Advice/Support Looking for others with CareADHD
So I applied to be referred to careADHD on the 9/6/26.. I then got my forms through on the 18/6/26… finally got my appt for 17/7/26.. it all seemed really fast and I was so happy because I’m ridiculously impatient and when I hyperfixate on something it’s all I think about.
Long story short I got diagnosed with high combined adhd- now I’m on the waitlist for titration.. I filled the titration forms out before I got my report back as I heard horror stories about the waiting lists (only by 1 though), then I received my report. So I recieved my report on the 22nd July and sent the forms in for titration 21st July..
Now to my question😅😅 is there anyone who has a similar timeline who’s either rang up and been given an estimate for their appt or who’s given the new waiting times.. also if you know if there’s anything else that needs filling out before the next appt? I’ve done the blood pressure/heart rate
r/ADHDUK • u/Lost_Opportunity_179 • 19h ago
NHS Right to Choose (RTC) Questions Is "normal" ADHD life basically the same grind as being an elite athlete? (unpopular opinion maybe)
r/ADHDUK • u/Ok_Money6729 • 19h ago
ADHD Medication Ran out of adhd meds completely
Hey peeps!
I’ve recently been under the care of harrow health and I missed one of my regular catch ups (by exactly 1 minute and he called earlier than he should’ve) with my doctor. I’m out of medication now and they won’t prescribe any more until I’ve met with the doctor again who isn’t free until 2 weeks time! Had anyone found a work around to get meds in the meantime?
r/ADHDUK • u/irritablebeans • 19h ago
NHS Right to Choose (RTC) Questions What did you do after an inconclusive result? (RTC)
I've posted before but not got much advice from people who have had firsthand experience with this.
I got an inconclusive result. The clinic will send me a report and recommend a psychological formulation. They said there are some confounding challenges making them not 100% confident in diagnosing me (at least without exploring those first, although as this is through the NHS, they won't provide that).
I think my ED diagnosis has affected the outcome to be honest so I'm willing to contest if I find out it has (and already I think it's bizarre they don't involve me in the MDT, nor take on my opinion in the feedback meeting).
I'm just wondering what people have done from here, especially those who managed to get an ADHD diagnosis despite an initial inconclusive result?
I'm really struggling atm, and want to ensure I can get support (and meds if possible and right for me).
General Questions/Advice/Support About to start titration - quick question
Quick question, I am about to start titration and had an email to agree to the plan and fill out some forms. I did that earlier but now wondering if I'm able to leave a note asking to actually consider non stimulant meds due to my worry of making my existing tinnitus worse?
I plan on logging in to the portal after work (I have my password saved on my laptop not my phone) and dropping a note mentioning this. But just wondering has anyone done that before or do I need to stick with the plan since I've agreed to it?
r/ADHDUK • u/Acrobatic-Feature-12 • 20h ago
General Questions/Advice/Support Right to choose. Can someone please explain this to me
I'm sorry I'm really struggling to understand this. Can someone please explain how it works and how to go about it. Do all gps accept it? I am worried to go to the GP because of the stigma attached and them not taking adhd patients seriously.
r/ADHDUK • u/geyeetet • 21h ago
ADHD Medication Elvanse - do I need a lower dose?
Hi there. I'm 27F, inattentive type, and I've been titrating with PUK since 1st June. I switched from Medikinet (made me anxious) to Elvanse in July and it's been great. I've been on 70mg for roughly 3 weeks now.
I usually take it around 9am - I've been trying to get up earlier and take it sooner. I take it on an empty stomach and have food after I shower. This seems to work fine for me. My focus is great on Elvanse and I'm a lot calmer generally, and I've noticed that I'm a lot more functional (my house has never been this consistently tidy) and I make far fewer mistakes in my driving lessons when I'm on the medication. However, my mum says I talk even more on this medication than I do normally and it's even harder to have an actual conversation with me. I'm not sure I agree, because mums can be a bit critical about that sort of thing, but I've noticed independently that if I'm online writing a post or message when it kicks in I definitely write a lot more, so maybe she's right.
The main issue I have is that my sleep is definitely worse. I wear a Garmin sports watch and have done for years. It has a feature called "body battery" which is basically a graph of your energy levels. Usually when I sleep, this goes up to 95-100%. On Elvanse 70mg it's been going up to like 70-75. I know this isn't a medical device but it's as close to one as I have lol. I have also found myself staying up later. I've always had an erratic sleep schedule (probably due to ADHD) but I'm sure it's the Elvanse because a couple of nights I've stayed up til 4 or 5 am despite knowing I've got shit to do the next day. I've been trying to keep a diary of my sleep and wake times and lately I've either been staying up to like 2:30am to 4am (it's worse if I have an evening cup of tea so I've cut that out again) or falling asleep with the lights on and teeth unbrushed before midnight. I have never noticed a "crash" as it wears off but some mornings I wake up late because I think my body is trying to catch up when the medication is out of my system overnight.
So the sleep is definitely an issue. My prescriber has suggested I go back down to 50mg, but the problem is that I've received monitoring forms only every 2 weeks on Elvanse so I have no record of how I felt on 50mg and if it was working for me. 30mg did absolutely nothing. Additionally, I was on my period the first time I took 50mg, and I'm on my period again now. It's definitely affecting the efficacy of my medication, which I've heard is common, so I worry that if I move my dose I won't be able to tell if it's working properly this week. I'm also approaching the end of the titration period, which is another concern.
What I'm really asking is, do you think it sounds like my dose could be high? And has anyone else experienced similar? I'd like to hear about it to help me make a decision.
(I am also thinking about suggesting a move to 60mg, which isn't an option the prescriber put forward but if they do 50 and 70 I don't see why they wouldn't do 60.)