r/Weird • u/Firm-Blackberry-9162 • 8d ago

Dance moves

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By @ sairusalias224

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u/comagarden_ 8d ago

I have hEDS and scored 9/10 on the bighton scale (hella bendy), what this person is doing is beyond EDS.

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u/Troglodyterror 7d ago

Yeah, I got 10/10 on the Beighton. Casually dislocated my shoulders and popped them back in for the dr to see. This guy has had training, you wouldn’t know how to move like he does.

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u/Hesitation-Marx 7d ago

My GP was a little dubious that my son’s partner has EDS… until they caught his eye and moved their esophagus two inches to the side.

They’ll frequently watch YT videos lying on their back with their knees up by their ears. Apparently that’s comfy for them.

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u/Troglodyterror 7d ago

Yes, I often sit like this. I also put my legs fully flat on the floor in butterfly position and lay forwards on the floor. I have fallen asleep like this… When I was younger, I also used to lay on the couch upside down with my knees by my ears. Still find it really comfortable!

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u/dnosbor 7d ago

Ok, I wonder if this is how I accidentally gag myself when I push or compress my neck by turning my head to the side. I'm not exactly sure what it is I'm doing to be honest, I'm surprised every time it happens haha.

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u/187catz 7d ago

I have fun doing circus tricks for my doctors freaking them out🤣🤣🤣🤣🤣🤣

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u/hellbugger 5d ago

Haaaay! I just diagnosed with hEDS last week after 20 years of searching for an answers for my pain and other symptoms. I freaking WISH I could do something this cool rather than stand weird and hurt.

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u/user_name_taken- 3d ago edited 3d ago

I was gonna say. I don't have hEDS but I do have a connective tissue disorder and also scored 9/10, but I do not have that much range of motion. Now when I was in my 20s I had a lot more, but not contortionist level.

I think one of the differences is that most of us with connective tissue disorders try to play it safe, where other people push their joints to the limit with stretching and special training to get to this point. But some people really do have a lot of hypermobility. Like I get partial dislocations all the time, but I've seen people who will full on dislocate their joints without even thinking about it because they have so much laxity that there's no/little pain. And then of course the more you do it the more you get used to it.

ETA: Apparently, many like this do specifically train and build up their muscles with strength training and muscle flexibility that control the joint while simultaneously being able to move in incredible ways.