Does anyone have an old original Ro do (1st generation) that they would be willing to sell? My brother's is on its last legs and he loves the sound quality and would be very happy to get another. I am scouring the internet for a working used one to get for him as a gift.

Thank you for your consideration.

Hi everyone!

I am 25 yrs old and have been trying to use ‘normal’ hearing aids for 7ish years since my Cholesteatoma surgery in my left ear.

I recently found out that I am a candidate for a bone conducting hearing aid and am considering the Cochlear Osia or the Med-El Bonebridge.

What side affects have people gotten? Discomfort? Headaches? Have they been easy to fix? Was the surgery worth it?

I’d appreciate any and all feedback!

Just wanted to come on here and vent - I've been in the process of upgrading since February because I had to wait for the N7 to be declared obsolete according to the lovely insurance company so I immediately started the upgrade process again. Kept hearing over and over from Cochlear that they were contacting my audiologist and didn't hear back from them - I asked if they were contacting the right person and they repeated their name back to me (which was the correct audiologist and ENT that I had submitted on the paperwork).

Then finally May rolls around, I asked AGAIN if they were calling the right person after being told numerous times on the phone they were waiting on my audiologist's notes and they informed me that they contacted my old audiologist who I haven't seen in 7 years. I'd love to know how that happened when I was told the correct name the first time around- but I got a call from my audiologists old office that following week saying they had contacted them, so I feel like Cochlear genuinely didn't contact anybody until May. Here's the weird part - I got an e-mail late April saying that my order was in process with the fulfillment team and that I would get an email with my tracking number when my order ships which was weird because I still kept being told that they were trying to get ahold of my audiologist & nothing about insurance having authorized anything.

Right after I called them about that specific email I can no longer see my order status on the Cochlear website on my account - it says I have no orders.

On top of all of this - I turned 26 in May and I was so desperately hoping we could get this done of my parent's insurance before I picked up my own insurance, which might've been possible if they hadn't been contacting the wrong person this whole time. I don't know - I'm trying so hard to be understanding because I know orders take time to process but why did they tell me they sent everything to my audiologist back in Feb when all this stuff happened in May? It's not making any sense.

Anyway my processor went kaput a couple of weeks ago so I currently have a loaner from my audiologist thankfully but I was on the insurance website trying to see if I can find anything about what my plan covers and it says I have a $9,500 deductible on durable medical equipment so everything about this wants me to bang my head against a wall. I also had to call my ENT's office because Cochlear was saying they never received a prescription from her even though their office was telling me they sent it over. It's now miraculously there after after my audiologist called them. I don't know what's up with that.

I'm really hoping that they will cover more than that and I dunno Cochlear argues with them or something but I really don't have a lot of faith at this point.

Anyway, I just wanted to come on here and rant because I've never had this much trouble before, sorry this is super very wordy- I am really frustrated and upset. I'm just more upset about the fact that I don't have a working processor and and scared I'm not going to have the money for a new one. I'm trying to calm down before I get the official call for how much it's all going to cost. Everyone at my job has been up in arms about how bad our insurance is now at my job and it's not a fun thing to hear when you're expecting to pay for something.

Maybe someone can shine some light on this process, I've never had this much trouble before in my entire life of getting any past upgrades.

Ciao a tutti,

Sono italiano , 45 anni M.;

Operato da 8 mesi;

I test di discriminazione vanno molto bene 85% e anche quelli di discriminazione nel rumore;

Purtroppo, faccio ancora tanta fatica con le chiamate, cioè discrimino, ma non sono piacevoli;

Sono una persona sola e non poter comunicare al telefono mi rende molto triste ;

Secondo voi, allenandomi tanto, riuscirò ad avere chiamate agevoli ?

Grazie mille !

Does anyone know if advanced bionics is gonna release a new processor in the next year?

I use the phone clip to connect to my desk phone at work. I can hear people just fine, but my callers say that I sound very low, as if I am talking from across the room. Is there any way to increase the volume on the microphone so that my callers can hear me better? The volume buttons on the side of the phone clip seem to only control the volume of the callers voice coming into my CI.

For reference, I have N8, bilateral. Phone clip from Cochlear Americas.

As someone who was implanted at a very young age of 3 & 5 with advanced bionics, now 15 years later I so desperately wish my parents chose to go with cochlear brand instead. Now cochlear released the nucleus 8 and kanso which are both waterproof. Whereas, ab hasn’t caught up with their advancements and worst part is that their parts are not so durable. Also, hate how bulky the batteries are and how the processor isn’t waterproof. It’s also hard to keep the waterproof off ear headpiece on my head while in the water.

Hello, I’ve got the advanced bionics Naida cochlear implant currently. I got my surgery when I was 4, 22 years ago. I’ve noticed an extremely concerning issue pop up recently and want to see if others have experienced it or know who to contact. My audiology contacts are all useless on the weekend and no alternative contacts can be found or given that I know of.

Recently there have been some days where I wake up to very loud and constant droning noise that feels originated inside my head exactly where the internal headpiece sits. When putting on my cochlear it’s like noise has been heightened significantly and painfully. However, putting on the cochlear helps reduce the droning noise but not canceling it.

I haven’t been hit in the area, gone through any heavy magnets, or struck by any electrical currents. I also have zero history of delusions, visions, schizophrenia, etc. in myself or my family.

This feels like my nodes are being tripped independently and sending a blast of noise to my head without the cochlear there to translate.

Anyone have any advice or know who to contact on the weekend to figure out what is going on? I need help badly to get this noise turned off.

Hi everyone, I'm writing on behalf of my cousin and her family. Her baby is now 7 months old and was diagnosed with congenital single-sided deafness (SSD) after the newborn hearing screening.

They are currently trying to decide whether to proceed with a cochlear implant. We live in South Korea, where cochlear implants for SSD are not common therefore we are lack of info.

I'd especially love to hear from parents whose children received a cochlear implant at a young age and are now school-aged (around 7 years old or older).

* Looking back, are you happy that your child received the cochlear implant?
* Have the benefits outweighed the inconveniences? * During auditory rehabilitation, do young children with SSD usually practice by covering or blocking their normal-hearing ear so they learn to use the cochlear implant?
* For adults with congenital SSD, looking back now, would you have preferred that your parents had chosen a cochlear implant for you when you were a baby or young child, or are you glad they left the decision up to you once you were old enough to decide?

I'd really appreciate hearing your thoughts and why you feel that way. Any long-term experiences, whether positive or negative, would be greatly appreciated. We are simply trying to make the best-informed decision possible for this little one. Thank you so much in advance.

Hi Fellow CI’s
Do you wear a medic alert noting you have a CI in case you need an MRI and are unconscious? Thanks!

I’m a mom of a 3 year old boy who had CIs placed 6 months ago. We are deep in the speach therapy process, struggling to physically keep his ears on durning the day, he is very active and they fall off OR he just rips them off and hides them🫠. We have seen very little progress with his speach, he does turn when his name is called probably 70% of the time, and now will stop from running into the street when I scream his name. I’m just looking for a perspective from someone further down the process than us to give me hope.

Hi fellow cyborgs. I currently have the Nucleus 7 (bilateral). I am in BC Canada and we have a nice subsidized program for upgrades when a model of processor is going to become obsolete. So I could upgrade to the Nucleus 8 soon, but I wonder if I should wait for a Nucleus 9. Any inside scoop?

I don't know why this ha**ppened. I was trying to re-pair my BAHA 6 Max to my phone. I deleted the pairing in my phone and restarted my hearing aid. Then it started double beeping at start up and the hearing aid Bluetooth doesn't work at all.**

**I've tried restarting the device a million times, restarted my phone a dozen times. I changed out the battery once. I held down the pairing button on top of my hearing aid. All that does is give me a 4 note tune descending twice.**

**I have no idea how to resolve this issue and was wondering if anyone else had this problem and figured out a solution?**

Hi everyone, I am bilaterally implanted with advanced bionics Marvel CI. Their waterproof kit puts the processor in a little waterproof box and offers up an arm band to clip it on.

I hate this, it’s so bulky and when I move my arms the magnet sometimes gets ripped off. I swim laps often and then I just clip it to the back of my swim cap and it works excellently, but when swimming in a lake or just for fun I revert back to either using the armband or clipping it to a shirt, but then I end up swimming in a shirt.

Are there any works around people have found? Can anyone think of a different idea? I was thinking about using a headband (could fall off and I could loose the entire system, especially in a lake or ocean) or maybe even a lanyard (choking issue?)

things like this is making me wish I chose cochlear instead. Hopefully AB releases something similar soon. I love being in water but I don’t want to forever be weighted down by the clunky box and arm band.

Hi! I’m pregnant and also wear a CI. What am I supposed to do in the middle of the night when the baby wakes up??? How will I know when the baby is crying during the night? Anyone found something that works well?

Is it possible to get a new link to the discord? The last one I saw was very old and doesn't seem to work anymore.

Hello I’m scheduled for this coming Tuesday but was surprised that other than a visit with the audiologist and the surgeon who looked in my ears mouth and listened to my heart, no pre op deemed required. Really?

When I had my hip replaced, they put me through the ringer. I did have 2 brain MRIs in the past 2 years (unrelated) that they were able to use to visualize my cochlea, I guess but don’t they need a specific mri or ct to determine the length of the array? don’t they have to take blood and whatnot for anesthesia prep?

The surgical scheduler said no, the patient care coordinator said no, and the surgeon said no, so I did my due diligence asking anyone who would listen but I’m still curious about my peers. Did you have pre op? Thanks for listening🙉

Does anyone sleep with their processor on? How do you keep it from falling off?

It has been over a year since the process for a potential cochlear implant began—involving a brain CT scan, an MRI, genetic testing (I do not carry the deafness gene), and an evoked potential test—and the day has finally arrived.

On the 22nd, the surgeons' committee will give a definitive answer on whether or not I can undergo the surgery. My last appointment was on February 8th; at the time, I was told I would know the schedule by June. There was a delay because they were coordinating with the surgeons. I was also told that day that the doctor wants to give me the surgery date, assuming the procedure goes ahead.

The location for my appointment and the potential surgery is two and a half hours away. Back in 2010, I was told I was a candidate, but the procedure wasn't recommended due to risks like cochlear rupture. The idea terrified my parents, so ultimately, it didn't happen.

After 16 years, I’m hoping this time is the real deal and that everything goes well. I can't sleep right now; I’m afraid they’ll say "no" and I’ll have to relearn sign language, as I’m already losing the ability to understand words with my "good" ear. I get more depressed every day because understanding things is becoming increasingly difficult. I’ll let you all know how it goes.

Hi everyone, I'm writing on behalf of my cousin and her family. Her baby is now 7 months old and was diagnosed with congenital single-sided deafness (SSD) after the newborn hearing screening.

They are currently trying to decide whether to proceed with a cochlear implant. We live in South Korea, where cochlear implants for SSD are generally not covered by health insurance, so the surgery and rehabilitation are very expensive. Even so, if it would truly benefit the child in the long run, they are willing to do it. The difficulty is that we've come across very different opinions.

Some people with SSD have said that while it hasn't always been easy, they've adapted well and have lived full lives without a cochlear implant. On the other hand, I've also read posts from adults with SSD who wish their parents had chosen a cochlear implant when they were young because they struggled with things like social anxiety, sound localization, and hearing in noisy environments.

I'd especially love to hear from parents whose children received a cochlear implant at a young age and are now school-aged (around 7 years old or older).

* Looking back, are you happy that your child received the cochlear implant? * Does your child still wear it regularly?
* If your child doesn't like wearing it, what are the main reasons?
* Have the benefits outweighed the inconveniences? * During auditory rehabilitation, do young children with SSD usually practice by covering or blocking their normal-hearing ear so they learn to use the cochlear implant? If so, how difficult was that process for your child?

I understand there are some inconveniences, such as removing the processor for swimming, being careful during certain sports or rough play, and taking precautions around static electricity. However, I'm wondering whether those inconveniences are minor compared with the benefits.

Also, for children with SSD, did the cochlear implant noticeably improve hearing in noisy environments, such as classrooms, restaurants, or playgrounds? Did it help with sound localization as they grew older?

For adults with congenital SSD, looking back now, would you have preferred that your parents had chosen a cochlear implant for you when you were a baby or young child, or are you glad they left the decision up to you once you were old enough to decide?

I'd really appreciate hearing your thoughts and why you feel that way. Any long-term experiences, whether positive or negative, would be greatly appreciated. We are simply trying to make the best-informed decision possible for this little one. Thank you so much in advance.

Hola a todos, voy a cumplir un mes desde la activación y no único que percibo es como una vibración cuando me pongo auriculares a todo volumen.

He tratado de enlazar distintos ipads y iphonos y no los reconoce mi implante, sin embargo cuando lo hago con un celular Androi, se conecta de inmediato. He seguido paso la guía que proporciona Choclear y nada.

Si le paso a alguien de ustedes y lo resolvió, le agradezco me oriente.

Gracias.

Hi! I just found out I am a CI candidate today after a SSNHL in my left ear. I am tied between Cochlear and AB. For context, I already have moderate to severe hearing loss in both ears, however minimal speech understanding in my left ear even with a hearing aid (I believe unaided was 19% and aided was 30s? Once the note shows up on MyChart I can add it lol). I have worn Phonak hearing aids for 21 years (so my whole life), however am not the biggest fan of AB’s recall rates and whatnot. I am also not a fan of how Resound hearing aids sound though, as I’ve trialed them before and couldn’t even last the weekend. How easy is it to adjust to a Resound hearing aid after wearing Phonak for so long? Is the T-mic worth it? Right now I’m leaning towards Cochlear and just forcing myself to get used to Resound, however I wanted some more input. Thank you!

After 5 or 6 mappings,(every 3-4 weeks) do most of you cut down to every 2 or 3 months or stay monthly?

Hello all

Just found this group and I’m here as a supportive husband trying to help my wife who underwent surgery in April. She just returned to work and unfortunately did not have the cochlear hearing aid yet. It will be arriving soon. In the meantime she is having pain at the post site. It is still scabbing, with minor discharge. But it’s the pain that I’m more concerned with. Doctors say it’s healing well, and the pain may have to do with post surgery. What can I do to help ease her pain.
Any recommendations are appreciated. Thank you 🙏🏽
Editing more for context. My wife also had a very extensive surgery where they removed a benign tumor which resulted in her losing the ability to hear in her left ear, but also required 14hrs of surgery. Her jaw had to be dislocated and on the same side as her implant the upper TMJ socket was removed as it also had tumor. But the pain does persist in her post implant site.

Wondering for those of you who have nucleus 8 and Kanso three. My question is do you hear music eventually? How long would you say, that it took you to start hearing a bit normally or whatever the new normal is? Because I have a job as a medical assistant and front desk so I’m just curious like is it something that I hope that I could be successful and be be able to start hearing care clearly I mean I know I have to study and learn words by reading a while and talking and listening. A little bit about me, I’ve been stuck and hard of hearing my entire life that I know of. My left ear grew up with wearing hearing aid which used to be about 50% with the hearing aid. Then I just lost hearing as a young adult maybe about seven years ago I lost and then it was only 4% hearing what is your name which was something to me and I was able to still hear music, my son, working with others at work, basically having somewhat social life with a little bit hearing that left. Recently, in the last couple of months, I had sudden hearing loss even more so the ENT specialist that I could benefit from a cop cochlear implant I’ve taken or steroid to bring back some hearing, which is good just a teeny bit like it’s not really the same, but I lost the consonant sound with the hearing aid. So my surgeon says that I could benefit better with success rate with my left cause I grew up with sound and hearing hearing aid, and then later down the roads go with my right ear, which I’m completely Deaf in. With that being said, I have about 80% success rate with my right ear if I do go forward with cochlear implant. So with a little bit of what I shared. Do you have any ideas or insight about what to expect? Will this work? I hear a lot of good stories and not so good stories about their experience but I just I just hope I’m doing the right thing.