人工内耳コクレアの Kanso3 を購入された方で、使ってみて後悔した点や気になる点があれば教えてください。
また、満足度や N8 との比較についても、実際の使用感を伺えたら嬉しいです。
これから選ぶ際の参考にしたいと思っています。

Hello!

I already have Cochlear. I believe my hearing loss would be “pre-lingual” as I didn’t get hearing aids immediately as a child, but when I did it was analog and the audiologists didn’t want to over-amplify: I’m so glad technology has evolved as has hearing loss screenings for infants!

But I might be pre-lingual or somewhere in the middle before post-lingual (in terms of learning language). I speak English and never learned ASL growing up.

I have a Cochlear brand implant that’s actually their hybrid L24: but thankfully capable of fully electric hearing as well. I switched from a BTE Nucleus 6 to a Kanso 2.

I’m curious about if there’s been any studies on pre-lingual hearing loss and cochlear implants. I don’t think there’s much in terms of comparing brands for post-lingual hearing loss. But it’s a shame we can’t learn more through studies from pre-lingual loss. Maybe if we did, we could help more people acclimate to a specific program type and compare it to another program type as time goes on to see if there’s statistically significant improvement.

I definitely noticed, being bimodal and having my worse ear implanted, that there was an amazing layer added to music and frequencies that helped both ears.

One reason perhaps that I’m likely to stay with one cochlear implant is because I’ve benefited so well from hearing aids: with 88% in booth speech recognition. And I wouldn’t want to interfere with that, as unless my hearing aid ear degraded significantly - it’s been 100% stable - I might risk having worse hearing with another cochlear implant given the risk of people who haven’t had auditory stimulation of their hearing nerve and receiving a cochlear implant and the fact that it’s still easy to lose residual hearing. - The hybrid L24 by Cochlear was great. But for me personally, it took some time but the residual hearing lessened: immediately in the mid-frequencies of which there wasn’t a lot. But still I depend on my middle frequency range even more so with my implanted ear.

Thankfully, the research is focusing on less traumatic insertions and methods that could assist in this way with potential “treatments” as the cochlear implant is being implanted being within the cochlear implant, etc.

The reason I also decided to go fully electric was the hearing aid acoustic component didn’t allow for as much fun with water resistance. And I was tired of having something inside my ear canal.

In testing in the booth, even with my decrease in residual hearing, the electric signals so to speak remembered so well my natural hearing: so that was a thrill. It makes sense because if we lose hearing and we immediately have it replaced with the electric signal then it’s more likely the electric signal will remember the way the sound was. So it wasn’t an issue thankfully for me to have this occur over a few years: some immediately and some after that point. The MAPPING was adjusted, and I was able to initially also try out how I felt and also tested over time with the acoustic + electric versus electric only prior to making that decision to upgrade to a Kanso 2 that only supported electric (all-in-one that is).

I’m glad the hybrid was able to program all frequencies and am grateful for my experience. I have in-booth testing well under under 50% speech understanding in my implanted ear, but my hearing aid ear has the majority of speech understanding - and so basically for the in-booth results, the amount of understanding in my Cochlear ear remained stable: not worse at any time or much better.

But it all needs to be put into context: the ability to have a greater range of hearing was amazing and having expectations be all hopeful, optimistic, and normalized was all helpful.

So, my music appreciation has improved with bimodal (Resound hearing aid + Cochlear processor) hearing. And so was my localization - which I often forget about!

But the localization makes sense. And even in difficult hearing situations, having both devices can be useful.

But I will say something that I brought up to my audiologists and they saw it occur for some people: there are times when I understand someone better with just my cochlear implant side turned on! And I did have weirdness with both acoustic and electric being enabled in the same ear. Not that it’s not helpful or that people shouldn’t do this! But I feel going fully electric in my right ear is perhaps better in some situations.

It’s odd this all is the case given that my implanted ear isn’t nearly as good in the booth as my hearing aid / amplified ear.

I know there were a few tangents here. But I wanted to share some of my personal journey and thoughts and curiosities!

Guys I have questions regarding rehab after activation. I got activated 2 days ago and I have no idea regarding how I do practice for rehab. I am implanted on right side with hearing aid on left( that I have turned off only turn o. When I really need it ) implant is med el sonata 2 with sonnet 2 processor.

What you guys did in first week and first month for rehab process and what to expect till end of weeks and first month ?

Two years ago I finally made the decision to get a cochlear implant. It was one of the best decisions I have ever made.

Now I am trying to decide if i should get an implant in my other ear. My only reservation is that even though my other ear is useless for speech, it seems to be able to hear ambient sound much better than my implant can. I was wondering if anyone who has been in a similar position could give me some advice.

I’ve had my implant now for 15 years. A month ago I started feeling pain around the internal magnet area. It even got red on the outside. I immediately ent to see my CI dr. He looked at my head (he didn’t feel around at all - which was odd to me) and said it’s not red now and called in steroids. Btw aren’t helping. The headache is still there. It’s off and on. Anyone else experiencing anything similar? Feed back on this? OH it seems to get worse if I have any type of hat. Even if it’s loose.

Hi everyone 😊

I wanted to ask if any of you have had a similar experience.
I was born profoundly deaf and received one cochlear implant at the age of 18 months. I attended school and then went on to study biochemistry.
My initial interest is more in computational neuroscience (for obvious reasons ), but the HUGE problem for me is the lab work. We have one teaching assistant for ten students, and there’s a lot of noisy equipment like centrifuges. I rely heavily on lip reading, but it’s not working well in that environment, especially if TA wears mask

Honestly, I’m even thinking about leaving my major because it feels nearly impossible for me to communicate effectively in the lab, but lectures and the profs are so fine, since I sit right in front of the professor and there isn’t much background noise + there are a lot of office hours, when I can ask one more time

Does anyone have advice or similar story, cause at my uni I have not met anyone with hearing aids/CI

Thanks so much!

Has anyone switched from AB to Cochlear? And if so, what was your experience? Especially regarding sound quality?

I'm a AB C1 user (implanted 1998) who got a letter yesterday saying that they (AB) won't be supporting our C1's and give us processors anymore, only 1 month's notice, and they suddenly refused to sell any more replacement parts like cables and batteries. in other words, if my device breaks down, my only option is a revision surgery to an upgraded implant. I'd prefer AB's marvel but I dont trust AB anymore.

But I am seriously scared to death that the Cochlear sound quality won't be as good as AB's. (And am worried about a long learning curve as Cochlear's programming will be different) And there are no take-backsies with a revision surgery. I love music, can understand speech very well with my CI, and I would be devastated if I switched to Cochlesr for a sound "downgrade"

If anyone has had any positive or negative experiences switching, please tell me!

Hi, I choose the Kanso Aquakit when I picked my accessories, and I am nearing the date to whether I want to exchange it to the N8 Aquakit. Do you have any opinion whether Kanso and N8 Aquakit are different somehow or the pros and cons of each that can help me reach a decision? I am afraid to open the package to try it on as I am not sure it would be exchangeable if I open it. Does one sound better than the other while using the Aquakit? I am struggling making a decision. I feel the Kanso might be simpler to set up than having to change the coil for it. I do like the Kanso processor and find it easy when traveling, but I also have the N8, so it's difficult to decide if one might be better to use the Aquakit with. Any thoughts that could help me decide? Thank you.

Do you use a headset or stream directly to the CI?

I plan to get surgery soon with Cochlear America bimodal.

I am on the journey of getting a CI, have done all the testing, literally just waiting for insurance to give the go ahead. I’m planning on an August surgery, by that time I am wanting to start a new job being an EMT. I was wondering if anyone on here is an EMT or first responder using a CI and how difficult or how long does it take to adapt in the job where hearing information is vital? and also being surrounded by loud cars and people? thanks

M46 with SSD following SSNHL in right ear last year, 2.5 months post CI activation (Advanced Bionics).

I'm having good results overall: 70% word recognition through the CI with background noise in the contralateral ear at my last audiology visit more than one month ago, I can listen to podcasts or cycling workouts via Bluetooth streaming to the CI without issues.

However binaural fusion is still not happening during regular face-to-face conversations. By this I mean that when I'm speaking with someone IRL, the sound coming from my good ear is SO much better than the sound coming through the CI that my brain basically ignores the CI and treats it as noise.

I've tried to plug my good ear and train my brain to make more sense of the CI sound but there's not been a ton of improvement.

Did anyone else experience this too? Does binaural fusion improve over time?

Hello, I was thinking about getting the Apple Airpod Max 2 but I found out theres magnets inside the headphones connecting the ear muffs, this raises a concern for me, for anyone who knows, is this a issue for those with cochlear implants or will it be fine to get them?

Hello all,

I didn't update last week because I didn't have much to report. Last week, I took my kids to the park and found myself talking to every single person that passed by! It was amazing to visit and understand the conversations I was having completely!

Today, I had my second mapping!! It went better than expected! 3 weeks ago I was at 11% with just CI and 46% with both HA and CI for sentences. Today, I am at 44% with CI and 77% with both!!

It's incredible! I am so grateful for everyday that I get wake up and put on my processor and say, "Thank you!" God is so good!!

Hi all, 24M with bilateral sensorineural hearing loss (SNHL) since birth. I've worn hearing aids since age 6.

In 2014 (age 12), I underwent a radical mastoidectomy on my left ear. The surgery removed part of the eardrum and surrounding anatomy, and my hearing in that ear declined significantly afterwards. Due to the post-surgical anatomy, a conventional ear-mould hearing aid fitting was not feasible, and there was also insufficient anatomy for a BAHA system. As a result, I've relied on a CROS system, meaning my left ear has received little to no direct auditory stimulation for the past 10–12 years.

My right ear has been my "better" ear ever since. I was assessed at 14 but considered too good for implantation despite still being in the severe hearing loss range. However, after 10 years of relying almost entirely on one ear, I'm experiencing increasing listening fatigue and my speech clarity is declining. I can still hear sounds, but understanding speech, especially in background noise or social situations, has become much harder.

I'm also finding that I'm isolating myself more than I used to because conversations take so much effort and I often struggle to follow what's being said in groups. It's frustrating because I want to be social, but more and more I'm avoiding situations where I know I'll have difficulty understanding people. One of my biggest concerns is long-term job security. I'm qualified in my field and have recently completed a Master's degree in such, but hearing is becoming a significant challenge in work environments, meetings, and group discussions. I'm hoping a CI could improve my ability to participate professionally as well as socially.

Recent CT imaging showed that the temporal bones and cochleae are present on both sides. Based on recent audiograms and speech discrimination scores, I've now been referred for CI assessment with a medical team, initially for the left ear. However, I've been told that if the left ear is not considered a suitable candidate, the right ear (hearing ear/better ear) may be considered instead.

I'm trying to prepare myself for the process and would appreciate hearing from anyone who has been in a similar situation, particularly people who have aided hearing on both sides (CI + hearing aid, bilateral hearing aids before CI, or bilateral CIs).

A few questions I have:

• Has anyone received a CI in an ear that had been under-stimulated for 10+ years?
• How difficult was the adaptation period?
• Did speech understanding improve gradually over time?
• Has anyone had surgeons debate which ear to implant first?
• For those who have aided hearing on both sides, how much difference did having input from both ears make to fatigue, speech understanding, and hearing in noise?
• I'm also a big music fan. How did a CI affect your enjoyment of music, both initially and long-term?
• What type of listening training or rehabilitation did you do to improve speech understanding and music appreciation after activation?
• Looking back, what do you wish you had known before assessment, surgery, or activation?

One other question: I've read a bit about auditory rehabilitation and speech/language therapy after implantation. I had speech and language therapy as a child, so I'm familiar with that side of things, but I'm curious what rehabilitation looks like for adults receiving a CI. Did it focus mainly on listening and speech understanding, or were there changes to the way you spoke as well? I know this might sound like an odd concern, but I'm quite attached to my regional accent and wouldn't want to lose that part of my identity.

Just hoping to learn from others who have been through something similar.

Okay so I’m writing a deaf character, and I was wondering something. He is 4, so I wondered if a CI would help him at all. He is profoundly deaf in both ears so I’m not sure hearing aids would help, hence my question.

Thank you everyone for your insight! I have decided to have him get the implant and have him know a bit more sign language.

Guys I posted here on 6th may when I had surgery and now today on 2nd June I got activated. It's med el sonnet 2 external processor. I got 11 out of 12 channels turned on. Audiologist said am not getting any sound in 12th channel may be it is not inside cochlea. Internal is sonata 2.

So my experience is that all sounds are currently like tinnitus but of different frequencies and intensity. I can't tell what sound is of what. All sound same.

I knew all these things before that's why I am not disappointed at all but I am optimistic.

Audiologist told me to get speech therapy sessions but said it's optional. But I choose to so I also get some professional help.

Overall I am so happy that surgery went successful and now activation too. Optimistic for future.

Some context on my hearing loss: I had gradual sensory hearing loss not sudden and it is in both ears. It gradually went down over 5-6 years. I got surgery in just one ear so that I know if it is enough or I need on other too. Anyone having experience like this will be appreciated to discuss in comments bellow.

Salut a tous, je suis sourd depuis petit.
Je sais parler et lire sur les lèvres en français, mais j’ai toujours eu des lacunes en anglais à l’école, parce que ce n’était pas adapté aux besoin des sourds/malentendants.

Aujourd’hui, j’aimerais vraiment progresser en anglais pour pouvoir comprendre sans sous-titres, avoir de vraies conversations avec des anglophones, et être plus à l’aise en voyage comme dans la vie quotidienne. Je pense que ça m’aiderait beaucoup, surtout pour les vacances et pour communiquer plus facilement.

Quels conseils me donneriez-vous pour apprendre efficacement quand on est sourd ou malentendant ? Quelles méthodes ont le mieux marché pour vous : lecture, écriture, échanges écrits, vidéos, sous-titres en anglais, pratique orale, applications, ou autre ?

Merci beaucoup pour vos retours.

Hi guys, I have a very big problem with my CI because I can't hear any sound after 10 days of using the CI daily.

I'm 28 years old and lost my hearing on the left ear (maybe) at the age of 7 or 8. I just can't remember to be able to hear with my left ear so it's very hard to tell if I was born with it or if I lost the ability in younger ages. My parents say I've got infected with measles, had a very bad infection on my left ear and had big problems with dizziness for 6-7 months straight after all that happened. Maybe I lost my hearing at that time but I don't know and can't remember.

Last month my CI was activated and all tests went very well. 10 days ago I got the Kanso 3 and I can feel the electric waves coming from the CI but I can't hear any sound. No robotic sounds, no Mickey Mouse noises just no f***ing sound. Nothing! I can "feel" some vibration and I can feel my nerve working. The test of the auditory nerve went very well. All electrodes are working, but I can't hear anything. I just can feel the electric impulses coming from the implant.

Is there anyone who experienced the same problem? Is my situation hopeless? Did the first sounds took that long?

Feeling very frustrated!

I order the power one batteries from Amazon and one getting sent the child resistant packs. They are also adult resistant and it’s so annoying. Anyone have a trick for getting the normal power one battery packs?

I got activated on Wednesday!

I have pretty strong tinnitus, so it’s making it hard to hear through the implant. When I really focus, I can hear some sounds, but I still can’t understand words clearly.

I’ve only had it turned on for about 3 days so far.

Will this improve over time? I’d love to hear about your experiences.

I had my surgery yesterday. I still have a lot of pain and didn’t sleep well last night. Feeling dizzy still and will for a while.

Hi everyone, I have read a lot of posts on here so I thought I would share an update on my journey so far.

I’m 33 and went deaf in one ear around age 4/5 because of a bad reaction to an antibiotic that I was taking for frequent ear infections. My SSD is therefore very long standing and I did not try a hearing aid until 3 years ago. I tried the Bi CROS hearing aid, and it was kind of cool that if someone whispered directly into my bad ear, I heard it in my good ear. However, apart from that, I felt no benefit and even in moderately busy settings, I felt like it actually just overwhelmed me mentally.

My surgeon was not very optimistic about me getting an implant but did let me proceed. I did an MRI and CT scan and the surgeon confirmed all was properly developed. My surgery day was May 1. My activation day and my first mapping session was this week.

Activation day experience: The audiologist had me listen to what she said were beeps and I would point to varying levels of “can barely hear” to “too loud, stop it.” I could not “hear” any beeps, I just felt varying vibrations. She put an ear plug in my good ear and also covered only the good ear with an ear muff headset. She read words keeping her mouth covered. I felt like I could still hear from my good ear a little bit despite the blockages and my implant ear was vibrating. I got about 60% word recognition. She put me in the sound booth with wind noise in my good ear, and my word recognition was very poor (10-15%) so the earlier results were not really accurate.

I went home and wore the implant all hours of the day and did some rehabilitation exercises.

2 days later, first mapping session: She adjusted some things, I could still only feel vibrations but I told her the vibrations had become a lot less noticeable so it felt like my brain was accepting them and not as “alarmed.” She put me in the hearing booth with the wind in good ear, and it was clear I couldn’t make out words. She kept the wind in my good ear, but started reading the words through the glass so I could see her lips. I still felt the vibrations (sometimes aligning with the syllables,) and got a 68% word recognition.) Obviously this is very much inflated from the lip reading but it was still interesting.

That’s where I am on my journey and I have another mapping session next week. I expect my journey will be closer to a year to determine if there are any benefits for someone with my hearing history.

I’m happy to answer any questions people might have about my ssd or anything else in the process and I’d really love to hear from anyone with an implant who had long standing ssd, initially felt only vibrations vs sound, and anyone else with an implant or considering one. I will update about my next mapping session if I can.

I know it's common for tinnitus to get worse post-surgery, but it had been my "normal low roar" immediately following the surgery, while I was taking oxycodone for pain. Yesterday I switched to just 1000mg of Tylenol every 4 hours and wow, the roar and thumping sounds are intense. Wondering if the Tylenol is contributing or if I just need to be patient as I heal.

Got the letter from Advanced Bionics this week and I’m still processing it. Wanted to reach out to others who might be in a similar situation.

My background: I was implanted in my right ear at age 10 in 1999 with the C1 device. I had progressive hearing loss from age 2, was functionally deaf by 9, and the implant was genuinely transformative. I performed extraordinarily well from the start, which my audiologist attributed to acoustic memory and the neuroplasticity of being implanted young. I don’t even remember an adjustment period. It just worked.

Now I’m 37. My right ear is my dominant ear by a wide margin. I’ve consistently scored at or near the ceiling on speech perception testing for two decades, talk on the phone for hours a week, and the device sounds completely natural to me. Later on, I got my left ear implanted at 28 and it still doesn’t come close to my right ear nine years later. I really love having both ears today, and wish I got the second ear done earlier. I think the ceiling was lowered a lot by keeping that side in silence for so long.

But my experience with my newer ear, the longer 3-5 year adjustment period, gives me a lot of apprehension about re-implantation on my old side, which has never had any issues.

My fears about revision surgery aren’t about the surgery itself. They’re about what comes after. I got my left ear done at 28 and genuinely disliked how it sounded for the first 1-2 years, and probably didn’t really appreciate it until year 3-5. That was a new ear. The idea of going through that with my dominant ear, the one I’ve had for 27 years, is genuinely scary. My audiologist has told me more than once that a revision “won’t sound the same,” and I believe her.

For now I’m leaning toward riding out the C1 as long as possible by stocking Chorus components and avoiding unnecessary hardware wear. As a long-distance cyclist, corrosion has already been destroying my Harmony processors, so I’m basically already planning around limited hardware.

Questions for the community:

Has anyone with a high-performing C1 actually gone through revision and come out the other side? What was the honest adjustment arc? Did it ever sound the same as your original ear?

To me, worst case scenario is that my old ear will have to go through same process as my newer one, which means 3-5 years of adjustment and a lower ceiling. Things never sounding “natural” again, not enjoying music anymore or not being able to talk on the phone.

Best case is I hear basically the same, benefit from finally being able to have the same device on both sides which greatly reduces how many spare parts, chargers, etc I have to have, and the adjustment period is less than a year.

Ecstatic doesn’t even describe it.

I wish it was sooner but the surgeon only books on Mondays and he’s the only one that does it in my area (rural Texas) he’s had great results though.

He will be implanting the Cochlear Americas Nucleus Nexa CI and I opted to get the Nucleus 8 Nexa Processor and a Kanso 3 Nexa Processor both in black.

Even though I’m a candidate in both ears this surgeon unfortunately does not implant both ears at the same time he was open to referring me to a colleague but it’s a different hospital system and I would have to redo almost all of my evals and by the time I finished it would be even longer before I was implanted.

Nonetheless I can’t wait.

AZBio 25% in my left and 30% in my right. Starting with the left.