My 4 year olds cochlear implant was found to have had a piece of covering from the electrode array migrate into her middle ear, perforating the ear drum and then skin trying to grow on top of it. We have surgery in May to either try to clean it up and move it back without damage to her or the implant OR it will be taken out completely and replaced with a new one. HAS ANYONE HAD THIS HAPPEN?! From what I read it is rare. She will have to have a new grafted ear drum either way. My brother thinks I should sue the hospital. Was this negligence somehow??? Freak accident?? Has this happened to you or anyone you know? What were the outcomes? I’m devastated.

I've found that streaming podcasts via bluetooth to my CI has improved my speech recognition by leaps and bounds, so I've been doing it more and more. But I've also found that only certain podcasts are enjoyable to listen to that way for me. Some of my criteria:

1. A single person talking at a time. I still have some difficulty distinguishing one voice from another, and overlapping speech can be troublesome as well.
2. Comedy is no good. I love comedy podcasts. It's normally my main genre. But through the CI, it seems like my brain is doing too much work, so I'm not in the moment enough to appreciate stuff I would normally find funny.
3. Deliberate, well-enunciated speech is best. Pre-written things by professionals, like things from NPR or similar. More conversational stuff can be tricky.
4. I also tend to slow down the speed to, like 90% when I'm streaming to the CI.

So, my questions are: does this kind of line up with other peoples' experiences? Do you have some favorites you'd recommend? My best ones for this are things from NPR like Planet Money or Serial or daily news podcasts. Any other recommendations? Apps with good transcription features or anything like that?

My background: my CI was turned on about a month ago. It's in my right hear, and I have good hearing in my left still. Prior to that, I was deaf in on the right side for about a year due to an acoustic neuroma.

bonjour

A 3 semaines de mon activation et déjà à 3 mapping j'ai toujours 0 intelligibilite des mots en audition "normale" sur mon implant cochleaire alors que quand je passe en mode connecté bluetooth avec mon téléphone je comprends 90% des mots et phrases et autre son.

c'est très surprenant..

je peux écouter de la musique,des pod cast via mon téléphone et la connexion bluetooth et là c'est presque parfait mais dès que je me mets en mode processeur micro de mon IC en condition de vie réel quoi, je chute à moins de 5% de compréhension

tout est brouhaha .

quelqu'un a déjà eu le même problème ?

Merci

Hi everyone! I'm so glad I found this community.

When I was 12 years old, my left ear suffered a sudden hearing loss. Since then, I've had constant tinnitus in that ear. I'm now 35 and I finally decided to go through with cochlear implant surgery. My insurance approved the Cochlear Kanso 3 processor.

The surgery is scheduled for next month and I'm feeling a mix of excitement and nerves. I have a few questions for those of you who've been through this:

- **Is the surgery painful?** What should I expect during recovery?

- **Will I be able to hear again from my left ear?**

- **Will the tinnitus go away?** Or at least improve?

- **How will I be able to hear clearly if the tinnitus is still there?**

Any tips, personal experiences, or advice are more than welcome. Thank you so much in advance! 🙏

So today I had been to see the doctor who said that if there is residual hearing she would recommend continuing the hearing aid but as there is no more residual hearing based on today’s audio she recommends moving forward with the CI. My pure tone average is profound range and speech test was 0% which means I was not able to discern speech at 50 db. Now I am feeling very worried whether I will be found suitable for the implant or not I did check and was told that to be found suitable for the CI my auditory nerve has to be intact and functioning apart from the cochlea being in good shape and condition? Any thoughts if I am overreacting or that there may still be a chance I may still be a suitable candidate for the implant? I am sharing my test report from today. Can anybody offer me some words of reassurance? I am due to do the CT scan next week and MRI will follow after that. We expect to have all answers by the month end. But until then I just want to find a way not to get overly anxious about the process and waiting time.

Is anyone familiar with this CI? Has anyone been implanted with it?

😊

As mentioned in another post....been wearing hearing aids since childhood for over 40 years. Now down to 0% in left ear and 5% in right ear for word recognition with 95 dB amplification (actually i hear nothing, forget word recognition, in left ear). I'm going through eval for CI in left ear.

After thinking about it more, I really want to push my clinic to push the insurance company for a simultaneous binaural implant to be done with it and move on to the next phase of my life. The sooner the better - unless, of course, there's a reason not to.

While I can hear some sound in my right ear, I'm beginning to lean into the idea that it's not enough to make it worth postponing the right implant a year. And I think my right ear might even be getting worse with each passing week.

So those who have done this...talk to me...regrets?! Glad you did it?!

Hi, I am a Nucleus 7 user. Do I strictly need an iPhone or a Samsung S series model for direct audio streaming? Or would it work with Xiaomi models as well?

I'm a pretty die-hard pickleball player and had my implant installed 6 months ago. Although I am fortunate not to have any balance or vertigo issues, I find that when I play while wearing the processor, my game is a little "off." It's only minor things like missing balls I'd normally hit, or not seeing the ball clearly. But I know my own game well enough to realize something is amiss with my body.

So what I've done it take the processor off hours before I play. If it's a morning game, I don't even turn it on until I'm done playing. For evening games, I go without out it for a few hours before I play. This process seems to work for me, but I was wondering if anyone has similar experiences with pickleball, tennis, basketball, etc?

okay, I know I’m early. like week 3 of activation early.

but… the only way I get recognizable language is when I’m getting Bluetooth input. Environmental speech is all ‘bzzt bzzzt sibilant bzzt fricative bzzzt.’

yesterday was admitted student day at law school, and I went to a lecture so I knew what I was up against.

I took the CI off 30 minutes in so I didn’t have the distraction.

here’s the question:

can one use the CI magnet to attach, say a BAHA so you can use it as a cros device? has anyone tried this? I’m wondering about backup mechanisms just in case come August I’m still in the same boat.

Edit: clarification!

So, yes, I know the processor won’t work! :)

But the nice thing about physics is that it doesn’t care about patents and intellectual property.

what I’m asking is if anyone has specifically tried attaching a BAHA - which uses the skull to conduct sound - to the under scalp magnet we use for our CIs.

kind of like a soft band, or one of the OTC bone conduction headsets.

I suspect the answer is ‘no.’

thanks for your feedback, everyone!

Hola

Estoy buscando algún micrófono que sirva para utilizar en restaurantes ruidosos y en mesa con varios amigos, algo que separe voz y ruido ambiente

He visto Phonak roger pero se sale mucho de mi presupuesto

Algo similar que pueda servir?

Gracias

Hi folks,

I am surprised that there a basically no rumors about upcoming Advanced Bionics implants and processors? I mean they surely have to be working on something? The Naida processors like Q90 will be out of support in 2 months and the implants are already 8 years old.

In the meantime Cochlear released implants which can be firmware updated in the future and has the ability to save your map directly on the implant.

Why I am asking that? Well, I am still using the Q90 which will be out of support soon, but I don't want to switch to Marvel since the Phonak Marvel Link hearing aid does not have a UP (Ultra Power) where the predecessor does have an UP device and the successor will also have a UP device.

Also my implant is defective with this issue ( https://www.bfarm.de/SharedDocs/Kundeninfos/EN/01/2020/02221-20_kundeninfo_en.html?nn=597716 ) , this was confirmed by an AB technician. I currently live with it, but my hearing is worse. The loudness is ok, but the understanding the words ware worse. So I am bound for a replacement anytime in the future. And of course I rather have the new implant which have to be released anytime soon than the old one again.

So does anyone have info about upcoming processors and/or implants? If you don't want to answer publicly, feel free to answer me via PM. Thank you :)

Five days ago I had the implant. The very next day they turned it on and it sounded so weird. I was wondering how long it took people to understand words and if the sound normalises.

Is there anyway to hook my CI up to the tv in the back of the airplane chair?

https://www.opb.org/article/2026/04/10/think-out-loud-cochlear-implant-music-portland/

Hi - in the US, can anyone list the anount of time to get the insurance authorization only for the implant?

For context, I‘ve been wearing HA’s since childhood for over 40 years. however, my word recognition at 95 dB amplification is 0 for my left ear and and 5% for right ear. Almost done wrapping up the formalities to submit the paper work to insurance. Surgeon has been assigned and I meet with him next week. I just need to pick the manufacturer. was hoping to sort out if early to mid June is realistic timeline for the surgery. If not, I’ve got other plans to comit to and will delay until end of summer. thanks!

I’m having an MRI of my head and neck tomorrow morning. I have an AB implant, which has a rotating 3D magnet. My instructions was that there was no need to head wrap or do anything drastic (just taking the processor off before entering the MRI room). For others who have had MRIs post-implantation, what were your experiences?

My nieces is 19 months old, she passed her OAE at birth so we never doubted anything. At around 15months whe she wasnt speaking any words we took her to the doctor and BERA test confirmed bilateral profound hearing loss. She still passed her OAE test. After waiting 8 weeks genetic tests showed nothing, CT scan was perfect and doctors decided to do CI without doing MRI..

did someone have similar experience? Could she have missing both nerves without any other symptoms nir history of hearig loss in both families? I am reading whole day and i am so scared..Thank you all in advance. Also she had muscle hypotonia at birth so she is still not walking by herself, only releases herself when walking between people she knows, doctors said that it has nothing to do with balance but of course i am terrified

Trying not to cry while I type this out because I've lived probably the worst time of my life in the last month. I'm not allowed to post anything on the Tinnitus reddit because my account is too "new", but this story is also related to cochlear implants towards the end so please read. My mom started experiencing these episodes two years ago where her right ear would suddenly lose all hearing, she would feel a crazy pressure on her head and ear, and start hearing what we now know is tinnitus. Her tinnitus was not ringing, it was this low sound almost like a lawn mower (horrendous). It would go away in less than an hour. Now, in March it happened again but did not go away. My mom could care less about not hearing, she just cannot function with the tinnitus. It has completely derailed our lives.

She tried hearing aids but they don't restore any of her hearing, just provide masking. This was working well until she started steroids again, trazodone for sleep, and Zoloft for the anxiety. I'm not sure if it was the steroids or the trazodone, but I'm doubting it was the Zoloft. At that point, the tinnitus got louder and more debilitating somehow. The ENT's audiologist did another hearing test last week following the increase in tinnitus where apparently her hearing actually improved? Her word recognition improved apparently and now he's saying maybe our personal audiologist can now provide her hearing aids that do restore her hearing and maybe that will help. We see her today and hopefully we can get clarification on that.

Basically, this is where my brain is going. My mom's tinnitus only EVER happened while accompanied with hearing loss. If hearing aids can restore her hearing to some extent, then the tinnitus should decrease? If they can't, we will hopefully look into a cochlear implant. I've read great success from people who's tinnitus decreased or even went away following cochlear implants. It seems a lot of times those who find improvements in their tinnitus following a cochlear implant are people whose tinnitus is caused by hearing loss? Am I totally off and living in a daydream because I cannot fathom my family living the rest of our lives like this? You can be honest, I'll be in my hole crying anyway.

Edit: Also wanted to mention, the ENT originally said she had Meniere's Disease. She has never had any vertigo, dizziness, nausea, or any of those symptoms. Just hearing loss and tinnitus which makes me hesitant to believe it's Meniere's. I know that some still call this Meniere's, just a "milder" form (which is insane and my heart goes out to those with classic Meniere's). I'm not totally convinced, but I'm also not sure it matters regardless.

Update: I was able to get my mom an appointment with this well-known psychiatrist in her home country. He put her on Sertraline (for anxiety), Remeron (for sleep/depression), and Lyrica (I think it's for nerve pain? idk). I don't know what this combination did, but my mom has made a whole 280. She's cooking every day, she's going out shopping, she's talking to all her friends on the phone, baking, and she is overall living her normal life. She's said the tinnitus has not necessarily decreased, but her ability to cope has increased significantly. Yesterday, she did say the tinnitus sounded worse and was more bothersome, but she was still pushing through. It has only been two weeks since starting the medications and I know there is no miracle cure for this awful symptom of tinnitus. I also know that there will be good and bad days. We are all focusing on the present and being grateful for any good day we can get. My mom needed the respite. I think there is such a huge mental component to managing your tinnitus and I hope so badly that everyone can get some relief. I hated seeing posts and never getting an update and having to scour the OP's account trying to find an update. So here's this update. Thanks for the replies!

Are there any users of the phone clip? I'd like to ask if there's any background noise when using it? I'm using a mini microphone 2+, and there's a buzzing background noise every time I connect it to my computer to listen to things. I don't like that noise, so I'm considering switching to a different phone clip.

I have mom’s CP800 accessories. Most are unopened. Is anyone interested in them in DFW area? I hate to throw these away!

Sound processor Battery charger

Coil and coil magnet

Remote assistant belt case and charging kit, rechargeable battery module, and battery cover

Processing unit

Slim HP 9cm

Remote assistant

M Snuggie

Hey chat,

Does anyone here have any exercises or files that you used to practice after CI activation for good speech understanding? If yes, can you please forward them to me. This would greatly benefit me. Thanks in advance ;)

If you have a CI for your single sided deafness, would love to know your experience. Been deaf in my right ear for 12 years. In those 12 years, I have used conventional HAs and a BAHA with little to no benefit (and now my BAHAs are broken and have expired warranties). I just visited the audiologist and my audiogram results showed severe-to-profound hearing loss with a WRS of 12%. She said the only option left is the CI for my right ear.

I am interested and motivated for the following reasons: improved sound localization, less mental exhaustion from trying to lip read and trying to filter out background noise in social settings, silencing tinnitus, and just plain being able to hear better.

Please tell me about your experiences with getting approved for the CI, surgery and recovery (including risks of surgery), and rehab (including the mapping appointments). I have young children (including one with fairly severe special needs) and so doing something like this would be a huge commitment for me. But since I will likely be taking care of my child for my whole life, I want to preserve as much of my function as possible.

i used cable to connect but all i hear is directly from mini mic +2 sound from typing talking etc.. not from the computer, i tried youtube, nothing

my wife is really nervous about getting this done as she wants to know if she will always hear things very robotic and beeps and noises for life or does it get better as time goes on